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The NHS has announced that it is scrapping the controversial Care Data scheme, which would have obliged GPs to pass on your personal medical data via Atos to the Health and Social Care Information Centre (HSCIC).

The plan had been to allow the HSCIC to sell your data to drug companies and other interested parties. The data collected would have included your date of birth, postcode, NHS number, gender, health conditions, referrals to specialists, smoking and drinking habits and your body mass index.

The scheme was scrapped, however, after two separate reports raised concerns about the lack of transparency about what would happen to data and the difficulty of opting out of the scheme.

In a statement, NHS England said:

“In light of Dame Fiona’s recommendations, NHS England has taken the decision to close the care.data programme. However, the government and the health and care system remain absolutely committed to realising the benefits of sharing information, as an essential part of improving outcomes for patients. Therefore this work will now be taken forward by the National Information Board, in close collaboration with the primary care community, in order to retain public confidence and to drive better care for patients.”

Hopes of selling patients, data has been postponed, it seems, rather than scrapped for good.

You can read the full story in the Guardian


#2 Jim Allison 2016-07-27 20:25
You can still give consent your Summary Care Record, it could save your life. See http://www.nhs.uk/NHSEngland/thenhs/records/healthrecords/Pages/overview.aspx
#1 Jim Allison 2016-07-27 20:18
Good to hear that Steve. However, members don't confuse this with your S[Sb]ummary Care Records which allow NHS staff to access your records. Thus, if you are away from home and take ill GP's, or hospitals in the UK will have basic details of any illness or disability.

It is possible to opt out of NHS Summary Care Record to staff apart from your GP or other medical professionals treating you simply by speaking to your GP surgery who will send you a form . However based on personal experience I'd advise against it as you will first be asked before accessing your records.

See http://www.nhs.uk/NHSEngland/thenhs/records/healthrecords/Pages/overview.aspx

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