Whar to do about poot quality clinical letters?

I was recently shocked by the report from my recent ESA assessment, Surprisingly, it was pretty well-observed, but contained a lot of misinformion anyway, eg that I had missed three neutology appointments (I have only missed one , to my knowlege, but since that was on account of reminder sent to defunct phone, not the updated number they had been given- who knows?) also said that the information i verbally gave them about my illness was speculation on my part, to be confirmed or disconfirmed by futher investigation...I could say more, but you see where this is heading? I was lucky to given full award, but will surely not be so lucky next time.

Uon visiting my GP, it seems that all tis misinformation came from her, on account of my useless clinical letters from Neurology. which , as she herself had complained, have generally beside the point, choosing to focus on issues that are largely irrelevant to my disabilties, (but that might , theoretically be correctable by surgery) . They mention very few of my actual symptoms, only make one (very hard-to-spo)t mention of the underlying cause, no mention of prognosis. Indeed I could not find that mention on my GP's PC when she asked me to . though I do know for sure it is there, somewhere, not that it is much use, really, as it far too much of an aside, and it's relevance to my health is not discussed at all.

According to what my neurologist said during appointments, I have a progressive,m congenital disorder in their opinion, which cannot be confirmed by tests, because they lack the resourses and the queuu is extremely long . Besides which, all they can offer, is palliative treatment in the form of anti-seizure medication . which , they said would be offered on a lifelong basis.

I have ceased ed to take any meds because they made me extremely ill. Perhaps I should have carried on collecting the he prescriptions? because the DSS now does not even believe that I have seizures, and is awauitng clinical confirmation of the same. Even though I had a seizure in their office, which was accurrately described by the doctor. it was not called a seizure.

It is two years since that last Neurolgy appointment that I missed. I have been patiently waiting for another to be sent, as they had promised would happen . it now seems I might wait forever! They had already gone as far down the diagnostic road as they were able to, as they made very klear. The main reason I wanted to talk to them at all, was to ask for clearer, more relevant info to be put into writing, as i could see the old letters causing confusion, especially condidering that my case was under investigation for about 9 years on-and-off, and the associated letters often contradict easch other. DSS have whole the lot, unfortunately! Enormours progress has ben made in recent years, but that progress is far from evident.

To make matters worse, I shalll soon be constrained to move house (subject of another questiion) whether I find suitable alternative accomodation or not. So I don't know where I will be living, who my nexct GP will be etc. might even have to change my condsultant. So I need to deal with this swiftly.

I think the fact that i was galvanised by the ESA letter has made my GP suspicious! But I have long gioven up the notion that doctors can provide amy real help. I rarely see her (nor anybody else) at all, because taxi fares are costly! and i can't walk any realistic distance anymore. But that, of course, is not mentioned on the records! almost nothing is.

How can I get this sorted out swiftly? if at all?

thanks, sorry, i missed rthis reply. ( i don'tt think i got a notification or anything)
yes, am afraid that info available at that time will be same as info available at this time, given how slowly the NHS gears turn. I called the DWP and told them that much of the info was wrong, and said i would send a letter with corrected ibnfo, which they are now expecting.
I panicked when I went to see my GP and realised she had ptovided the misinformation. also my consultant has mow removed me from books due to what appears to be a clerical error, involving appointments made then cancvelled again , without even norifying me, so it now inded looks , from the records, as if i failed to turn up
This medical mess will alnost cerainly to take half-a-year at least to sort out, and my GP is leary of re-referring me. I don't know WTF to say tpo DWP , vcos I don't have a professional to back me up, ATM.