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TOPIC: Lies, damn lies and medical assessments

Re:Lies, damn lies and medical assessments 6 years 11 months ago #13691

I can't say I'm surprised that the 'system' doesn't care about the individuals that get crushed under its wheels. But having to treat the whole process as if you're a secret agent in hostile territory is really rather depressing. I stopped living that particular fantasy when I was 13 years old! :S
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Re:Lies, damn lies and medical assessments 6 years 11 months ago #13692

  • lavenderlady
IsaacDavid wrote:
I can't say I'm surprised that the 'system' doesn't care about
the individuals that get crushed under its wheels. But having to treat the whole process as if you're a secret agent in hostile territory is really rather depressing. I stopped living that particular fantasy when I was 13 years old! :S
Hi Isaac
Yes,it's time to go back to being a 13year old again!Planning and scheming how to overcome those who oppose you and what you must say or not say. However, if you succeed I'm sure it must be very satisfying indeed. It's also good to know you did your best and that you used all your engenuity and wisdom. All heroes and heroines wrestle with injustice. It's part of the territory.
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Re:Lies, damn lies and medical assessments 6 years 11 months ago #13693

  • AndrewPatrick
Hello

I do take your various points but at the same time I am sure it would be more than useful for members to have a forum where we can post our 'condition descriptions' and exchange ideas on condition description. I am sure not everybody has the time or more importantly the energy to trawl through endless websites in the hope of coming up with the goods. Those that do could offer up their findings for those that can't, just as those that are more articulate could offer up their descriptive gems for those that are not.

I am sure it is open for debate. It is indeed a shame that there are not more moderators, we as members owe a huge debt to those that do the job is such difficult personal circumstances. I am sure we all admire and appreciate their efforts.

If there is any enthusiasm for the idea then I am prepared to pursue it with Steve and offer what support I can.

Andrew
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Re:Lies, damn lies and medical assessments 6 years 11 months ago #13694

  • AndrewPatrick
Hello again,

Took Lavenderlady's advice and initiated another search for a good definition of and description of living with generalised osteo-arthritis. I had not done this for some time and was encouraged by the number of hits in my google search. Not encouraged for long. The results produced cursory and contradictory information and sometimes information far to technical to be of any use for the purpose we need the information for.

The experience made me more convinced that a forum for condition description would be a good idea. If my experience is anything to go by then the more experienced and articulate members who are able to glean small bits of information here and there and marry this with an ability to describe their own conditions could greatly benefit those without those abilities.

Andrew
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Re:Lies, damn lies and medical assessments 6 years 11 months ago #13700

  • lavenderlady
Hi Andrew

I take your point that some people do have the ability to articulate things better than others. It's a shame that the less articulate you are the less likely you are to succeed with not just DWP forms but anything in life.

I have had CFS/ME for 13 and consider myself quite articulate but I still find that I have been learning how to express myself better by reading posts on this website.One person wrote 'I suffer constant levels of pain', I thought that's good, that's me to a tee. I think I will start a notebook of helpful descriptions like that for future forms, that no doubt I will be required to fill in.

I wonder if anyone has written a book about living with osteo-arthritis. You would think so. That could be helpful to you. You could probably do a search on a library website for that. you could even try an american library website, because I'm sure someone there must have written a book of their experiences.
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Re:Lies, damn lies and medical assessments 6 years 11 months ago #13702

  • Jim Allison
  • OFFLINE
  • retired Principal Welfare Rights Officer
Hi Guys,

Just a reminder, we have good resources on medical conditions in the Spotlights area of the forum MEDICAL CONDITIONS FOR DLA.

Disability Handbook

A-Z of Medical Conditions

These are used by DWP Decision Makers and DLA Tribunals to help assess entitlement and the likely level of care and/or mobility needs in DLA, so they are a definitive source of information.

Whilst written for DLA, both sources, especially the A-Z of Medical Conditions should be useful for members seeking up-to-date information on a wide range of medical conditions for IB or ESA claims also.

It has to be remembered, that the original forum was set up for members as a courtesy to provide where possible, further information and help on the guides in the members area. We then decided to set up a discussion area for members in order that they could discuss benefit related issues, and we could give priority to answering benefits questions.

Moderating a further forum isn't as simple as it sounds. I've been moderating disability related forums since 1994, and it needs time and commitment, because it just doesn't involve answering queries, it needs lots of time to research legislation and up-to-date case law, which is fine if you're fit and healthy.

We are not a welfare rights organisation, but by providing a selection of online guides, a forum for incapacity and disability related queries, plus a discussion forum, we do better than most large welfare rights organisations such the Disability Alliance, Child Poverty Action Group etc. where the general public cannot get online advice, and whose guides are only available in hard copy.

I'm not even supposed to be on my computer, which is why I'm posting my views at 5.45 am, whilst my wife's still asleep :P then back to bed <yawn>

Jim
PLEASE READ THE SPOTLIGHTS AREA OF THE FORUM REGULARLY, OTHERWISE YOU MAY MISS OUT ON IMPORTANT INFORMATION. Nothing on this board constitutes legal advice - always consult a professional about specific problems
Last Edit: 6 years 11 months ago by Jim Allison. Reason: Corrected typos.
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