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TOPIC: [First Post] ME/CFS and DLA

Re:[First Post] ME/CFS and DLA 8 years 3 months ago #13838

Hi Sassy,

Sorry to hear you've not been well. My husband Jim has had 4 chest infections, in the last 5 weeks and four courses of antibiotics.

It's really too mild for the time of the year, and even our GP said we need a good spell of hard frost to kill of the nasty bugs going around.

Sorry I don't have time to answer all your queries, as I'm my husband's full time carer.

You can download the SSP1 from the DirectGov website and complete it online HERE and your local library should be able to help with photocopying for a small fee.

Have you contacted Community Legal Advice

They should be able to put you in touch with a local adviser.

Good luck.


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PLEASE READ THE SPOTLIGHTS AREA OF THE FORUM REGULARLY, OTHERWISE YOU MAY MISS OUT ON IMPORTANT INFORMATION. Nothing on this board constitutes legal advice - always consult a professional about specific problems
Last Edit: by pata1. Reason: Corrected link to CLA.

Re:[First Post] ME/CFS and DLA 8 years 3 months ago #13841

  • lavenderlady
Hi Sassy

I an offer you a few tips.

First off why not check your local phone book for CAB offices, Welfare Rights or any Community Advice Centre. If there's nothing there, go to your local library and checkout the phone book of your nearest town. They should have at least one Community Advice Centre, or Law Centre.

If you need anything from work, just ring and ask for the Personnel Office. They will know exactly what forms to send you if your required to submit anything to your employer. Don't be afraid, that's their job and they are there to help. They deal with employee quires all the time.

Most libaries these days have photocopiers so getting copies shouldn't be a problem. Also some larger post offices have them too.

Best Wishes

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Re:[First Post] ME/CFS and DLA 8 years 2 months ago #14406

  • Sassy
Hello again everyone!

I hope you all had a good Christmas and New Year! Mine was a disaster and my oven decided to pack up half way through cooking the turkey, but that's a whooooole other story!

The good thing about Christmas was getting a printer/scanner/copier from my boyfriend as a gift along with some ring binders and stationary so I can really keep all my DLA (and eventual ESA when my SSP runs out) claim paperwork organised and copies kept of everything. What a gem he is!

So, ofcourse, I went off to the direct.gov website and printed off the DLA claim form, all 58 (yes 58!) pages of it!
Promptly lost my nerve again and it's currently stuffed in a draw until I'm brave enough to get it out and make my first draft.

Health wise I'm still getting worse. I now can't shower/bath and wash my hair alone. My boyfriend can only get here at weekends as he works full time and has 2 daughters of his own so currently I'm going days and days without being able to feel clean and leaving the house. And as much as I've tried to fight it I can feel depression creeping in and taking over. (I've suffered with depression on and off over the past 15 years so recognise all my signs).

I'm currently trying to be as organised as possible and have started a to-do list which include a visit to the gp with regards to my depression and to contact Community Legal Advice and hope I can be put in touch with an advisor who knows a tad more than the chap I spoke to from the CAB.

A quick question to the mods.
I think it would be a good idea for me (and for others similar to me and readers in the future) if I could start off a new thread and basically make it a diary thread. The dates I do things like send off claim forms, medical dates and experiences etc and just basically keep an online log of it all and also give readers an idea of timelines of how long things can take. I know it can vary over regions but a ball park figure would still be good I think.
I just wanted to make sure that sort of thing was ok to do before I started it off when I (eventually!) get to sending off my DLA claim forms.

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Re:[First Post] ME/CFS and DLA 8 years 2 months ago #14412

As soon as you send for a claim form, the date is registered with the DWP and if you are successful your claim will start at that date. Hesitate and you could be losing money. I filled in the online version, a bit at a time, and completed it within the time allowed. My most important asset was my consultant who wrote such a convincing report that I was awarded DLA, HRM and MRC, when my application alone got me nothing. From what you write you clearly have care needs even if you don't get it every day. Apply but make sure your consultant/s support you and can write the magic words necessary in the report, when it is asked for.

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