Spinocerebellar ataxia type 6 and PIP

My wife ahs been diagnosed with this condition. She has trouble walking and speaking and we are thinking of applying for PIP.

Spinocerebellar ataxia type 6 (SCA6) is a rare, late-onset, autosomal dominant disorder, which, like other types of SCA, is characterized by dysarthria, oculomotor disorders, [peripheral neuropathy]], and ataxia of gait, stance and the limbs due to cerebellar dysfunction. Unlike other types, SCA 6 is not fatal. This cerebellar function is permanent and progressive. (Wikipedia)

Has anyone here applied for PIP because of this condition? What was the outcome? It seems to me that to get enough points we will have to wait until she's in a wheelchair as she can stuble along with my assisstance and a walking stick.

Hi Q,

Please note that moderators are not medically qualified, so we cannot give definitive advice on specific medical conditions as is explained in the Forum FAQ.

The DWP used to produce an A-Z of medical conditions on the DWP website, but this is no longer available online.

Current guidance is now available at Medical guidance for DLA and AA decision makers (adult cases): staff guide

However, this only a guide and is not an authoritative guide on the law.

Regards.

Jim

My wife has Spinal Cerebellar Ataxia SCA type 13 and like type 6 is an extremely rare condition. The short answer to your question is YES your wife is entitled to the highest rate. My wife work until 2 years ago but now she can not walk her balance is non existent and she requires a wheelchair to go anywhere. She has trouble swallowing and her speech is also affected. Remember to fill in the questionnaire for your claim based on her WORST days and not so much on what she can do but on what she CANT do. also get reports from your SpecialistsConsultant/Physio/GP/etc etc any problems contact me direct at [email removed] my two sons also have this same condition as does my grandson