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New user/Change of circumstances
- J.C.
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6 days 8 hours ago #305026 by J.C.
New user/Change of circumstances was created by J.C.
Hi All,
I have just joined this site.
I was awarded PIP at the basic rate about 2 years ago. I haven't worked for over a decade because of my disabilities. (There's a backstory here but irrelevant to the current issues I'm facing.)
I am a 66 year old woman with high functioning autism (what would have been called Aspergers), extensive osteoarthritis, fibromyalgia and heart disease. I also suffer from treatment resistant depression and anxiety, and complex PTSD which has been re-triggered by all this crisis and upheaval.
When I was awarded PIP I was in a share house situation with a friend who helped with transport, household chores and looking after my dog. It wasn't a perfect situation but it felt stable and I felt supported. I had use of the car when I needed it.
In Jan this year we received a no fault eviction notice which resulted in me having to move 250 miles away as I was offered a housing association home where I was allowed to keep my dog. There were no other choices available so I took the leap into the unknown.
So I now live alone and don't know anyone in the area. I have no support network, and very few friends anyway due to my 'challenging' and 'complicated' personality, (or so I have been informed.)
I am rather reclusive by nature because of all my health problems as it all tends to dominate my world but is tiresome and boring for other people. I guess I'm not much fun.
Anyway, here I am 2 months later with a whole new set of challenges and difficulties.
I joined this site to try and work out how best to approach DWP but I am absolutely overwhelmed with information here.
Can someone please help direct me to the best information to start working out what to do?
Should I begin with informing DWP or should I have a battle plan in place? Is there advocacy available?
( I have an appointment next week with a mental health support worker from my new GP surgery and hopeful that my new GP is going to be more helpful and supportive than my last one). It seems that adult autism support is more about socialising and outings than practical help.
My main (but not only)concern is transport and mobility but I am confused about the rules because of my age (now retirement age for me) and how this affects everything, plus looming changes to the rules as my highest score was a 3 on the original assessment.
Do I need to start the ball rolling on Monday morning regardless?
Apologies if this has already been covered elsewhere but like I said, I'm completely overwhelmed on this site.
And now panicking and feeling like its all too hard and whats the point anyway, its all just going to escalate the stress and anxiety.
Many Thanks in advance if anyone's able to offer any help.
I have just joined this site.
I was awarded PIP at the basic rate about 2 years ago. I haven't worked for over a decade because of my disabilities. (There's a backstory here but irrelevant to the current issues I'm facing.)
I am a 66 year old woman with high functioning autism (what would have been called Aspergers), extensive osteoarthritis, fibromyalgia and heart disease. I also suffer from treatment resistant depression and anxiety, and complex PTSD which has been re-triggered by all this crisis and upheaval.
When I was awarded PIP I was in a share house situation with a friend who helped with transport, household chores and looking after my dog. It wasn't a perfect situation but it felt stable and I felt supported. I had use of the car when I needed it.
In Jan this year we received a no fault eviction notice which resulted in me having to move 250 miles away as I was offered a housing association home where I was allowed to keep my dog. There were no other choices available so I took the leap into the unknown.
So I now live alone and don't know anyone in the area. I have no support network, and very few friends anyway due to my 'challenging' and 'complicated' personality, (or so I have been informed.)
I am rather reclusive by nature because of all my health problems as it all tends to dominate my world but is tiresome and boring for other people. I guess I'm not much fun.
Anyway, here I am 2 months later with a whole new set of challenges and difficulties.
I joined this site to try and work out how best to approach DWP but I am absolutely overwhelmed with information here.
Can someone please help direct me to the best information to start working out what to do?
Should I begin with informing DWP or should I have a battle plan in place? Is there advocacy available?
( I have an appointment next week with a mental health support worker from my new GP surgery and hopeful that my new GP is going to be more helpful and supportive than my last one). It seems that adult autism support is more about socialising and outings than practical help.
My main (but not only)concern is transport and mobility but I am confused about the rules because of my age (now retirement age for me) and how this affects everything, plus looming changes to the rules as my highest score was a 3 on the original assessment.
Do I need to start the ball rolling on Monday morning regardless?
Apologies if this has already been covered elsewhere but like I said, I'm completely overwhelmed on this site.
And now panicking and feeling like its all too hard and whats the point anyway, its all just going to escalate the stress and anxiety.
Many Thanks in advance if anyone's able to offer any help.
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4 days 22 hours ago #305067 by LL26
Nothing on this board constitutes legal advice - always consult a professional about specific problems
Replied by LL26 on topic New user/Change of circumstances
Hi J.C.
I have just answered another post thst you have made. (I apologise but each post has to be moderated and this can cause delay.)
I'm sorry to hear that you are on your own. Perhaps there are self help groups in your neighbourhood or Meet up Mondays style events? Your local GP or library might have more information about this. Often these sociable groups can provude the opportunity to initiate conversations with people who have similar health problems and the main value is to discuss self help, coping stateless etc. Website self help groups or charities for your conditions may also provide forums to ask for information.
