medical soon & suffering from ME, advice please

Hi ,

Thanks for all your replies,i feel a bit better about the medical now.

Would`nt they frown on me having notes on paper with me at a medical ? i always assumed they would.

Janice & Pen are you both on the support group for esa?

Janice my GP is ok,she sees ME as uncurable, but i try & avoid the nhs as much as possible,seen too much cruelty in it, but maybe she would write a letter,

Pen, really like what you said about the a reverse logic approach !

best regards,

Stu

Just a thought it might be better if you have someone with you using the notes as it is noted down what you can do with your hands, the HCP made a big thing of me having no problem showing her my meds, so i was using hands fingers etc.

CV

Hi Stu
Just been reading through you thread. I was just wondering if its to late to ask for you medical to be recorded as a adjustment that you will require???, .
Also look through the guides on here I believe there is one called questions you make be asked at thes assessment.
I made the mistake in my medical of trying to answer questions...and because I had just completed a Chronic Pain rehabilatation Course I was using word such as I try to push myself to walk further....I try to pain pace...but forgot the words try etc., there not interested in the positive`s or ists somthing you might be able to do....I`v leart the hard way that when you look at your own illness/disability within a 24 hour da over a week, the trying to do somthing are very limited and restricted, pain, medication, etc., they want to really know how you are affected as a individual day to day. Its something that Disabled people find very hard and very depressing to do but to be awarded your points you have to first be honest with yourself and admit how long it takes to get dressed, or if you stay in the same clothes to lunch time due to pain.

Also remember at your medical if you dont understand them then dont try and answer just for the sake of saying something!!, also I believe you are in your right to refuse any physical examination if you are in pain and and discomfort.
Best of wishes to you

Hi Stu
Sorry not to get back to you yesterday but I was flat out and not capable of doing anything.

To answer your question, yes, I got into the Support group without having to have a medical/assessment. In the ESA85A the registered nurse put as the main reason for this that I couldn't repeatedly mobilise/self propell a manual wheelchair 50 metres within reasonable timescale unaided by another person because of significant discomfort or exhaustion due to ME.

Wish you the best of luck with your ESA50, Stu
Cheers, Pen.

penthesilie wrote:

Hi Stubedo,
I've had ME since 1977, and when my carer filled in the form for me we took the reverse logic approach; instead of saying you can do something for say a grand total of five hours a day, say that you cannot do anything for 19 hours day. It's a way of getting the information into their minds that the majority of the day you're incapable of anything.
Best of luck, Pen.

Hi P,

I found your commemts really interesting and helpful as my friend has fibro,and can understand your logig. However, the trueth of the matter is that on most days my friend cannot do anything for 24 hours a day, and trust me she is definately not exadurating. She is really worried that she may not be believed.

Any advice would be graeyely appreciated, as she has just recieved form to fill out and as terrified that if called for medical, she will be classed as "lazy".

Thanks.
Radhika.