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pip planning journey/ when able to go out/mix with people / theatre
- Bunny1
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1 year 11 months ago #276537 by Bunny1
pip planning journey/ when able to go out/mix with people / theatre was created by Bunny1
RE : planning journey ability to go out and mix with people. been able to go to local theatre a few times since filling in review form. will it affect claim?
Hi there
I am currently on pip. i filled out my pip review form july 2021. due to ptsd anxiety disorder depression agoraphobia panic attacks etc & it causes me chronic exhaustion i wrote i usually only go out 1 day a week every tuesday for food shop at local london village 2 bus stops , then come home , & once a month on that tuesday i go to local town 6 bus stops or taxi other way to get monthly prescriptions from chemist where i can go to local cheap shops when needed only that r not in village -A -due to the great anxiety i often hv panick attacks when out & great exhaustion i feel going out and afterwards , ( i have to rest and sleep 11 or 12 hours 3 days afterwards then just sit in nightie.) and b- because i can find it difficult to mix with people and i do not have anyone to ,prompt encourage or help me/go with me- which ideally i really need.. i am only able to go to places i already know well. & even then i cannot travel long distances. eg i friends in wales i cant go see etc. & the most i am able to go out is 2 days a week & only for local dentist gp appointment needed or i stay home. when i filled out the form it was end of covid. since i filled out form- i have managed to push myself to go to local theatres a few times , as i used to be a professional actress and theatre is like my home & is my passion. & ive tried hard to do something that improves my quality of life and depression & give me some emotional & intellectual nourishment as i do not hv a support system.. however i cannot do this every week , when i go it is very difficult i have had panic attacks and i have had to cancel going sometimes despite having ticket as i just could not face it. i only go to theatres i know well & went to years ago- i have lived and worked in london for many years before i became too ill to work os there are some areas i know well. i am aware there is a law that says if you cant do it 50% of the time it should be considered you cant do it all the time, my question is simply - will this effect my claim? will they say because ive been able to manage to go to the theatre a few times, will they say im fine & my mental health does not affect me when im honestly far from it?? i was with the mental health team at the time, of filling in form and they had prompted and supported me in going to a metal health support group a couple times , with support workers there on my tuesday food shop out , so they know i have been able to attend things albeit not often or on a regular basis, and again i knew the support group area well as it was opposite st annes hospital where ive attended the mental health team many times in the past. but i worry they will still say i am fine because i have made the effort to go to the theatre a few times in last year. even tho i have to sleep and rest for days afterwards it takes so much out of me. and it is very difficult everytime ive gone. any advice much appreciated. i got a text from atos saying my phone assessment will be soon. i have asked for it to be recorded. so i am very anxious and scared. i am on 3 different medications for my mental health , and 3 for my physical health conditions. usually 6 days a week i am unable to get dressed go out or have a bath. etc. any advice /knowledge much appreciated. thanks.
many thanks.
Hi there
I am currently on pip. i filled out my pip review form july 2021. due to ptsd anxiety disorder depression agoraphobia panic attacks etc & it causes me chronic exhaustion i wrote i usually only go out 1 day a week every tuesday for food shop at local london village 2 bus stops , then come home , & once a month on that tuesday i go to local town 6 bus stops or taxi other way to get monthly prescriptions from chemist where i can go to local cheap shops when needed only that r not in village -A -due to the great anxiety i often hv panick attacks when out & great exhaustion i feel going out and afterwards , ( i have to rest and sleep 11 or 12 hours 3 days afterwards then just sit in nightie.) and b- because i can find it difficult to mix with people and i do not have anyone to ,prompt encourage or help me/go with me- which ideally i really need.. i am only able to go to places i already know well. & even then i cannot travel long distances. eg i friends in wales i cant go see etc. & the most i am able to go out is 2 days a week & only for local dentist gp appointment needed or i stay home. when i filled out the form it was end of covid. since i filled out form- i have managed to push myself to go to local theatres a few times , as i used to be a professional actress and theatre is like my home & is my passion. & ive tried hard to do something that improves my quality of life and depression & give me some emotional & intellectual nourishment as i do not hv a support system.. however i cannot do this every week , when i go it is very difficult i have had panic attacks and i have had to cancel going sometimes despite having ticket as i just could not face it. i only go to theatres i know well & went to years ago- i have lived and worked in london for many years before i became too ill to work os there are some areas i know well. i am aware there is a law that says if you cant do it 50% of the time it should be considered you cant do it all the time, my question is simply - will this effect my claim? will they say because ive been able to manage to go to the theatre a few times, will they say im fine & my mental health does not affect me when im honestly far from it?? i was with the mental health team at the time, of filling in form and they had prompted and supported me in going to a metal health support group a couple times , with support workers there on my tuesday food shop out , so they know i have been able to attend things albeit not often or on a regular basis, and again i knew the support group area well as it was opposite st annes hospital where ive attended the mental health team many times in the past. but i worry they will still say i am fine because i have made the effort to go to the theatre a few times in last year. even tho i have to sleep and rest for days afterwards it takes so much out of me. and it is very difficult everytime ive gone. any advice much appreciated. i got a text from atos saying my phone assessment will be soon. i have asked for it to be recorded. so i am very anxious and scared. i am on 3 different medications for my mental health , and 3 for my physical health conditions. usually 6 days a week i am unable to get dressed go out or have a bath. etc. any advice /knowledge much appreciated. thanks.
