- Posts: 8
× Members
Undiagnosed ADHD & PIP
- Koo
- Topic Author
- Offline
Less More
1 year 2 months ago #282911 by Koo
Undiagnosed ADHD & PIP was created by Koo
Hi
I wonder if anyone has any advice for my query.
I’m helping a friend with a PIP reassessment. Their initial award was standard rate no mobility element despite his stating he needed help in this area - he was just relieved to get something and didn’t want to ask for a MR though fear of losing the whole lot and the stress attached to it.
Anyhow, two years down the line his support needs have increased. I strongly believe he has undiagnosed ADHD, the waiting lists to get a diagnosis are long so there’ll be no assessment any time soon even if he did request it. I mentioned my concern to the GP today when he got very agitated/cross and stormed out the room leaving me to discuss his problems (recent diagnosis if fibromyalgia and degenerative disc disease). The gp didn’t respond to my observation but I think he may have noted this on his PC. So, my question is when filling out the form can we say we think he has undiagnosed ADHD…he cannot go out alone and especially can’t travel on public transport or plan a journey, his anxiety and impatience can manifest as anger and he can become intimidating staring at people or making comments etc. He is diagnosed with depression but they stated in his last report he didn’t need any help in the mobility section despite us saying about his psychological distress, they just didn’t believe him and said he was fine on the phone and because if he got lost he stated he could call someone on his mobile for help he had no need to the mobility element.
Sorry for the long post! Hope the above makes sense.
Best wishes Tracy
I wonder if anyone has any advice for my query.
I’m helping a friend with a PIP reassessment. Their initial award was standard rate no mobility element despite his stating he needed help in this area - he was just relieved to get something and didn’t want to ask for a MR though fear of losing the whole lot and the stress attached to it.
Anyhow, two years down the line his support needs have increased. I strongly believe he has undiagnosed ADHD, the waiting lists to get a diagnosis are long so there’ll be no assessment any time soon even if he did request it. I mentioned my concern to the GP today when he got very agitated/cross and stormed out the room leaving me to discuss his problems (recent diagnosis if fibromyalgia and degenerative disc disease). The gp didn’t respond to my observation but I think he may have noted this on his PC. So, my question is when filling out the form can we say we think he has undiagnosed ADHD…he cannot go out alone and especially can’t travel on public transport or plan a journey, his anxiety and impatience can manifest as anger and he can become intimidating staring at people or making comments etc. He is diagnosed with depression but they stated in his last report he didn’t need any help in the mobility section despite us saying about his psychological distress, they just didn’t believe him and said he was fine on the phone and because if he got lost he stated he could call someone on his mobile for help he had no need to the mobility element.
Sorry for the long post! Hope the above makes sense.
Best wishes Tracy
Please Log in or Create an account to join the conversation.
- Chris
- Offline
Less More
- Posts: 931
1 year 2 months ago #282931 by Chris
Nothing on this board constitutes legal advice - always consult a professional about specific problems
Replied by Chris on topic Undiagnosed ADHD & PIP
Hi Koo,
I can confirm that you're correct in the length of waiting time for an ADHD assessment. I myself have been on the waiting list for 3 years, and still no further forward with an appt with the neurodevelopmental services, who deal with things like ADHD, Autistic Spectrum Disorder etc.
Me personally, as the PIP assessment is based on how things affect you on a day to day basis, rather than what you've been diagnosed with, I would personally go for it again, however it's down to yourself for what you decide, and it depends on the way things are worded, as to whether an award goes in your favour or not. I've learnt this myself on a couple of occassions after having to go to the MR stage, and the tribunal stage. The guides on here are brilliant for that.
I am also new to moderating, so I'm hoping I've been able to supply you with some helpful information.
Regards, Chris.
I can confirm that you're correct in the length of waiting time for an ADHD assessment. I myself have been on the waiting list for 3 years, and still no further forward with an appt with the neurodevelopmental services, who deal with things like ADHD, Autistic Spectrum Disorder etc.
Me personally, as the PIP assessment is based on how things affect you on a day to day basis, rather than what you've been diagnosed with, I would personally go for it again, however it's down to yourself for what you decide, and it depends on the way things are worded, as to whether an award goes in your favour or not. I've learnt this myself on a couple of occassions after having to go to the MR stage, and the tribunal stage. The guides on here are brilliant for that.
I am also new to moderating, so I'm hoping I've been able to supply you with some helpful information.
Regards, Chris.
Nothing on this board constitutes legal advice - always consult a professional about specific problems
Please Log in or Create an account to join the conversation.
- BIS
- Offline
Less More
- Posts: 8401
1 year 2 months ago #282932 by BIS
Nothing on this board constitutes legal advice - always consult a professional about specific problems
Replied by BIS on topic Undiagnosed ADHD & PIP
Hi Koo
In addition to what Chris has said, I would add the following.
