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Sick of all the assessments, constant worry and...
- paulcornwall
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3 years 4 months ago #265458 by paulcornwall
Sick of all the assessments, constant worry and... was created by paulcornwall
I'm sick to the teeth with assessments and forms. I'm constantly worried of the uncertainty and insecurity for my families finances and health.
Unfortunately for us, my daughter and I suffer from a inherited bone condition which is both extremely rare and difficult to treat. My daughter also suffers from ASD. On top of this I suffer from agoraphobia (fear of leaving the house), PTSD etc etc.
I've only recently been awarded PIP and my daughter DLA. My wife is the main carer for my daughter and receives CA.
Since transferring to UC a few weeks back its been nothing but trouble and worry. After having numerous assessment already I now need to go through a WCA assessment and complete a capacity for work questionnaire.
My daughter requires very intensive care and we both are needed to care for her. I do as much as I can, although it's mostly reassurance and cuddles. I can find it extremely difficult to leave the house and remain home 90% of the time. The other 10% I remain in the safe environment of the car where I have some control over the environment around me.
I have been thinking about this and considering becoming my daughters carer and my wife my carer. All sounds very 'dodgy', but would the reassurance and non physical help allow me to become her carer. I'm just trying to find a way out of this constant cycle of judgement and point scoring.
I would be interested to hear what both the experts hear and other members think. I understand this may bring my own PIP claim under scrutiny but I am unable to attend possible interviews and join in with groups. Thank you.
Unfortunately for us, my daughter and I suffer from a inherited bone condition which is both extremely rare and difficult to treat. My daughter also suffers from ASD. On top of this I suffer from agoraphobia (fear of leaving the house), PTSD etc etc.
I've only recently been awarded PIP and my daughter DLA. My wife is the main carer for my daughter and receives CA.
Since transferring to UC a few weeks back its been nothing but trouble and worry. After having numerous assessment already I now need to go through a WCA assessment and complete a capacity for work questionnaire.
My daughter requires very intensive care and we both are needed to care for her. I do as much as I can, although it's mostly reassurance and cuddles. I can find it extremely difficult to leave the house and remain home 90% of the time. The other 10% I remain in the safe environment of the car where I have some control over the environment around me.
I have been thinking about this and considering becoming my daughters carer and my wife my carer. All sounds very 'dodgy', but would the reassurance and non physical help allow me to become her carer. I'm just trying to find a way out of this constant cycle of judgement and point scoring.
I would be interested to hear what both the experts hear and other members think. I understand this may bring my own PIP claim under scrutiny but I am unable to attend possible interviews and join in with groups. Thank you.
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- LL26
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3 years 4 months ago #265462 by LL26
Nothing on this board constitutes legal advice - always consult a professional about specific problems
Replied by LL26 on topic Sick of all the assessments, constant worry and...
Hi Paul,
I'm sorry to hear that things are so difficult at home.
I have just answered a post from a lady called Judy who had a similar query. She told us that she was 'downgraded' for being a carer to her autistic daughter. This does seem to show that it is very likely that DWP will use being a carer as a reason not to award PIP. (Frankly DWP will use any excuse!)
There is nothing legally yo prevent someone getting PIP and carer's allowance, but you need to be able to prove you can give 35 hours of care (including supervision, reassurance, watchful eye, prompting as well as physical help,) even though you yourself have disabilities. It's a hurdle, but not an insurmountable one.
I appreciate that your potential claim for Carer’s Allowance may be driven through a need to increase finances, however, maybe there are other options you could explore?
As presumably your daughter has DLA or PIP then someone else could look after your daughter fir 35hrs a week, and they could claim Carer’s Allowance. This could provide valuable income for a person on low income.
As your daughter is severely disabled, she might be eligible for a care package from the local council. If you contact your council they would arrange an assessment, usually done by an OT, and if your daughter was eligible for care then she would be allocated the appropriate number of hours, which could be used to provide carer/s. (I'm not sure whether this might be able to be used to top up someone claiming Carer’s Allowance.) In addition, if there were any suitable disability gadgets the OT could recommend these and you may be eligible to get these free, or get money towards their cost.
I hope this helps.
Good luck.
LL26
I'm sorry to hear that things are so difficult at home.
I have just answered a post from a lady called Judy who had a similar query. She told us that she was 'downgraded' for being a carer to her autistic daughter. This does seem to show that it is very likely that DWP will use being a carer as a reason not to award PIP. (Frankly DWP will use any excuse!)
There is nothing legally yo prevent someone getting PIP and carer's allowance, but you need to be able to prove you can give 35 hours of care (including supervision, reassurance, watchful eye, prompting as well as physical help,) even though you yourself have disabilities. It's a hurdle, but not an insurmountable one.
I appreciate that your potential claim for Carer’s Allowance may be driven through a need to increase finances, however, maybe there are other options you could explore?