many thanks.
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- Gary
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1 year 11 months ago #276539 by Gary
Nothing on this board constitutes legal advice - always consult a professional about specific problems
Replied by Gary on topic pip planning journey/ when able to go out/mix with people / theatre
Hi Bunny1
Thank you for your post
The Going Out activity looks at three things.
Planning a route - this is primarily a cognitive or sensory (e.g. blindness) activity. You are being asked about the problems you would have with working out how to get from one place to another, you do not need to be able to follow the route that you are planning.
Undertaking a Journey - this is to do with mental health issues such as agoraphobia and social anxiety and is concerned with you leaving the house to go somewhere, they will be interested in the things that stop you doing this. You need to show that you would suffer "overwhelming psychological distress" to meet the criteria.
Following a route - This activity about the problems you would have navigating a route. So are there any problems; cognitive, sensory or mental health issues that would prevent you from doing this? This is different from undertaking a journey, in fact, if you cannot undertake a journey then you will not score points for following one and vice versa.
This is what the DWP guidance say about Mixing with Other People
This activity considers a claimant’s ability to engage with other people, which means to interact face-to-face in a contextually and socially appropriate manner, understand body language and establish relationships.
Activities 7 and 9 are not mutually exclusive. If claimants require support to engage with others under activity 9, as well as communication support under activity 7, then their needs must be considered under both activities.
Notes:
An inability to engage face-to-face must be due to the impact of impairment and not simply a matter of preference by the claimant.
Social support means support from another person trained or experienced in assisting people to engage in social situations, or someone directly experienced in supporting the claimant themselves (for example a family member or carer), who can compensate for limited ability to understand and respond to body language, other social cues and assist social integration. Most claimants with sensory impairments will be able to fully engage with others independently, however they may score on both activities 7 and 9 if, for example anxiety arising from their impairment means they reasonably require social support to engage with people generally.
Behaviour which would result in a substantial risk of harm to the claimant or another person must be as a result of an underlying health condition and the claimant’s inability to control their behaviour.
When considering whether claimants can engage with others, consideration should be given to whether they can engage with people generally, not just those people they know well.
If an individual cannot reliably complete an activity in the way described in a descriptor then they should be considered unable to complete it at that level and an alternative descriptor selected.
I regards to your telephone assessment, if you have a look at our PIP guide at the link below you will see that there are a number pages which include advice on telephone assessments. Yes, a lot of the questions are those that would have been asked if you had a face to face assessment. benefitsandwork.co.uk/guides-for-claimants/pip
- Write yourself a bullet point list of any particular points you want to get over, so you have it by you during the assessment, tick them as you cover them during the assessment.
- have paper and pens to hand to make any notes such as the assessors name, date, time
- make sure you are seated in a comfortable chair, you are going to be there a while and at table to make notes
- if you can't hear or understand what is being asked then ask them to repeat the question
- don’t let the assessor rush you and get you flustered.
- don't forget to have a glass of water if needed so you don't get a dry throat and lose your voice!
Don't forget to contact DWP 48 hours after the assessment and ask for a copy of the assessors report called PA4.
Gary
Thank you for your post
The Going Out activity looks at three things.
Planning a route - this is primarily a cognitive or sensory (e.g. blindness) activity. You are being asked about the problems you would have with working out how to get from one place to another, you do not need to be able to follow the route that you are planning.
Undertaking a Journey - this is to do with mental health issues such as agoraphobia and social anxiety and is concerned with you leaving the house to go somewhere, they will be interested in the things that stop you doing this. You need to show that you would suffer "overwhelming psychological distress" to meet the criteria.
Following a route - This activity about the problems you would have navigating a route. So are there any problems; cognitive, sensory or mental health issues that would prevent you from doing this? This is different from undertaking a journey, in fact, if you cannot undertake a journey then you will not score points for following one and vice versa.
