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PIP Appeal for ASD & ADHD
- Frangipane
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1 year 2 weeks ago #286050 by Frangipane
PIP Appeal for ASD & ADHD was created by Frangipane
Hi, I’m new here but pleased to have found this forum!
Our adult son has been diagnosed with both ASD and ADHD since summer.
With the help of our local carers charity we supported his submissal of a PIP application and supporting medical evidence (including ASD formulation report). At the time he didn’t have the ADHD dx but had his GP letter stating he was on the waiting list for assessment. DSA assessment report also specified his additional needs inc. 72hrs of 121 academic and emotional support (from two different departments).
Long story short, IAS failed to hold the requested and scheduled online f2f assessment with a companion present, instead phoning unexpectedly multiple times and for as little as 30 seconds. They based their report solely on this, scoring our son 0 points and DWP rejected the claim.
So we complained. IAS said they did nothing wrong. DWP said they’d look at it again (note we didn’t at that time request a mandatory reconsideration). Our son rang and specifically said he would be sending his ADHD assessment formulation report which he was then waiting for following his diagnosis.
Turns out they didn’t wait, and they did do a mandatory reconsideration without this additional evidence. And now the only option we have is to appeal.
The problem is I have long-Covid and am really struggling to support my son with this who is unable to do it himself. Carers association don’t assist with appeals and Citizens Advice have broken my brain.
I’m reaching out in the hope of finding support from those of you have gone through these appallingly arduous processes before.
The deadline to submit an appeal is looming…
Hopefully yours,
F
Our adult son has been diagnosed with both ASD and ADHD since summer.
With the help of our local carers charity we supported his submissal of a PIP application and supporting medical evidence (including ASD formulation report). At the time he didn’t have the ADHD dx but had his GP letter stating he was on the waiting list for assessment. DSA assessment report also specified his additional needs inc. 72hrs of 121 academic and emotional support (from two different departments).
Long story short, IAS failed to hold the requested and scheduled online f2f assessment with a companion present, instead phoning unexpectedly multiple times and for as little as 30 seconds. They based their report solely on this, scoring our son 0 points and DWP rejected the claim.
So we complained. IAS said they did nothing wrong. DWP said they’d look at it again (note we didn’t at that time request a mandatory reconsideration). Our son rang and specifically said he would be sending his ADHD assessment formulation report which he was then waiting for following his diagnosis.
Turns out they didn’t wait, and they did do a mandatory reconsideration without this additional evidence. And now the only option we have is to appeal.
The problem is I have long-Covid and am really struggling to support my son with this who is unable to do it himself. Carers association don’t assist with appeals and Citizens Advice have broken my brain.
I’m reaching out in the hope of finding support from those of you have gone through these appallingly arduous processes before.
The deadline to submit an appeal is looming…
Hopefully yours,
F
- BIS
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1 year 2 weeks ago #286062 by BIS
Nothing on this board constitutes legal advice - always consult a professional about specific problems
Replied by BIS on topic PIP Appeal for ASD & ADHD
Hi Frangipane
Welcome to the forum. You can find information on how to navigate the site here, along with useful information. www.benefitsandwork.co.uk/guides-for-claimants/faq/general
I am sorry that you find yourselves in this position. IAS certainly did play dirty tricks - but a complaint probably won't get you anywhere.
In order to put in an Appeal - you have to do so within one month of the date on the decision letter. This may sound scary - but you don't have to submit the information all at once - and you can continue to do so up to three weeks before the Tribunal is heard.
Your second option as far as the appeal is concerned, is to send in a late submission - which you can do up to 13 months. However, you have to give a reason for the late submission which they can turn down. However, it's easy to argue that you are unwell and your son cannot do this alone and so it has taken you longer to make the decision.
Another option is for you to start the Appeal process and then take the time to look at our guides and see whether an appeal is the right thing or whether your son would be better off putting in a new application for PIP. In which case you would just withdraw the appeal.
Obviously, I know nothing about your son or the quality of the advice you received from the local charity, but I am pretty certain that sending in his ADHD assessment formulation report as a standalone piece of evidence would have made no difference to the DWP's decision. The person reading that report would not be medically trained, and without linking what the report said to the specific PIP criteria, their eyes would have glazed over, and the chances are they would have ignored it.
Similarly -I suspect the DSA assessment report may not have been understood or they didn't see the relevance to the PIP criteria.
You should ring the DWP and ask for a copy of the assessment report. That's a PA4 - though as he didn't appear to have a proper assessment - they may say one doesn't exist. If they made a paper-based decision, then it's a PA5. If you can get hold of a report - this should give more details on why he was awarded zero points.
You should also look at our Guide to PIP claims and reviews. It is a large document, but it goes through every question, giving examples of the sorts of answers the DWP are looking for. Although your son had help to fill out the original application - you need to check whether the right type of information was given. It's very easy to assume that the reader should have some knowledge of ASD and ADHD, but they might never have come across it. If, after looking at this document, you feel that he/you could do a better job of filling out the form - you might want to cancel the Appeal and put in a new application for PIP using our guides to help you.
Your other option is just to forget about the appeal and start off a new application. As the score was zero - you could put in for this when you're ready. Bear in mind they will know that he has applied before - but that doesn't matter. It will give you more time to make sure that your son fully understands the process.
I'm sorry this is a long post. Let me just summarise your choices.
