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Long term ME/CFS

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6 years 3 months ago #203987 by btaylor49
Replied by btaylor49 on topic Long term ME/CFS
Form was submitted and received by DWP Dec19th. letter from Capita, dated 02/01/18 arrived Saturday. Just waiting for the f2f now!
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6 years 3 months ago #203988 by btaylor49
Replied by btaylor49 on topic Long term ME/CFS
have read the articles and they were very interesting. I'm debationg whether or not to show them to my GP.

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6 years 3 months ago #203989 by Gordon
Replied by Gordon on topic Long term ME/CFS

btaylor49 wrote: have read the articles and they were very interesting. I'm debationg whether or not to show them to my GP.


NICE are consulting on the currently published guidelines, as far as I am aware, no changes have been published and GET and CBT are still the preferred treatments.

Gordon

Nothing on this board constitutes legal advice - always consult a professional about specific problems
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6 years 3 months ago #204114 by penthesili
Replied by penthesili on topic Long term ME/CFS
Hi btaylor49
Sunday's Inde came up with this interesting article.
www.independent.co.uk/news/long_reads/wh...isease-a8133616.html
Best of luck with your claim
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6 years 3 months ago #204194 by standswithafist
Replied by standswithafist on topic Long term ME/CFS
Can I offer some advice in case you are still struggling with getting the correct benefit for you.
I have ME, amongst other conditions and was successful in gaining high rate care, standard mobility after Court appeal last year.
Use the guides on here and the descriptors to answer each question and begin each answer with the phrase 'I am unable to (prepare a meal) safely, reliably, repeatedly and in a reasonable time because (for example) due to M. E. I become exhausted very quickly and become too tired to complete the process, when I prepare Veg I experience pain in my forearms, followed by muscle spasm/twitching making holding a knife unsafe, or handling pans/hot water I am at high risk of burns, scalds. =When I do this, this is how my body reacts.
Whilst M. E is a fluctuating condition, offer a daily diary for 2 weeks to show impact activity has had on you.
Can you consider changing GP practice to one more Supportive? Also view M. E. Association website, very helpful.
Keep going fighting for your rights and good luck.
Standswithafist
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6 years 1 month ago #206946 by btaylor49
Replied by btaylor49 on topic Long term ME/CFS
Had my F2F Friday. Assessor came to my home. I was allowed time to answer questions, and refer to my original form. The whole assessment lasted 1 hour 10 mins. Just a waiting game now for the result.

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