This is what the DWP guidance say about Mixing with Other People
This activity considers a claimant’s ability to engage with other people, which means to interact face-to-face in a contextually and socially appropriate manner, understand body language and establish relationships.
Activities 7 and 9 are not mutually exclusive. If claimants require support to engage with others under activity 9, as well as communication support under activity 7, then their needs must be considered under both activities.
Notes:
An inability to engage face-to-face must be due to the impact of impairment and not simply a matter of preference by the claimant.
Social support means support from another person trained or experienced in assisting people to engage in social situations, or someone directly experienced in supporting the claimant themselves (for example a family member or carer), who can compensate for limited ability to understand and respond to body language, other social cues and assist social integration. Most claimants with sensory impairments will be able to fully engage with others independently, however they may score on both activities 7 and 9 if, for example anxiety arising from their impairment means they reasonably require social support to engage with people generally.
Behaviour which would result in a substantial risk of harm to the claimant or another person must be as a result of an underlying health condition and the claimant’s inability to control their behaviour.
When considering whether claimants can engage with others, consideration should be given to whether they can engage with people generally, not just those people they know well.
If an individual cannot reliably complete an activity in the way described in a descriptor then they should be considered unable to complete it at that level and an alternative descriptor selected.
I regards to your telephone assessment, if you have a look at our PIP guide at the link below you will see that there are a number pages which include advice on telephone assessments. Yes, a lot of the questions are those that would have been asked if you had a face to face assessment. benefitsandwork.co.uk/guides-for-claimants/pip
- Write yourself a bullet point list of any particular points you want to get over, so you have it by you during the assessment, tick them as you cover them during the assessment.
- have paper and pens to hand to make any notes such as the assessors name, date, time
- make sure you are seated in a comfortable chair, you are going to be there a while and at table to make notes
- if you can't hear or understand what is being asked then ask them to repeat the question
- don’t let the assessor rush you and get you flustered.
- don't forget to have a glass of water if needed so you don't get a dry throat and lose your voice!
Don't forget to contact DWP 48 hours after the assessment and ask for a copy of the assessors report called PA4.
Gary
Nothing on this board constitutes legal advice - always consult a professional about specific problems
The following user(s) said Thank You: anees292
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- Bunny1
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1 year 11 months ago #276590 by Bunny1
Replied by Bunny1 on topic pip planning journey/ when able to go out/mix with people / theatre
thanks so much for this.
A- ironically- because of my extreme anxiety and depression at mo, & the fact my meds affect my cognitive functions i find it impossible to take all the details of this/these descriptor in./understand them.. despite the fact i worked at victim support as the rape and domestic violence coordinator/ support worker counsellor many years where i had to take in very complex information everyday before to got to ill to work. now i can only read complex stuff for a short time before im too exhausted to do anything more or take anything in. and then i can forget it! if only i had someone to support me at home with understanding the complex nature of every descriptor but i dont. if i did they could write a supporting letter about my inability to do most things most days so its a double whammy. i will make notes best i can a bit at a time..on each thing .
B - most importantly how does the 50% rule count on these descriptors? as said- i can go out- have to as im alone once a week for food shop etc - but the most i can go out in one week is 2 days ever for gp dentist and occasional theatre when up to it. -and a usual week is just one day a week is as its so difficult overwhelming & exhausting when i do go out i have to rest sleep & recuperate and cant face anymore. so how does the50 % law work in these descriptors? last time i applied for pip they knew i was able to go out once or twice a week only and i was awarded my pip on my MR.
c_ should i point out- is it important that the medications i am on for my mental health affect my cognitive abilities- eg quetiapine is notorious for giving you 'fuzzy head' 'brain fog' so i dont take it during the day just evenings and at night- and it still has the hang over effect of head fog when im up next day /afternoon (as im nocturnal.) as does my ptsd symptoms especially on bad days when i am getting flashbacks etc. should i make sure i tell the assessor about this during assessment about meds ptsd and how it affects my cognition? ability to think straight take in information? and have accidents at home etc?
many thanks for your help and time and for info link re tel assessment. btw they SAID it would be telephone but can they change that to video call when i get actual appointment text ?
thanks so much for help . it is much appreciated
A- ironically- because of my extreme anxiety and depression at mo, & the fact my meds affect my cognitive functions i find it impossible to take all the details of this/these descriptor in./understand them.. despite the fact i worked at victim support as the rape and domestic violence coordinator/ support worker counsellor many years where i had to take in very complex information everyday before to got to ill to work. now i can only read complex stuff for a short time before im too exhausted to do anything more or take anything in. and then i can forget it! if only i had someone to support me at home with understanding the complex nature of every descriptor but i dont. if i did they could write a supporting letter about my inability to do most things most days so its a double whammy. i will make notes best i can a bit at a time..on each thing .