1. Put in an Appeal within one month of the decision date.
2. Put in a late appeal - up to 13 months.
3. Put in an appeal - look at the guides and withdraw the appeal.
4. Put in for a new application for PIP.
Obviously, putting in a new application may seem a more stressful option, but sometimes it may in the long term be a better option, making sure that any additional information is tied to the specific PIP criteria. Remember - PIP don't care if he needs academic support - because it's not part of the PIP criteria. If he's having trouble reading, communicating, managing money, or going out etc they are interested. And yes, I know reading and communicating can be part of his academic support needs - but it's just the way it's worded on the PIP application.
Come back and ask if you have any further questions and we will try and help.
BIS
Welcome to the forum. You can find information on how to navigate the site here, along with useful information. www.benefitsandwork.co.uk/guides-for-claimants/faq/general
I am sorry that you find yourselves in this position. IAS certainly did play dirty tricks - but a complaint probably won't get you anywhere.
In order to put in an Appeal - you have to do so within one month of the date on the decision letter. This may sound scary - but you don't have to submit the information all at once - and you can continue to do so up to three weeks before the Tribunal is heard.
Your second option as far as the appeal is concerned, is to send in a late submission - which you can do up to 13 months. However, you have to give a reason for the late submission which they can turn down. However, it's easy to argue that you are unwell and your son cannot do this alone and so it has taken you longer to make the decision.
Another option is for you to start the Appeal process and then take the time to look at our guides and see whether an appeal is the right thing or whether your son would be better off putting in a new application for PIP. In which case you would just withdraw the appeal.
Obviously, I know nothing about your son or the quality of the advice you received from the local charity, but I am pretty certain that sending in his ADHD assessment formulation report as a standalone piece of evidence would have made no difference to the DWP's decision. The person reading that report would not be medically trained, and without linking what the report said to the specific PIP criteria, their eyes would have glazed over, and the chances are they would have ignored it.
Similarly -I suspect the DSA assessment report may not have been understood or they didn't see the relevance to the PIP criteria.
You should ring the DWP and ask for a copy of the assessment report. That's a PA4 - though as he didn't appear to have a proper assessment - they may say one doesn't exist. If they made a paper-based decision, then it's a PA5. If you can get hold of a report - this should give more details on why he was awarded zero points.
You should also look at our Guide to PIP claims and reviews. It is a large document, but it goes through every question, giving examples of the sorts of answers the DWP are looking for. Although your son had help to fill out the original application - you need to check whether the right type of information was given. It's very easy to assume that the reader should have some knowledge of ASD and ADHD, but they might never have come across it. If, after looking at this document, you feel that he/you could do a better job of filling out the form - you might want to cancel the Appeal and put in a new application for PIP using our guides to help you.
Your other option is just to forget about the appeal and start off a new application. As the score was zero - you could put in for this when you're ready. Bear in mind they will know that he has applied before - but that doesn't matter. It will give you more time to make sure that your son fully understands the process.
I'm sorry this is a long post. Let me just summarise your choices.
1. Put in an Appeal within one month of the decision date.
2. Put in a late appeal - up to 13 months.
3. Put in an appeal - look at the guides and withdraw the appeal.
4. Put in for a new application for PIP.
Obviously, putting in a new application may seem a more stressful option, but sometimes it may in the long term be a better option, making sure that any additional information is tied to the specific PIP criteria. Remember - PIP don't care if he needs academic support - because it's not part of the PIP criteria. If he's having trouble reading, communicating, managing money, or going out etc they are interested. And yes, I know reading and communicating can be part of his academic support needs - but it's just the way it's worded on the PIP application.
Come back and ask if you have any further questions and we will try and help.
BIS
Nothing on this board constitutes legal advice - always consult a professional about specific problems
- Frangipane
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3 weeks 2 days ago #297353 by Frangipane
Replied by Frangipane on topic PIP Appeal for ASD & ADHD
Just an update - sadly this went to Tribunal in July '24 as DWP took our informing them of their failure to follow their own processes as a request for 'mandatory reconsideration' (which it wasn't - it was a request to actually hold an assessment to base after the assessor had not turned up for the scheduled one).
Thanks to the helpful guides on B&W we feel that we've been able to support our son putting together a good argument and evidencing his areas of struggle relevant to each of the PIP form sections. However, there is no date in site for a hearing so he's still left in limbo.
Might there be any suggestions as to what we could do from here?
With very many thanks,
F
Thanks to the helpful guides on B&W we feel that we've been able to support our son putting together a good argument and evidencing his areas of struggle relevant to each of the PIP form sections. However, there is no date in site for a hearing so he's still left in limbo.
Might there be any suggestions as to what we could do from here?
With very many thanks,
F
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2 weeks 6 days ago #297375 by BIS
Nothing on this board constitutes legal advice - always consult a professional about specific problems
Replied by BIS on topic PIP Appeal for ASD & ADHD
Hi Frangipane
I'm afraid it can take up to a year for an appeal to be heard. You could start off a new claim and leave the appeal open. You could argue that information was missing from your original application because your son did not understand the whole process. The appeal will only look at the information that was original submitted to see if the decision the DWP made at the time was 'fair'
BIS
I'm afraid it can take up to a year for an appeal to be heard. You could start off a new claim and leave the appeal open. You could argue that information was missing from your original application because your son did not understand the whole process. The appeal will only look at the information that was original submitted to see if the decision the DWP made at the time was 'fair'
BIS
Nothing on this board constitutes legal advice - always consult a professional about specific problems
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