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Esa support group worry

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6 years 8 months ago #194632 by Steven
Esa support group worry was created by Steven
Hi. Iv been in the support group for about 6-7 years. I have major spinal cord damage, after ops on it it's badly scared , tethered and basically means I'm in none stop nerve pain 24/7. I can't bend, walk much and use sticks when do
I'm in the high rates for both pip.
But i have done the wca form for the first time , and now they have sent me a appointment for assessment. Iv always had them at home. But they won't I can't get there as can't go out on my own, I panic , have to do things around my meds , and I can't plan anything due to the physical condition.

I sent them 4 letters of support, gp states my conditions and said I would really struggle to get to a assessment due to my illnesses. My physio wrote how my condition effects my day to day life.

If they read them then i don't get why i need to be seen as I would get the support group for quite a few easy. And they have that in the letters. I.e. One says can't walk 20m without extreme pain and physically difficult to do.

How scared should i be with how this is turning out? I suffer badly with panic attacks and that triggers my physical effects there for starts that vicious circle. I don't know how worried to be as they not obviously care about all the evidence I gave.

Hopefully I can get some support. I'm in this on my own, and don't have anyone else who this kinda thing happens to (disabled and needing help)

Thank you
Steven

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6 years 8 months ago #194634 by Gordon
Replied by Gordon on topic Esa support group worry
Steven

I'm afraid your GP letter is insufficient if it says that you would really struggle, this still suggests that you can attend at Maximus's office, you need a letter that states that you cannot attend at their offices.

Gordon

Nothing on this board constitutes legal advice - always consult a professional about specific problems

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6 years 8 months ago #194643 by Steven
Replied by Steven on topic Esa support group worry
Hi Thank you for the reply. it's really worrying me as one i don't have any support to get to an appointment either, my only help comes in a eve when my brother and mum are finished work and can get up to my house (20 miles away). I can't get up or out of the house most days because one the huge amount of sleeping and pain killers at night to help me sleep through the pain make mornings a daze; and the pain from sleeping and laying means that I wake up take 10 pills and takes a few hours to even start been able to move about. By then it's easy 1pm. And it's all a strick routine that if anything comes up that mess it up i basically go into a mess and it flares up everything to the state i can't move or think with pain. I spent over 3 of the last 5 years in one room without leaving the house. It's only last few Iv managed to get out a little.
I don't have the help to get to appointments, can't walk on my own , can't push myself or get my wheelchair in car. I literally can't get to it. And then also the mental and physical side that makes it a horrible thought as it is. I have had the last 3 or so assessments at home

Been disabled is bad enough, but these things making me feel useless are really frustrating and feel like useless and a burden. It's not like living the high life. They are really hurting the people needing help the most.

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6 years 8 months ago #194658 by Gordon
Replied by Gordon on topic Esa support group worry
Steven

Speak to your mother and brother, maybe they can take time off of work to take you.

Gordon

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