B - most importantly how does the 50% rule count on these descriptors? as said- i can go out- have to as im alone once a week for food shop etc - but the most i can go out in one week is 2 days ever for gp dentist and occasional theatre when up to it. -and a usual week is just one day a week is as its so difficult overwhelming & exhausting when i do go out i have to rest sleep & recuperate and cant face anymore. so how does the50 % law work in these descriptors? last time i applied for pip they knew i was able to go out once or twice a week only and i was awarded my pip on my MR.
c_ should i point out- is it important that the medications i am on for my mental health affect my cognitive abilities- eg quetiapine is notorious for giving you 'fuzzy head' 'brain fog' so i dont take it during the day just evenings and at night- and it still has the hang over effect of head fog when im up next day /afternoon (as im nocturnal.) as does my ptsd symptoms especially on bad days when i am getting flashbacks etc. should i make sure i tell the assessor about this during assessment about meds ptsd and how it affects my cognition? ability to think straight take in information? and have accidents at home etc?
many thanks for your help and time and for info link re tel assessment. btw they SAID it would be telephone but can they change that to video call when i get actual appointment text ?
thanks so much for help . it is much appreciated
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- Gary
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1 year 11 months ago #276595 by Gary
Nothing on this board constitutes legal advice - always consult a professional about specific problems
Replied by Gary on topic pip planning journey/ when able to go out/mix with people / theatre
Hi Bunny1
You need to tell the assessor everything as they do not know you, I tell clients that they have to paint a picture in words about how they feel on a day to day basis, if you are on medication which have side effects, then describe the effects, if you were on medication and can no longer take the medication due to the side effects, describe the side effects.
I was speaking to a claimant today who has COPD, she was turned down, I was reading her PA4 report which stated she has 4 good days and 3 bad days a week, I asked her how she felt on a good day compared to a bad day, it turned out that on a good day she was bad and struggled to do anything, on a bad day she could not do anything, so be careful with the language you use.
All descriptor tasks have to be done safely, in reasonable time, to acceptable standard and repeatedly. If you can't achieve all four of these you legally can not do the task and should score points at the appropriate level to your disability.
Whilst I am all too aware that many assessments do not reflect the severity of disability and use tenuous analogy to suggest the activities can be done, I wonder if you haven't properly explained your disability in accordance with the above criteria (from Regulation 4(2A) PIP regulations 2013. (If you don't explain properly, this will just create more justification for a negative report from the Assessor!)
Don't worry, many claimants don't know about reg 4, and the Assessors and decision makers ignore it!
Let me explain reg 4 in more detail...
Safety - can you complete the activity without a risk of substantial harm to you or another. Even if the likelihood of harm isn't often, it doesn't matter. Think epilepsy- fits are seldom, but risk when eg using bath or cooking is very great if you have a fit at this time. But safety refers to all activities so eg mobility if there is a risk of a fall.
Reasonable time - is no more than twice the time of non disabled person. So if the 'normal time' is 10 minutes, but your disability means it takes 30 mins you fail the reasonable time test and then can't do that activity and should get points.
Acceptable standard - this isn't defined in the regulations but is the standard you would normally expect. So under descriptor 1 can you cook etc - if you always burn food and ruin pans, even though you can peel chop vegetables. This would indicate assistance or prompting is required and hence you should get the points that are relevant to your disability.
Pain must also be taken into account. Whilst tasks don't have to be pain free, high levels of pain will suggest non acceptable standard. Specifically for mobility 2, any walking done with severe discomfort must be discounted.
This means if you have severe discomfort at the start of any walking your PIP ability is actually zero even though you may actually be able to walk say 50m! You said your feet scream pain and this suggests that your PIP ability ie your 'legal' ability not absolute ability is very little and hence you fall within the 12 points category.
Even if you can walk for a few metres without pain consider why you need to stop, breathlessness, fatigue etc all fall within 'severe discomfort' - so think about this too.
If your stop is a longer one, then it is possible you will fail to be in a reasonable time.
Final criteria - repetition - you need to be able to do each activity throughout the day meeting the other 3 criteria as often as reasonably required. Each activity will have different repetition rates. Cooking might be 3 or 4 times per day. Toilet needs could be 8 times per day but maybe 20+ if you have incontinence. Communication is 24/7.
Maybe mobility is 200m 4 or 5 times per day. Eg walk kids to school, rest come back. Walk to post box. Later realise need to go to bank. Walk to friends house. Etc None of the above would be unreasonable across the day.