As presumably your daughter has DLA or PIP then someone else could look after your daughter fir 35hrs a week, and they could claim Carer’s Allowance. This could provide valuable income for a person on low income.
As your daughter is severely disabled, she might be eligible for a care package from the local council. If you contact your council they would arrange an assessment, usually done by an OT, and if your daughter was eligible for care then she would be allocated the appropriate number of hours, which could be used to provide carer/s. (I'm not sure whether this might be able to be used to top up someone claiming Carer’s Allowance.) In addition, if there were any suitable disability gadgets the OT could recommend these and you may be eligible to get these free, or get money towards their cost.
I hope this helps.
Good luck.
LL26
Nothing on this board constitutes legal advice - always consult a professional about specific problems
The following user(s) said Thank You: Judy, paulcornwall
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- paulcornwall
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3 years 4 months ago #265507 by paulcornwall
Replied by paulcornwall on topic Sick of all the assessments, constant worry and...
@LL26 Many thanks for the reply. The rationale about becoming my daughters carer while being on PIP myself is definitely not a financial one. But one to stop the constant assessments transfering to universal credit. I really do not see why the DWP cannot use the information from my recent PIP application to assess our universal credit claim. Seems, a lot of unnecessary stress and quite frankly appalling, placing individuals with already fragile mental health to their limits. I really do feel like throwing in the towel. We are treated like low life parasites who are allowed to be tortured in order to survive. How am I expected to attend work based interviews or group work when I find it a challenge to leave the four walls of my home. I feel like a criminal being interrogated for a crime, not an unfortunate individual who's trying to survive and take care of his family. Is this the modern day equivalent to 'ethnic cleansing'?.
Sorry for the moan, but feel so let down by my own country, despite paying ten of thousands in taxes working for the NHS and beyond. I'm so sad and depressed I just feel like burying my head in the sand and just allow them to execute me.
Sorry for the moan, but feel so let down by my own country, despite paying ten of thousands in taxes working for the NHS and beyond. I'm so sad and depressed I just feel like burying my head in the sand and just allow them to execute me.
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- Catherine
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3 years 4 months ago #265509 by Catherine
Nothing on this board constitutes legal advice - always consult a professional about specific problems
Replied by Catherine on topic Sick of all the assessments, constant worry and...
Hello Paul,
I am really sorry to hear about how you are feeling - but please fight on. Even if you don’t feel important at the moment, remember how pivotal you are to your wife and daughter. Nobody else can give them the emotional support which you offer them. Rather than burying your head you should stand proud for being the loving husband and father you are.
I suspect that your question about why the DWP does not use your PIP form to assess your capability for work is a rhetorical one, but the answer is that PIP looks the difficulties you have with everyday life and moving around, however the Capability for Work assessment looks at the difficulties you may have in a work environment. For some people there is little difference, but for others there is a big difference.
We do have a guide for Capability forms which you may find useful. UC & ESA resources
Given how the whole process is making your feel, combined with the mental health issues you describe I wonder if you would wish to consider making your wife your appointee. This means that she would become responsible for claiming your benefits and would be able to represent you at an assessment. I wrote quite a long post a while ago about this which you might like to read.
www.benefitsandwork.co.uk/forum1/10-dla-...on-being-a-appointee
If that is not the right route for you, you might wish to consider asking your GP to write a letter saying that you are unable to attend a face to face or telephone assessment since they would cause you overwhelming psychological distress and requesting that you are given a paper assessment. The DWP do not always comply with such requests, but you might think it is worth a try.
Please remember that we are here for you through this process.
Catherine
I am really sorry to hear about how you are feeling - but please fight on. Even if you don’t feel important at the moment, remember how pivotal you are to your wife and daughter. Nobody else can give them the emotional support which you offer them. Rather than burying your head you should stand proud for being the loving husband and father you are.
I suspect that your question about why the DWP does not use your PIP form to assess your capability for work is a rhetorical one, but the answer is that PIP looks the difficulties you have with everyday life and moving around, however the Capability for Work assessment looks at the difficulties you may have in a work environment. For some people there is little difference, but for others there is a big difference.
We do have a guide for Capability forms which you may find useful. UC & ESA resources
Given how the whole process is making your feel, combined with the mental health issues you describe I wonder if you would wish to consider making your wife your appointee. This means that she would become responsible for claiming your benefits and would be able to represent you at an assessment. I wrote quite a long post a while ago about this which you might like to read.
www.benefitsandwork.co.uk/forum1/10-dla-...on-being-a-appointee
If that is not the right route for you, you might wish to consider asking your GP to write a letter saying that you are unable to attend a face to face or telephone assessment since they would cause you overwhelming psychological distress and requesting that you are given a paper assessment. The DWP do not always comply with such requests, but you might think it is worth a try.
Please remember that we are here for you through this process.
Catherine
Nothing on this board constitutes legal advice - always consult a professional about specific problems
The following user(s) said Thank You: paulcornwall
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