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6 years 1 month ago #208558 by Eggcustard
Replied by Eggcustard on topic PIP questions
Is this better please?

COOKING My partner has to cook tea every day. He also prepares all snacks/sandwiches etc and hot drinks.
I can’t cook at all anymore because I am too exhausted and in too much pain. I can’t get to the kitchen to cook. If I could get to the kitchen I wouldn’t be able to stand up for long enough to be able to cook because of neuropathic pain in my leg, all over body pain from fibromyalgia, severe fatigue and dizziness. If I did try to cook I would need to use my perching stool, however, because my pain and fatigue are so bad for 6 days out of 7 I would still be unable to cook even with the stool. It doesn’t help me with the pain and fatigue at keeps me in bed, it only helps with the pain and fatigue that stops me from standing up. Chopping, peeling, opening tins and packets are all difficult because of pain and stiffness in my hands, wrists, arms and upper body due to fibromyalgia, this would make preparing a meal difficult. Also, I can’t lift heavy saucepans or heavy trays. I wouldn’t be able to move around the kitchen, reach things from cupboards or bend to reach lower cupboards. Even with assistance I can’t prepare and cook food because of too much pain and fatigue that leaves me in bed for 6 days a week.
Preparing food and cooking would cause and increase in pain and fatigue and it would take time to recover so even if I could do it once, I would be unable to do it again the next day, therefore I can’t do this repeatedly.
For all of these reasons I need my partner to prepare and cook all of my meals.

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6 years 1 month ago #208559 by Eggcustard
Replied by Eggcustard on topic PIP questions
and this....

WASHING If I can have a wash it is at this time of night after my pain medication has built up through the day. I can NEVER wash in the mornings. I can't do this everyday, usually every other day but less in a flare up, therefore on average 3 times a week. Washing on one day means I definitely can't do it the next day and possibly for the next two days because of fatigue from the day before. Also my pain and fatigue levels get worse as the week goes on. I walk slowly to the bathroom leaning on the wall as I go, I am still stiff and in pain, sometimes I feel dizzy. I sit down while the bath runs. I get into the bath but it hurts my legs to do this. I have to kneel in the bath because I can't sit down and get back up again. I sit and rest for a few minutes. I then wash myself underneath and again stop to rest. I then decide if I can wash my underarms, sometimes I can't so I have to leave them. If I do wash my under arms I rest the arm on the side I am washing on the side of the bath because it hurts to hold my arms up. I then stop and rest. I then repeat on the other side. By now my arms and hands are hurting more and I quite often end up crying because of the pain and exhaustion. I now decide if I can wash my hair. I hold my head under the bath tap because it is easier than holding up a shower head over my head which is too painful. Once I have washed my hair I have to stop and rest again, that was the most difficult part. Once I have recovered I get out of the bath and sit down until I can put a bathrobe on. I also have a shower seat for the walk in shower which I use when I can't get in/out of the bath, this is usually once a week. If I had to wash every day I would need help to get in/out of the bath/shower and to wash my top half (because of pain and fatigue) the majority of days (4 days a week)

and this....

DRESSING As with washing, I can't do this every day usually every other day but less in a flare up, therefore on average three times a week. If I have had a wash I put on clean PJ's/nightie. I can't get dressed in the morning because I am too exhausted and in too much pain so I stay in yesterday's PJ's/nightie. After a wash in the evening my pain and fatigue levels have increased, I am often breathless by the time I get back to the bedroom. I can't get properly dressed becuase of this so I put on clean PJ's/nightie. Lifting my arms above my head to put on or take off my top or nightie hurts my arms and my hands are also hurting. I can manage but I couldn't do this everyday. If I can I put on leggings but mostly I can't so I just wear a nightie. If I had to get fully dressed every morning I would need help to reach my socks/shoes and fasten my bra. I am only able to get fully dressed once a week on a Sunday. I can fasten buttons and zips but it is easier to put on/take off loose comfy clothes because of pain.

Thanks

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6 years 1 month ago #208562 by Eggcustard
Replied by Eggcustard on topic PIP questions
Also, if the assessor mixed up two activities does that show that the assessment is definitely flawed?
She stated that on the form I said I had problems with taking nutrition when the form says no problems with this activity.
She then stated that I said I had no problems with managing therapy when I said I did have!
If she didn't even get that right surely it means the report can't be relied upon.

Thanks for your help.

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6 years 1 month ago #208581 by Gordon
Replied by Gordon on topic PIP questions
Eggcustard

Are you happy with what you have now? Is there anything else you might include? Are you happy that you have covered of the issues of aids and help from someone else?

If these are issues from the report then it does suggest that it cannot be relied upon, but Decision Makers are quite blind to the faults in a report, so don't expect too much from the MR.

Gordon

Nothing on this board constitutes legal advice - always consult a professional about specific problems

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6 years 4 weeks ago #208672 by Eggcustard
Replied by Eggcustard on topic PIP questions
Is this any better?

I believe the correct descriptor is
f. cannot prepare and cook food.
Reasons For This –(Please also see Typical Day Sheets)
I can’t move around the kitchen properly and I can’t stand up for long enough at a worktop to be able to cook or prepare food so I need to use a perching stool. However, a perching stool is not enough for me to be able to prepare food/cook.
Why aids such as my folding/perching chair or assistance from someone else won’t help me to complete the task-
• On really bad days neither will solve the problem of severe fatigue and pain that means I am too exhausted to move around or do anything apart from going to the toilet.
• On bad days neither will solve the problem of severe fatigue and pain that means I am too exhausted to move around or do anything apart from going to the toilet or washing/dressing, after doing this there is no energy left for anything else.
• On my one better day neither will solve the problem because after going out for a few hours that day I am too exhausted to stay at the worktop and cook and I have to go back to bed and rest.
Chopping, peeling, opening tins and packets, lifting heavy saucepans and trays and reaching things from high cupboards are also a problem because of pain and stiffness in my hands, wrists, arms and upper body due to fibromyalgia, this makes preparing a meal difficult. I can’t bend to reach things from lower cupboards because of pain and stiffness.
Preparing food and cooking would cause and increase in pain and fatigue and it would take time to recover so even if I could do it once, I would be unable to do it again the next day, therefore I can’t do this repeatedly.
For all of these reasons I need my partner to prepare and cook all of my meals.

My partner took my report to the CAB today and the adviser said there was too much detail, its more for them to trip me up with! His superviser seemed to disagree and say the detail is fine so now I'm even more confused. Is this too much detail?
What do you think?

Thanks.

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6 years 4 weeks ago #208685 by Gordon
Replied by Gordon on topic PIP questions
Eggcustard

Yes it is much better, but I can keep pushing for more changes and I don't want to switch you off to the advice.

What I will say is that I think you are being optimistic that you will be assessed as meeting (f), it's not impossible but I think you need to think of the level of disability that the writers of the Descriptors were aiming at to score the maximum points and then compare that to your problems.

S to the CAB comments, I would go with the more experienced Supervisor's view.

Gordon

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