× Members

fibromyalgia

More
12 years 2 months ago #80521 by lindat
Replied by lindat on topic Re:fibromyalgia
my then gp diagnosed rhuem arth in 1995...added menopause in 1998... still struggled but worked full time till collapse in 2000 get second opinion a million tests and diagnosed with fibro in 2001. been on IB and DLA HRM LRC since. did have to go to appeal over Mobility in 2007 as the doc who did medical said I was just lethargic and should move nearer shops. won appeal in 15 minutes and given it back indefinate [till pip] so I wouldn't have to go through this again.
cocktail of tramadol + co-codamol+ mirtazapine daily and diazapam + oxy if I have to go out at all or flare bad.
fun fun fun :silly:
appealing ESA now, in wrag, no change at reconsideration [after 20 weeks]but now have CAB on board. :cheer:

Please Log in or Create an account to join the conversation.

More
12 years 2 months ago #80522 by TCP
Replied by TCP on topic Re:fibromyalgia
I have ME/CFS poss Fibro and have Gabapentin (2,400mgs - 3,600mgs per days) and Nortriptyline (50mgs - 100mgs per day). At pretty much maximum dosage, cannot tolerate or find other meds effective and cannot take morphine. Still in constant pain but Atos nurse believes me to have 'significant relief from neuropathic pain'. INCORRECT!

Please Log in or Create an account to join the conversation.

More
12 years 2 months ago #80566 by lindat
Replied by lindat on topic Re:fibromyalgia
LOL like any amount of medication does anything for fibro pain other than 'round the point' and help us stay... relatively... sain :blink:
just got my 'bundle'
???
says I can self propel a wheelchair when I clearly state I cannot
says I did not say on my ESA50 that I needed to change due to bladder at least once a week when I did.... AND it asks the tribunal to make note of this discrepency [sp sorry fogged up good] etc etc 'sigh' rest then lie down with highlighter pen I guess :(

Please Log in or Create an account to join the conversation.

More
12 years 2 months ago #80636 by zippy-girl
Replied by zippy-girl on topic Re:fibromyalgia
thankyou all for your replies, all seems quite frightning regarding the dwp.already getting middle rate care, but just got renewal forms and just been told that i have fibro, so ill fill them in and see what happens.
would it be worth me getting help from c.a.b or d.i.a.l?

Please Log in or Create an account to join the conversation.

Moderators: GordonGaryBISCatherineWendyKellygreekqueenpeterKatherineSuper UserjimmckChris
We use cookies

We use cookies on our website. Some of them are essential for the operation of the site, while others help us to improve this site and the user experience (tracking cookies). You can decide for yourself whether you want to allow cookies or not. Please note that if you reject them, you may not be able to use all the functionalities of the site.