The DWP are not particularly keen on people self-diagnosing. I'm not saying that your friend doesn't have ADHD - it's just that you don't know that he has, and the symptoms he exhibited could be because of his already-diagnosed depression or it could be from something else (OCD, Autism etc). If you have medical training - you can offer a professional opinion.
I think you could write a separate letter of support saying what you know about your friend and the impact it has on his life and care, keeping in mind the specific PIP criteria. You can also use the example of today's visit to the GP to emphasise his mental health difficulties that clearly impact on his mobility and that you were left to explain his difficulties. I don't think there's any problem in saying that you raised the possibility of ADHD, but as your friend was no longer in the room, that will be raised on another occasion. Be careful how you word things because if you say he stormed out of the GPs room, I can immediately see them thinking the impact of his fibromyalgia and degenerative disc disease is not that bad! Yes, I know - that sounds completely unreasonable, but the DWP isn't always reasonable, and the person reading the form may not have any knowledge of either condition or his depression and anxiety. If anyone else has witnessed your friend's outbursts then and are willing to write a letter, that could also be useful.
I think you should say on your friend's form that his condition has been ongoing since when he first filled out the form, and he wasn't well enough to put in for a Mandatory Reconsideration. Then, reiterate the mobility problems he has due to his mental health. I would also say that, like many people with depression and anxiety, the pain and distress he experiences is hidden. Saying he sounded fine on the phone is a common thing for assessors to say. It's just a ridiculous cop-out. There is no medical definition for what someone is supposed to sound like when they are depressed or suffering from anxiety.
If you are helping your friend with the form, I think it is always better to use 'he' rather than "I", because if it sounds like he completed the form unaided, they will always assume he is more capable than he may be.
Don't ever apologise for the length of your post - they are just as long as you need them to be.
BIS
In addition to what Chris has said, I would add the following.
The DWP are not particularly keen on people self-diagnosing. I'm not saying that your friend doesn't have ADHD - it's just that you don't know that he has, and the symptoms he exhibited could be because of his already-diagnosed depression or it could be from something else (OCD, Autism etc). If you have medical training - you can offer a professional opinion.
I think you could write a separate letter of support saying what you know about your friend and the impact it has on his life and care, keeping in mind the specific PIP criteria. You can also use the example of today's visit to the GP to emphasise his mental health difficulties that clearly impact on his mobility and that you were left to explain his difficulties. I don't think there's any problem in saying that you raised the possibility of ADHD, but as your friend was no longer in the room, that will be raised on another occasion. Be careful how you word things because if you say he stormed out of the GPs room, I can immediately see them thinking the impact of his fibromyalgia and degenerative disc disease is not that bad! Yes, I know - that sounds completely unreasonable, but the DWP isn't always reasonable, and the person reading the form may not have any knowledge of either condition or his depression and anxiety. If anyone else has witnessed your friend's outbursts then and are willing to write a letter, that could also be useful.
I think you should say on your friend's form that his condition has been ongoing since when he first filled out the form, and he wasn't well enough to put in for a Mandatory Reconsideration. Then, reiterate the mobility problems he has due to his mental health. I would also say that, like many people with depression and anxiety, the pain and distress he experiences is hidden. Saying he sounded fine on the phone is a common thing for assessors to say. It's just a ridiculous cop-out. There is no medical definition for what someone is supposed to sound like when they are depressed or suffering from anxiety.
If you are helping your friend with the form, I think it is always better to use 'he' rather than "I", because if it sounds like he completed the form unaided, they will always assume he is more capable than he may be.
Don't ever apologise for the length of your post - they are just as long as you need them to be.
BIS
Nothing on this board constitutes legal advice - always consult a professional about specific problems
Please Log in or Create an account to join the conversation.
- Koo
- Topic Author
- Offline
Less More
- Posts: 8
1 year 2 months ago #282987 by Koo
Replied by Koo on topic Undiagnosed ADHD & PIP
Thank you so much for your replies - they’re very helpful.
The following user(s) said Thank You: Chris
Please Log in or Create an account to join the conversation.
- Anxious Anonymous
- Offline
Less More
- Posts: 158
1 year 2 months ago #283398 by Anxious Anonymous
Replied by Anxious Anonymous on topic Undiagnosed ADHD & PIP
Hi BIS,
You should try telling that to my GP.
My psychologist said I sounded 'flat' and my psychiatrist yesterday could see and hear the depression and the anxiety, though she said what you said. You can't tell if someone is depressed or anxious.
But today, my GP said: "oh, you're sound better. You sound less pressured in speech and calmer."
Unbelievable, really.
You should try telling that to my GP.
My psychologist said I sounded 'flat' and my psychiatrist yesterday could see and hear the depression and the anxiety, though she said what you said. You can't tell if someone is depressed or anxious.
But today, my GP said: "oh, you're sound better. You sound less pressured in speech and calmer."
Unbelievable, really.
The following user(s) said Thank You: denby
Please Log in or Create an account to join the conversation.
Moderators: Gordon, Gary, BIS, Catherine, Wendy, Kelly, greekqueen, peter, Katherine, Super User, Chris, David