Ankylosing spondylitis

Hi, a strange ?, I have been diagnosed with AS after 35yrs plus of back and hip pain and all joints painfull stiff and swollen, I have been awarded Pip standard rate for both and ESA support group. I was wondering if AS was going to be classed as a known disability. I know im not going to get any better and probably getting worse, just need to know if you and this group have had anyone in my situation. I know I will never be able to work again but I am terrified if they stopped my benefit how I would survive. I do find the ?s for claiming PIP a little bit stupid especially planning and following ect. Do they plan to reword this in the future as I would like to know for future claims. Thankyou.

Hi, could you show me on here if their is anyone with AS and any questions they've asked, more so how they went about answering the questions on a review, as I am just renewing my ESA and struggling with form, thankyou.