No 4 point PIP descriptors results
| Submission ID: 1163101 |
| Date: 2025-04-09 11:16:21 |
| Nickname: Florence |
| Age: 60 |
| Main health condition: Physical health |
| Main conditions that affect daily living: Severe to moderate myalagic encephalomyelitis (ME/CFS) and fibromyalgia |
| Rate of PIP daily living component: Enhanced |
| 4 point descriptor score: No |
| Possibility to score at least one 4-point daily living descriptor at the next review: 50:50 |
| Tasks you struggle with on a day-to-day basis: I struggle with personal care, including washing and dressing (including above the waist/upper body) and I am unable to prepare a simple meal. I am mainly housebound as for the majority of time I am bedbound. I am unable to work due to the severity of the symptoms of my condition which are severe fatigue, post-exertional malaise, severe pain (particularly in the upper body), sensitivity to light and noise, severe brain fog and significant orthostatic intolerance. |
| Expected income you will lose if the Green Paper cuts are imposed: I will lose over £3,500 per annum in PIP daily living allowance. If I also lose my contributions-based ESA of around £5,000 per annum, this will reduce my income by a total of £8,500. My only other income is £924 per annum from the higher mobility allowance part of PIP, so the effect of losing any income at all is hugely significant. My husband is 65 and would like to retire next year at 66, but we cannot afford for him to retire as I am no longer able to work. If we now lose my PIP daily living allowance, we will also be forced into selling our home, which is on a mortgage. It is hard to see any outcome other than extreme hardship or literal poverty. |
| Expected problems if you tried moving into work, with support from a work coach: I would be unable to cope with the physical demands of working due to the nature of my disabilities. I would find it difficult to manage to sit in a chair for longer than half an hour and I would find the noise and light intolerable. I would expect to have vasovagal syncope episodes (fainting) on a regular basis due to sitting or standing (due to the orthostatic intolerance from ME). I would be unable to concentrate due to the brain fog and feeling unwell because of sitting or standing. The exhaustion from sitting alone would impact on my condition and is likely to exacerbate it and make me even sicker. |
| Anything else to tell us: |
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