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To all the moderators - can i help?

  • tilly
13 years 7 months ago #24251 by tilly
Replied by tilly on topic Re:To all the moderators - can i help?
Hi Julie

I found it very difficult at the medical talking about incontinence problems, but the nurse said she could not assess incontinence at the medical and ignored that fact that I have incontinence challenges every day on the urinary front and I got zero points for that too!

My main problem (of quite a number) for me is my interstitial cystitis, which leave me bathroom bound for whole days..... and in agony everyday (and awake most of the night everynight)...

I do have mobilility problems which are more severe now since medical, but they were there 6 months ago at medical, I have hip and hand problems too, plus terrible dizziness.....

I have to fill in more Limited Capacity for work forms once again.... even with problems with my hands..... !

Best wishes to all

Tilly

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  • millymoo
  • Topic Author
13 years 7 months ago #24293 by millymoo
Replied by millymoo on topic Re:To all the moderators - can i help?
Hi Tilly

Please get some help here!!! I found CAB very helpful or perhaps a welfare right worker. It the information that CAB gave me to score points for incontinence it only needs to happen at least once a week and i ended up scoring the maximum points for that after a fight. I did have quite a lengthy conversation with my GP about how the Crohn's affects my daily life and yes i felt awkward discussing personal issues but once she knew the whole truth she was very supportive and did a report confirming all this. It could be worth you speaking to your GP and be totally honest with them i was very upset discussing incontinence etc but my GP was fantastic!!! I hope this helps!!

Kind regards
Julie

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13 years 7 months ago #24332 by Jeff1
Replied by Jeff1 on topic Re:To all the moderators - can i help?
Hi jullie, I was the same as you i was afraid of telling the truth about my bowel habits. Steve has done a case in the members section from last year i dont know if you have seen it CDLA/0217/2009. Claimant who can walk and run gets high rate mobility for incontinence. Its very interesting and shoul help members with continence problems. Best Wishes

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  • millymoo
  • Topic Author
13 years 7 months ago #24353 by millymoo
Replied by millymoo on topic Re:To all the moderators - can i help?
Hi Jeff

Thank you for that information i hadnt seen it and it is very helpful!!

Kind regards
Julie

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13 years 7 months ago #24414 by carole
Replied by carole on topic Re:To all the moderators - can i help?
I have a broad knowledge of mental health legislation, if i can be of help would be happy to :)
Carole

Nothing on this board constitutes legal advice - always consult a professional about specific problems

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  • Bonnie
13 years 7 months ago #24665 by Bonnie
Replied by Bonnie on topic Re:To all the moderators - can i help?
I help run a website for Crohns might be a help for anyone who suffers from Crohns or Ulcerative Colitis!

www.crohnszone .org

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