- Posts: 6
- Forum
- Members forums
- ESA, PIP, UC and DLA Queries and Results
- Neurodivergent PIP Decision - 0 points
× Members
Neurodivergent PIP Decision - 0 points
- Chill-E
- Topic Author
- Offline
Less More
2 weeks 2 days ago #311819 by Chill-E
Neurodivergent PIP Decision - 0 points was created by Chill-E
I just received my PIP decision and scored 0 points for all Daily Living and Mobility activities.
I scored 0 points for all Daily Living and Mobility activities. For context, I have a formal diagnosis of Autism and ADHD (AuDHD).
Rather than posting large extracts, I’ve tried to summarise the main reasoning used throughout the decision. I’d appreciate views on whether this type of reasoning is generally considered challengeable at MR or tribunal, or whether I’m misunderstanding how PIP law is applied.
The decision relies heavily on:
Are these types of reasoning commonly challenged successfully, particularly in neurodivergent cases?
Thank you for reading and any help you offer would be appreciated - I've asked for a copy of the assessors report
I scored 0 points for all Daily Living and Mobility activities. For context, I have a formal diagnosis of Autism and ADHD (AuDHD).
Rather than posting large extracts, I’ve tried to summarise the main reasoning used throughout the decision. I’d appreciate views on whether this type of reasoning is generally considered challengeable at MR or tribunal, or whether I’m misunderstanding how PIP law is applied.
The decision relies heavily on:
- The fact that I work in an analytical role to conclude I have adequate concentration, reading, memory and communication ability.
- The fact that I drive, with no licence restrictions, to conclude I can plan and follow journeys and manage complex tasks unaided.
- Repeated statements that I have no diagnosed cognitive or intellectual impairment or learning disability, used to dismiss reported functional difficulties.
- The absence of prescribed medication, care plans or current mental health input to conclude there is no significant mental health impact or psychological distress. (odd as I said I over 20 therapy sessions last year and am awaiting more therapy this year)
- Little or no reference to whether activities can be completed reliably (safely, repeatedly, to an acceptable standard and within a reasonable time).
Are these types of reasoning commonly challenged successfully, particularly in neurodivergent cases?
Thank you for reading and any help you offer would be appreciated - I've asked for a copy of the assessors report
The following user(s) said Thank You: Invisible
Please Log in or Create an account to join the conversation.
- LL26
- Offline
Less More
- Posts: 1599
2 weeks 1 day ago #311833 by LL26
Nothing on this board constitutes legal advice - always consult a professional about specific problems
Replied by LL26 on topic Neurodivergent PIP Decision - 0 points
Hi Chill-E,
Unfortunately the comments you refer to are common phrases used in decisions. (For many disabilities, not just neurodivergence.) And....because they are common phrases then very many people do successfully argue them. DWP are terribly poor at the so- called reliability criteria,view safety, reasonable time, acceptable standard and repetition. It is really important to address these as points can easily be won by arguing these.
You have asked for the report, and I would suggest you don't send in any MR request until you receive this and examine it. (Don't worry if this takes you outside the 2 month time limit - send the MR late but explain the reason was due to having to wait for the report - this should be sufficient reason to allow a late MR.)
On the meantime, start preparing your MR. Think of it in 3 sections. Firstly write a paragraph or two about your health, diagnosis, problems as a child, and problems now, just general stuff. Things like getting a job, any reasonable adjustments made, or just your boss accomodating your health or behaviour etc. Explain if relevant eg how many times to pass exams, including driving test. If you didn't take exams or had help explain this too.
The next section is a brief critique of the report. On a separate piece of paper try and work out 4 or 5 bullet points that explain deficiencies in the report. Think about the manner of the assessor, did he listen, has he written down incorrect information ? (ie he appears to not understand/ is confused) Never say he ' lies' as you can't prove this and it will sound very negative.
Other things to consider is whether he has ignored what you said. Look for Inconsistencies. Give examples for each bullet point. Check what qualification the assessor has, because your last bullet points could be eg , he does not indicate any specialist mental health qualifications, and this could explain why the assessor does not appear to understand about Autism etc.
Then last section - go through each descriptor and say why you can't do the activity, what goes wrong etc with examples, here you can do a more in depth criticism of the report. You can state how many points should have been awarded. Mention about 'reliability' as this is crucial.
