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TOPIC: ib, cfs, gp, help

ib, cfs, gp, help 7 years 3 weeks ago #12758

I have had cfs for 16 years. Lost my dla (mrc/hrm) in April this year - I think the main reason was the report from my gp - "some lethargy" was his main opinion of my problems. I was too ill to do an appeal at the time.

I was planning to find a new gp but my ib review process has just started so I'm stuck with the one I've got for now.

I rarely visit my gp mainly because I am too ill to go and there is very little he can do for my cfs. I viewed my medical notes recently and even when i have been to see him he has written hardly any details about my cfs in my notes.

I have just received a letter from dwp to ask permission to get a report from my gp regarding my ib.
I'm so scared that if he does a similar job on my ib report as he did on the dla one that I will lose my ib too.

I have made an drs appointment but don't know what I should say and the stress is making me even more ill.

Any suggestions? Please help.
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Re:ib, cfs, gp, help 7 years 3 weeks ago #12760

  • pata1
  • OFFLINE
  • Retired Nurse & Former Moderator.
Hi Pam,

It's impossible for us to attempt to give advice on individual claims, as we don't have access to your case papers.

You need to seek 'one to one' advice from a benefits adviser. Try your local CAB, if they can't help, then try Community Legal Advice

Hope this helps.

Pat
PLEASE READ THE SPOTLIGHTS AREA OF THE FORUM REGULARLY, OTHERWISE YOU MAY MISS OUT ON IMPORTANT INFORMATION. Nothing on this board constitutes legal advice - always consult a professional about specific problems
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Re:ib, cfs, gp, help 7 years 4 days ago #13491

  • lavenderlady
Dear Pam

Having just read your post you sound a bit like me. I've had CFS for 13 years and my HRC and HRM renewal has been disallowed wef 18th February 2010. Fortunately, at this time I am able to appeal.

I quite understand that you didnt feel well enough to appeal. However, there is nothing to stop you from applying again when you feel stronger.
Once some years ago they refused me, then 6 months later I reapplied and I was awarded DLA. So as they say, if at first you don't succeed try and try and try again. You've got nothing to lose and everything to gain.

Best Wishes.
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Re:ib, cfs, gp, help 7 years 4 days ago #13493

Hi Pam,

Sorry to hear about what your having to go through at the minute.

It is important that your GP supports you with both benefits. Because you are not a regular attender your GP may not have enough information in order to support your claim simply because he dosnt appreciate the difficulties you have. As a result of this you are now having to explain all to the dla people, then the ib people as well as your GP.

I would suggest you take it one step at a time. Firstly when you visit your GP, take a list with you of all the problems you have. Explain that you appreciate he may not be aware of this (a lot of GP's arent aware of all their patients difficulties). Suggest to your GP that you will keep a pain diary over the next couple of weeks and return with the details. This will give your GP an good idea of the problems you face and he can include a copy of this in his records, and maybe as a result suggest other methods of pain relief etc for you. It will also be a help to you with your IB renewal if you have to attend a medical, and it will be a start if you decide to re-apply for DLA.

It's difficult when you know the problems you have and others dont seem to appreciate, but unfortunatly you have to try to make them appreciate.

Good Luck

Kathy
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