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support group - rare disease

  • m
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12 years 6 months ago #89647 by m
support group - rare disease was created by m


I have been asked to attend a medical even though I have been in the support group for 3 and a half years.I was forced to retire early from my job due to my health probs.
I have to have blood infused every three weeks as I have no immunity. ( This helps me have a little protection against some infections)
consequently I was picking up too many infections from people in my workplace. My right lung is now not working due to constant infections over the years (bronchiectasis).
My doctor said I needed to retire in order have some kind of life!

The problem I have is that I cannot find a section in the ESA questionnare apart from the plasmapheris section - (which is not the same but is close) that I can use to justify not being able to work.
I could not even work in a shop or any place where there are people and infections and my own husband has to sleep in another room so I don't pick up 'germs'!

Can you help me determine how I can present this at all as my disease is very rare.
Thanks to any advice I may receive x

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12 years 6 months ago #89648 by slugsta
Replied by slugsta on topic Re:support group - rare disease
Have you had a look at our ESA guides? Do you think the exceptional circumstances might be appropriate?

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  • m
  • Topic Author
12 years 6 months ago #89649 by m
Replied by m on topic Re:support group - rare disease
I will have another look thanks Mrs H - do you know what page as I am not too familiar with it. x

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12 years 6 months ago #89655 by slugsta
Replied by slugsta on topic Re:support group - rare disease
Page 12 deals with WRAG and page 20 with the Support Group.

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  • m
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12 years 6 months ago - 12 years 6 months ago #89656 by m
Replied by m on topic Re:support group - rare disease
thanks again Mrs H
;)
Last edit: 12 years 6 months ago by slugsta.

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12 years 6 months ago #89661 by Crazydiamond
Replied by Crazydiamond on topic Re:support group - rare disease
m wrote:



I have been asked to attend a medical even though I have been in the support group for 3 and a half years.I was forced to retire early from my job due to my health probs.
I have to have blood infused every three weeks as I have no immunity. ( This helps me have a little protection against some infections)
consequently I was picking up too many infections from people in my workplace. My right lung is now not working due to constant infections over the years (bronchiectasis).
My doctor said I needed to retire in order have some kind of life!

The problem I have is that I cannot find a section in the ESA questionnare apart from the plasmapheris section - (which is not the same but is close) that I can use to justify not being able to work.
I could not even work in a shop or any place where there are people and infections and my own husband has to sleep in another room so I don't pick up 'germs'!

Can you help me determine how I can present this at all as my disease is very rare.
Thanks to any advice I may receive x


You could cite as mentioned earlier in the thread, Section 35(2)(a and b) of the Employment and Support Act 2008 as amended.

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