No 4 point PIP descriptors results
| Submission ID: 1163526 |
| Date: 2025-04-09 14:33:03 |
| Nickname: Nicky |
| Age: 61 |
| Main health condition: Physical health |
| Main conditions that affect daily living: Myalgic encaphalomyelitis (ME) Fybromyalgia POTs (postural tachycardia) Ehlers danlos syndrome Coeliac disease FND (functional neurological disorder ) Pernicious anaemia |
| Rate of PIP daily living component: Enhanced |
| 4 point descriptor score: No |
| Possibility to score at least one 4-point daily living descriptor at the next review: Unlikely at this point unless they take it to account conditions with age , though that's a lottery isn't it ! . |
| Tasks you struggle with on a day-to-day basis: Completing ANY task to a good standard Cooking is hard due to fatigue and ability to stand , also I do not sense heat and can burn myself Showering makes me faint , making it dangerous to be left alone Muscle weakness makes me unstable in walking and standing so all tasks are difficult Joint dislocations make all tasks risky and painful All task produce extreme fatigue So much more than I can say here without writing pages ! |
| Expected income you will lose if the Green Paper cuts are imposed: Support group: Contribution based ESA = £ 7,186 PIP : Daily living element: £5,740 TOTAL : £12926 I would be likely lose my house & my car , have no way to attend appointments or doctors. I would lose my blue badge i think ? I could not feed myself or my dogs or contribute to the household. I would lose my support network and be unable to see my family or friends as I live quite some miles from them . I cannot travel on buses or trains so rely on a car or mostly someone to take me . I would not be able to afford a taxi if I cannot drive . The stress would make my health decline further and also further affect my mental health. I seriously believe I would have a breakdown if my income was taken away by this reform. I know I could NOT work , could not travel to work or engage in anything on a reliable basis. . I could not pay for my special diet or my household aids , my special footwear and joint supports or indeed my prescriptions . I'm afraid life would feel worthless. I'm sure this is the same for many . |
| Expected problems if you tried moving into work, with support from a work coach: My health conditions mean I have to rest often, lie down when my heart rate escalates , or recover when I faint. My joints dislocate and I suffer extreme all over pain and fatigue daily , that's only the short version of my life! I could not reliably attend a job centre let alone take on regular work enough to live off . Any employer would have to make reasonable adjustments to allow for me to lie down at regular intervals , to take time off when I can't stand , give time off to attend appointments. They would have to allow me to leave work whenever I need to and take into account my brain fog , lack of coordination , weakness from fatigue . I suspect I would make many mistakes and be unreliable on most days . It's impossible to know exactly because it depends on the job so I can only make assumptions based on the years I worked when I was sick , and how hard that was. Who is going to employ me with these restrictions at my age ? |
| Anything else to tell us: Having worked all my life, had three business of my own which were lost when I became to ill to work, these reform are cruel and degrading to everyone in genuine need . Having paid into society in the for of taxes etc this make me feel like a waste , a failure just because someone in a privelidged position invents the "magic 4 points " rule to suits their own agenda. I do not feel life's going to be worth living. I will not be magically cured enough to work , I will, be a further drain of the NHS when my health decline because of all this . Already the stress from the thought of all this is making me more unwell and depressed than I have been in a long time . I cannot plan anything for the future as I scored mainy 3's and 2's in daily living section . I'm likely to lose everything except mobility low rate , that's not enough of live on . I've been in need of PIP since the age of 50 , long term ongoing awards which will now be removed will means I face a bleak future. Thank you for this survey and I pray it helps us all . |
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