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Autism, learning disability, won't attend F2F

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6 years 3 weeks ago #209128 by Jennifer
My 19yr old son rarely leaves the house and won't go to strange places. I wrote that on the PIP form and also sent enough evidence including letters about his condition from Consultant Psychiatrist. A letter arrived this morning with an appointment for 4th April...:unsure:

Last year my 17yr old son was approved PIP by a phone consultation - he also has autism but has NO learning disability.

Even if I get sedation for my 19yr old and manage to somehow get him to go to a face to face assessment, he will just say yes to everything... how can I handle this?

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6 years 3 weeks ago #209174 by Gordon
Jennifer

Dealing with the appointment first, I'm afraid you are not going to get an home assessment without a letter from your son's GP unambiguously stating that he cannot attend at the Assessment Provider's offices and why.

As to the assessment itself, are you his appointee? Are the issues you mention a result of his not being aware of his conditions and limitations or is it a result of his conditions that he will always say "yes"?

Were his problems documented in his claim form?

Gordon

Nothing on this board constitutes legal advice - always consult a professional about specific problems

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6 years 3 weeks ago #209335 by Jennifer
Replied by Jennifer on topic Autism, learning disability, won't attend F2F
I contacted his psychiatrist & she's writing a letter to say it would be detrimental to his mental health to be put through an interview so I hope that helps.

Yes I am his appointee. My son knows he has autism, he does not know he has a learning disability though. He gets distressed if anyone talks about him not being able to do tasks, so he will say he can do it - even though I have to help with most activities.

All of this was written on his form. I even wrote an example of when his psychiatrist asked him if he had Diabetes, Epilepsy or Asthma and he told her he had Diabetes. He doesn't have Diabetes lol!

I found this online, the DWP's own guidelines says on page 19 that "Cases that should not require a face-to-face consultation - where there is strong evidence on which to advise on the case and a face-to-face consultation is likely to be stressful for the claimant (for example, claimants with autism, cognitive impairment or learning disability) " My son has all 3 of those examples, so they are not following their own guidelines. Why is this?

www.gov.uk/government/uploads/system/upl...sessment-process.pdf

I sent a pschiatric report from C.A.M.H.S. with his claim form so they had medical confirmation of his conditions too.

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6 years 3 weeks ago #209356 by Gordon

Jennifer wrote: I found this online, the DWP's own guidelines says on page 19 that "Cases that should not require a face-to-face consultation - where there is strong evidence on which to advise on the case and a face-to-face consultation is likely to be stressful for the claimant (for example, claimants with autism, cognitive impairment or learning disability) " My son has all 3 of those examples, so they are not following their own guidelines. Why is this?

www.gov.uk/government/uploads/system/upl...sessment-process.pdf

I sent a pschiatric report from C.A.M.H.S. with his claim form so they had medical confirmation of his conditions too.


These are guidelines within which the Assessment Providers are expected to operate, however, it is for them to decide whether a claimant meets the criteria or not, it is not a given that a claimant does.

You can make a formal complaint, but this would be a separate process from the assessment and is likely to take longer, so you need to concentrate on getting a Paper Based Review.

Gordon

Nothing on this board constitutes legal advice - always consult a professional about specific problems

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6 years 3 weeks ago #209457 by Emilyb
I have a 25 year old son with similar problems. I was very stressed last year as he kept getting letters to attend an interview, I managed to get a specialist nurse to get involved & she just quoted the law & hey Presto he didn't have to attend & was awarded support group & PIP. Hope this helps as I understand how stressful it is, especially when appearing "normal" and saying yes to everything but not understanding any of it !!! Please look up legislation because as far as I am aware, there is a lot of new legislation to do with "autisim/ asperger/adhd to support you and just maybe quote it.
Good luck & I wish you well from another parent in the same boat!

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6 years 3 weeks ago #209460 by Emilyb
Get a specialist nurse, harrass them to put pen to paper as to they NEED A HOME VISIT AS IT would cause too much distress to the application! Hopefully they will back off !

I wish you well as I've been there and fully understand the anxiety and stress you are under :((

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