Please read the other post together with this post as you hsve provided more crucial information that I wasn't aware of in your previous post.
First thing - you can always ask DWP to revise benefit to upgrade from standard rate daily living to enhanced rate if your health has become sufficiently worse to merit the additional necessary points. However, the change of circumstances needs to be due to actual bad health not eg a change in living arrangements or lack of availability of a carer.
Mobility awards can not be granted after pension age if you haven't had this before, no matter how bad your walking or ability to make journeys has become. Likewise if you do have a standard mobility award prior to pension age this can not be increased.
I believe your other post mentioned that the current award was made over 2 years ago. This is too long ago to appeal.
Please confirm when did you reach state retirement age, and be eligible for state pension?
If you have reached SRA then I fear that you can no longer receive the mobility award. I have considered relevant caselaw and legislation and none of the listed exceptions seem to apply in the circumstances you have described.
If I am wrong, and you have yet to reach State Retirement Age and this is impending, then if you want to gain a mobility award you MUST ask for a revision now. Then, even if the decision is after SRA or even if you need to appeal, this won't matter because the review was commenced before you were age barred.
Even if you can't get a mobility award under PIP, you can still ask your local council for a Blue Badge. Yoy will have to fill out the entire form, but if you have eg a local Citizens Advice Office someone there might be able to help with the form.
I'm sorry that this may not be a very positive answer but I hope this nevertheless helps.
LL26
I have just answered another post thst you have made. (I apologise but each post has to be moderated and this can cause delay.)
I'm sorry to hear that you are on your own. Perhaps there are self help groups in your neighbourhood or Meet up Mondays style events? Your local GP or library might have more information about this. Often these sociable groups can provude the opportunity to initiate conversations with people who have similar health problems and the main value is to discuss self help, coping stateless etc. Website self help groups or charities for your conditions may also provide forums to ask for information.
Please read the other post together with this post as you hsve provided more crucial information that I wasn't aware of in your previous post.
First thing - you can always ask DWP to revise benefit to upgrade from standard rate daily living to enhanced rate if your health has become sufficiently worse to merit the additional necessary points. However, the change of circumstances needs to be due to actual bad health not eg a change in living arrangements or lack of availability of a carer.
Mobility awards can not be granted after pension age if you haven't had this before, no matter how bad your walking or ability to make journeys has become. Likewise if you do have a standard mobility award prior to pension age this can not be increased.
I believe your other post mentioned that the current award was made over 2 years ago. This is too long ago to appeal.
Please confirm when did you reach state retirement age, and be eligible for state pension?
If you have reached SRA then I fear that you can no longer receive the mobility award. I have considered relevant caselaw and legislation and none of the listed exceptions seem to apply in the circumstances you have described.
If I am wrong, and you have yet to reach State Retirement Age and this is impending, then if you want to gain a mobility award you MUST ask for a revision now. Then, even if the decision is after SRA or even if you need to appeal, this won't matter because the review was commenced before you were age barred.
Even if you can't get a mobility award under PIP, you can still ask your local council for a Blue Badge. Yoy will have to fill out the entire form, but if you have eg a local Citizens Advice Office someone there might be able to help with the form.
I'm sorry that this may not be a very positive answer but I hope this nevertheless helps.
LL26
Nothing on this board constitutes legal advice - always consult a professional about specific problems
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4 days 2 hours ago #305110 by J.C.
Replied by J.C. on topic New user/Change of circumstances
Thank you - that clarifies the situation.
I was 66 in March which is retirement age for me, born in 1959.
I really need a vehicle but its way too late for me to appeal and there's no hope of qualifying for Motability now even if I did risk pushing for a new assessment.
I wish I had known all this at the time I was first awarded PIP as after watching the webinar I know now that the crucial points as to whether I can complete a journey safely (no) repeatedly (no) and in reasonable time (no) would have made a big difference.
They didn't ask me any of those things at the assessment and were focused on the fact that I CAN walk more than 50 meters with the aid of hiking poles and opiate pain relief, and as long as I was walking between seating or benches where I could stop and rest.
I am prone to falls when walking, (knees and hips sometimes give way ) and I fell heavily 3 weeks ago, injuring my back and right shoulder.
My neighbour had just taken delivery of a brand new Motability EV SUV and he asked me why I didn't have a Motability vehicle, given my situation.
Thats what started me wondering whether I should think about requesting reassessment and led me to this website.
Although in severe and constant pain I do force myself to walk every day as I have a dog (I used to have help with dog walking on the days I couldn't manage, but not since moving house. He's not the type of dog that just anyone can take around the block and needs an experienced handler, and wouldn't go out with a stranger anyway without me being there.)
Getting out and walking the dog helps with my state of mind and physical health and on balance its a net benefit even though it exhausts me and my whole life revolves around walking the dog every day.
After the most recent fall I did think I may have to consider re-homing him but couldn't bear to do that.
He's everything to me and my reason to get up every day.
Although not officially an assistance dog he is my support dog and I don't feel safe without him. We did 12 months specialised training when I first got him 8 years ago , specifically to help me overcome PTSD.
