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Due for PIP assessment 18 months after completeing the review form and scared!

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1 year 11 months ago #276635 by Mason
Hi all,

I completed my PIP review form Aug 2021 and have finally been told that it has been passed to MyPIPAssessment and that they will contact me when they have reviewed the paperwork. I am expecting an assessment as I don't have much supporting evidence, although I have finally managed to get NHS help but that will only last 6 sessions. I have sent the DWP my assessment report from them. I have Chronic Fatigue Syndroem, possible fibromyalgia and possible arthritis. My condition fluctuates and the symptoms that most impact on me have changed too. For example I wasn't experiencing much pain when I first claimed, at the time I completed the form it was a significant problem but now (possibly thanks to low dose Prednisolone) that has eased and fatgue is my biggest problem. I feel as though I am constantly learning how to best manage my health and have discovered that changing my routine has been better for me in terms of manging to work (14 hours over four days from home). I was doing 12 hours at the time I wrote my renewal and 8 hours permitted work when I did my original claim. I am worried about looking as though I am contradicting myself and know that I will find it difficult to explain it when I speak to them.

I've also had my Blue Badge reapplication rurned down (was initially awarded by local authority, I only got four points from PIP assesssment) and that is having an impact on my overall well being and ability to do things. Is there any point in saying how this has affected me?

Do you think a symptom diary would help? And if any thoughts on the best timing? If I have a telephone assessment I'll need them to have it before hand.

Any help gratefully recieved!

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1 year 11 months ago #276647 by BIS
Hi Mason

You could do a dairy for a couple of weeks and send it in, but depending on postage and processing, it may or may not be processed in time.

I would not worry about whether or not you appear to have contradicted yourself. That is the case for many people and if you have a telephone assessment, you should have the opportunity to talk about how your condition has changed since you sent your information in. It is a long time.

BIS

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1 year 11 months ago #276650 by Mason
Thank you - I suppose I can always keep a diary and if there is time send it - if not have it to hand to help me!

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1 year 11 months ago - 1 year 11 months ago #276654 by Gary
Hi Mason

You can always appeal to your local authority about being turned down for the blue badge as you do not need to awarded PIP mobility to be awarded blue badge. Ifg you can get a doctors letter then that will help.

Gary

Nothing on this board constitutes legal advice - always consult a professional about specific problems
Last edit: 1 year 11 months ago by Gary.

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1 year 11 months ago #276721 by Mason
Thanks Gary, I decided not to appeal about my Blue Badge but am considering reapplying which I believe you can do after 6 months. My initial assessment was face to face, the renewal was paper based and one of the reasons they gave was because of a lack of recent evidence. This is because every time I went back to ask for further help my GP basically said that there was no NHS provision for CFS locally. Thankfully that has now changed so I might be able to get a letter from the clinic that is helping me. The two criteria I would meet are
- you find walking very difficult due to pain, breathlessness or the time it takes
- walking is dangerous to your health and safety

My condition fluctuates and I'm not sure whether there is any guidance on fluctutaing conditions. For the second one it is not so much that walking is dangerous to my 'health and safety' BUT it does have an impact on my health - the amount I can walk is limited before I get payback and an increase in my symptoms.

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1 year 11 months ago #276749 by Gary
Hi Mason

When applying for PIP, it is not so much the condition per se that the DWP is interested in, but how that condition/s impacts a claimant's daily life and mobility as set out in the PIP criteria.

Read about the reliability element in the guide - if you cannot do something:

• Safely – in a fashion that is unlikely to cause harm to themselves or to another person.
• To a necessary and acceptable standard – given the nature of the activity.
• Repeatedly – as often as is reasonably required.
• In a reasonable time period – no more than twice as long as a person without a physical or mental health condition would take to carry out the activity.

then you should not be considered able to do the activity.

The fact that you can’t do the activity safely, to an acceptable standard, repeatedly or in a reasonable time, means you can’t do it at all for the purposes of the descriptors.

Flucturating condition is quite hard to document as PIP is based on the majority of time, as stated in a previous post keep a day diary, you can use this as evidence, there are some examples in the guides tab at the top of the page.

You are not required to walk pain free but any pain that restricts the distance that you can walk should be taken into account.

Specifically for the Moving Around activity, if you are able to walk but you are in severe pain when doing so, then you can argue that your walking is not to a necessary standard and should be disregarded.

The legal test requires you to stand and then move (walk), so if you have problems getting up then you should document this as well.

If you walk slowly then it must take you at least twice the time to cover the distance as a healthy person would, this could be down to the speed of your walking but could also be the result of having to stop.

You must be able to repeat the distance, so if you could walk it once but not then be able to walk it again within a reasonable timescale then you should be classed as unable to repeat the activity.

I'm afraid I can't tell you how to show your walking is more restricted but things you need to think about is what you can't do, for example where can you walk in your house, how far is the toilet from where you normally sit, things that will count against you are any trips that you make outside, so for example, how do you do your shopping?

You must be able to walk the distance you can, reliably and on the majority of days, both these terms are defined in the PIP Claim guide benefitsandwork.co.uk/guides-for-claimants/pip

So you need to explain what you can do, how you are limited and why.

Gary

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