Hi, my PIP review form came and on it they ask if anything has changed?
Lots has changed with my medical condition and I have had lots of IV antibiotics over the last 2 years, which have not worked with my continuing chest infections.
I have got all the letters from consultant, explaining what I have had done and what course of action they were going to look at next.
I was even admitted into hospital for a 14 day course of a trial antibiotic, which also never worked I know this because I had a call from my consultant stating this.
I am currently waiting for this letter to come, but she did say she was not sure what else they could do for me to fight the infection and I might have to learn to live with it. She said she would ask advice from one of the senior doctors at Newcastle RVI but as he was the one who suggested the last course she was not sure what the next pathway would be.
She said that she thought that they may suggest waiting to see if I can manage this as the Pseudomonas infection which is in my lungs, as is now resistant to everything they have tried.
I wanted to wait for the last letter from her as I feel that this might have the most weight in saying I will always be like this as it is life limiting.
I am already sending 6 other letters from her stating what IV injections they were going to do at home and then the outcome of them and I was going to include my hospital discharge letter, is this too much information??