Remember, even though it sounds implausible all these places would be 200m or less, they could be less than 200m from the disabled parking place.
Last thing to consider- regulation 7. There are various different values within each descriptor section. Reg 7 stated that highest value should apply when one or more of the activity levels apply equally, otherwise the most prevalent activity score should be awarded if your disability levels vary.
Reg 7 also says that points are awarded for the activity you can't do for the majority if time, so having a better day won't preclude points.
Basically consider each descriptor. Look at the first one and go down. Which one applies for majority of days?
Take into account the safety, repetition etc, at each level to determine whether you can perform the activity.
Work out eg do you need an aid/appliance, maybe you need assistance or support, or prompting, maybe because you can't repeat, can't be safe, you can't do it at all!
Gary
You need to tell the assessor everything as they do not know you, I tell clients that they have to paint a picture in words about how they feel on a day to day basis, if you are on medication which have side effects, then describe the effects, if you were on medication and can no longer take the medication due to the side effects, describe the side effects.
I was speaking to a claimant today who has COPD, she was turned down, I was reading her PA4 report which stated she has 4 good days and 3 bad days a week, I asked her how she felt on a good day compared to a bad day, it turned out that on a good day she was bad and struggled to do anything, on a bad day she could not do anything, so be careful with the language you use.
All descriptor tasks have to be done safely, in reasonable time, to acceptable standard and repeatedly. If you can't achieve all four of these you legally can not do the task and should score points at the appropriate level to your disability.
Whilst I am all too aware that many assessments do not reflect the severity of disability and use tenuous analogy to suggest the activities can be done, I wonder if you haven't properly explained your disability in accordance with the above criteria (from Regulation 4(2A) PIP regulations 2013. (If you don't explain properly, this will just create more justification for a negative report from the Assessor!)
Don't worry, many claimants don't know about reg 4, and the Assessors and decision makers ignore it!
Let me explain reg 4 in more detail...
Safety - can you complete the activity without a risk of substantial harm to you or another. Even if the likelihood of harm isn't often, it doesn't matter. Think epilepsy- fits are seldom, but risk when eg using bath or cooking is very great if you have a fit at this time. But safety refers to all activities so eg mobility if there is a risk of a fall.
Reasonable time - is no more than twice the time of non disabled person. So if the 'normal time' is 10 minutes, but your disability means it takes 30 mins you fail the reasonable time test and then can't do that activity and should get points.
Acceptable standard - this isn't defined in the regulations but is the standard you would normally expect. So under descriptor 1 can you cook etc - if you always burn food and ruin pans, even though you can peel chop vegetables. This would indicate assistance or prompting is required and hence you should get the points that are relevant to your disability.
Pain must also be taken into account. Whilst tasks don't have to be pain free, high levels of pain will suggest non acceptable standard. Specifically for mobility 2, any walking done with severe discomfort must be discounted.
This means if you have severe discomfort at the start of any walking your PIP ability is actually zero even though you may actually be able to walk say 50m! You said your feet scream pain and this suggests that your PIP ability ie your 'legal' ability not absolute ability is very little and hence you fall within the 12 points category.
Even if you can walk for a few metres without pain consider why you need to stop, breathlessness, fatigue etc all fall within 'severe discomfort' - so think about this too.
If your stop is a longer one, then it is possible you will fail to be in a reasonable time.
Final criteria - repetition - you need to be able to do each activity throughout the day meeting the other 3 criteria as often as reasonably required. Each activity will have different repetition rates. Cooking might be 3 or 4 times per day. Toilet needs could be 8 times per day but maybe 20+ if you have incontinence. Communication is 24/7.
Maybe mobility is 200m 4 or 5 times per day. Eg walk kids to school, rest come back. Walk to post box. Later realise need to go to bank. Walk to friends house. Etc None of the above would be unreasonable across the day.
Remember, even though it sounds implausible all these places would be 200m or less, they could be less than 200m from the disabled parking place.
Last thing to consider- regulation 7. There are various different values within each descriptor section. Reg 7 stated that highest value should apply when one or more of the activity levels apply equally, otherwise the most prevalent activity score should be awarded if your disability levels vary.
Reg 7 also says that points are awarded for the activity you can't do for the majority if time, so having a better day won't preclude points.
Basically consider each descriptor. Look at the first one and go down. Which one applies for majority of days?
Take into account the safety, repetition etc, at each level to determine whether you can perform the activity.
Work out eg do you need an aid/appliance, maybe you need assistance or support, or prompting, maybe because you can't repeat, can't be safe, you can't do it at all!
Gary
Nothing on this board constitutes legal advice - always consult a professional about specific problems
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