I really struggle with public transport and I'm prone to severe panic attacks if I'm alone in a taxi with a male driver.
I can't follow directions even using google maps even with voice directions on and get confused, but that wasn't raised at the assessment and I didn't know to make a point of it.
Since moving house I now rely on grocery deliveries and microwave ready meals, and without strong pain killers and the dog to help me feel safe I wouldn't be unable to leave the house half the time.
So I never go further than walking distance, which isn't far.
Even going to doctors appointments is difficult and stressful as I can't take Jake with me.
So I guess I'm going to have to somehow try and save up to buy a cheap car as without it I will be housebound in winter.
I live at the top of a very steep hill in an area that has bad winters. I can barely make it home on a good day, let alone with snow and ice.
Anyway, now I know where I stand.
It makes me angry and upset that I have been put in this situation but there's nothing I can do now. At least I'm not homeless which was a real possibility.
I have to just hope and pray that the PIP changes they bring in don't result in me losing the basic living allowance. I suppose I was lucky to even get that.
Thanks for your help.
J
I was 66 in March which is retirement age for me, born in 1959.
I really need a vehicle but its way too late for me to appeal and there's no hope of qualifying for Motability now even if I did risk pushing for a new assessment.
I wish I had known all this at the time I was first awarded PIP as after watching the webinar I know now that the crucial points as to whether I can complete a journey safely (no) repeatedly (no) and in reasonable time (no) would have made a big difference.
They didn't ask me any of those things at the assessment and were focused on the fact that I CAN walk more than 50 meters with the aid of hiking poles and opiate pain relief, and as long as I was walking between seating or benches where I could stop and rest.
I am prone to falls when walking, (knees and hips sometimes give way ) and I fell heavily 3 weeks ago, injuring my back and right shoulder.
My neighbour had just taken delivery of a brand new Motability EV SUV and he asked me why I didn't have a Motability vehicle, given my situation.
Thats what started me wondering whether I should think about requesting reassessment and led me to this website.
Although in severe and constant pain I do force myself to walk every day as I have a dog (I used to have help with dog walking on the days I couldn't manage, but not since moving house. He's not the type of dog that just anyone can take around the block and needs an experienced handler, and wouldn't go out with a stranger anyway without me being there.)
Getting out and walking the dog helps with my state of mind and physical health and on balance its a net benefit even though it exhausts me and my whole life revolves around walking the dog every day.
After the most recent fall I did think I may have to consider re-homing him but couldn't bear to do that.
He's everything to me and my reason to get up every day.
Although not officially an assistance dog he is my support dog and I don't feel safe without him. We did 12 months specialised training when I first got him 8 years ago , specifically to help me overcome PTSD.
I really struggle with public transport and I'm prone to severe panic attacks if I'm alone in a taxi with a male driver.
I can't follow directions even using google maps even with voice directions on and get confused, but that wasn't raised at the assessment and I didn't know to make a point of it.
Since moving house I now rely on grocery deliveries and microwave ready meals, and without strong pain killers and the dog to help me feel safe I wouldn't be unable to leave the house half the time.
So I never go further than walking distance, which isn't far.
Even going to doctors appointments is difficult and stressful as I can't take Jake with me.
So I guess I'm going to have to somehow try and save up to buy a cheap car as without it I will be housebound in winter.
I live at the top of a very steep hill in an area that has bad winters. I can barely make it home on a good day, let alone with snow and ice.
Anyway, now I know where I stand.
It makes me angry and upset that I have been put in this situation but there's nothing I can do now. At least I'm not homeless which was a real possibility.
I have to just hope and pray that the PIP changes they bring in don't result in me losing the basic living allowance. I suppose I was lucky to even get that.
Thanks for your help.
J
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3 days 20 hours ago #305129 by LL26
Nothing on this board constitutes legal advice - always consult a professional about specific problems
Replied by LL26 on topic New user/Change of circumstances
Hi J.C.
I think there should be more publicity about the lack of mobility awards for pensioners. Many people simply don't realise this can be a problem.
If moving house to a more suitable, less hilltop location is not possible, you might be able to get an assessment via local Occupational therapist (OT) who can assess whether eg any grab rails or outside hand rail or step could be helpful. The OT can also suggest helpful gadgets etc. There are a myriad of things that can help- many cost little money and others can be provided by the local social services/ council.
If mobility is becoming a problem, maybe a mobility scooter is an option? Worth exploring perhaps?
LL26
I think there should be more publicity about the lack of mobility awards for pensioners. Many people simply don't realise this can be a problem.
If moving house to a more suitable, less hilltop location is not possible, you might be able to get an assessment via local Occupational therapist (OT) who can assess whether eg any grab rails or outside hand rail or step could be helpful. The OT can also suggest helpful gadgets etc. There are a myriad of things that can help- many cost little money and others can be provided by the local social services/ council.
If mobility is becoming a problem, maybe a mobility scooter is an option? Worth exploring perhaps?
LL26
Nothing on this board constitutes legal advice - always consult a professional about specific problems
The following user(s) said Thank You: J.C.
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