In the background paragraph you may wish to include a quotation from a relevant charity to confirm about eg autism, often such websites confirm the diagnostic criteria and discuss eg cognitive difficulties, which will easily rebut any suggestions that your health condition doesn't cause cognitive issues. Likewise you might also be able to confirm that you fit within all of eg 5 markers that indicate the health problem. However old your own diagnosis was, please include the report and refer to it.
Think carefully how you perform PIP descriptor activities what help is required. Maybe you avoid things because it's too difficult, takes too long or due to safety reasons. Be totally frank, maybe you start but don't finish things - why? Think about time taken as this is very important consideration for autistic people.
I hope this helps.
Good luck.
Please let us know how you get on.
LL26
Unfortunately the comments you refer to are common phrases used in decisions. (For many disabilities, not just neurodivergence.) And....because they are common phrases then very many people do successfully argue them. DWP are terribly poor at the so- called reliability criteria,view safety, reasonable time, acceptable standard and repetition. It is really important to address these as points can easily be won by arguing these.
You have asked for the report, and I would suggest you don't send in any MR request until you receive this and examine it. (Don't worry if this takes you outside the 2 month time limit - send the MR late but explain the reason was due to having to wait for the report - this should be sufficient reason to allow a late MR.)
On the meantime, start preparing your MR. Think of it in 3 sections. Firstly write a paragraph or two about your health, diagnosis, problems as a child, and problems now, just general stuff. Things like getting a job, any reasonable adjustments made, or just your boss accomodating your health or behaviour etc. Explain if relevant eg how many times to pass exams, including driving test. If you didn't take exams or had help explain this too.
The next section is a brief critique of the report. On a separate piece of paper try and work out 4 or 5 bullet points that explain deficiencies in the report. Think about the manner of the assessor, did he listen, has he written down incorrect information ? (ie he appears to not understand/ is confused) Never say he ' lies' as you can't prove this and it will sound very negative.
Other things to consider is whether he has ignored what you said. Look for Inconsistencies. Give examples for each bullet point. Check what qualification the assessor has, because your last bullet points could be eg , he does not indicate any specialist mental health qualifications, and this could explain why the assessor does not appear to understand about Autism etc.
Then last section - go through each descriptor and say why you can't do the activity, what goes wrong etc with examples, here you can do a more in depth criticism of the report. You can state how many points should have been awarded. Mention about 'reliability' as this is crucial.
In the background paragraph you may wish to include a quotation from a relevant charity to confirm about eg autism, often such websites confirm the diagnostic criteria and discuss eg cognitive difficulties, which will easily rebut any suggestions that your health condition doesn't cause cognitive issues. Likewise you might also be able to confirm that you fit within all of eg 5 markers that indicate the health problem. However old your own diagnosis was, please include the report and refer to it.
Think carefully how you perform PIP descriptor activities what help is required. Maybe you avoid things because it's too difficult, takes too long or due to safety reasons. Be totally frank, maybe you start but don't finish things - why? Think about time taken as this is very important consideration for autistic people.
I hope this helps.
Good luck.
Please let us know how you get on.
LL26
Nothing on this board constitutes legal advice - always consult a professional about specific problems
The following user(s) said Thank You: sia7, Invisible, Wendy Woo, Chill-E
Please Log in or Create an account to join the conversation.
- Chill-E
- Topic Author
- Offline
Less More
- Posts: 6
1 week 5 days ago #311910 by Chill-E
Replied by Chill-E on topic Neurodivergent PIP Decision - 0 points
Hi LL26,
Appreciate your reply which I will print and read through.
I've have now received the PA4 form - and highlighting many errors in how they interpreted my performance from the assessment and inferred from my job, both of which they can't tell my internal state or the extra work I do in advance or the toll on me. Plus it was a 1:1 phone call whilst I was in my safe space "at home" not dealing with any sensory triggers or in a big group / social setting. They should understand that my state is situational, if they did as you say understand Autism and masking - the Psychiatrists who did my ASD assessment and the DR in my Occ Health report for Reasonable Adjustments at work, both documented I was anxious sounding yet DWP say the opposite. They even ignored my ADHD diagnosis letter I posted to them in the listed evidence - saying my memory was good - well I pretty much spent a weekend preparing for this call and had print outs
.
Anyway I'll try to have a read of the second half of the report before I give the MR response.
Appreciate your reply which I will print and read through.
I've have now received the PA4 form - and highlighting many errors in how they interpreted my performance from the assessment and inferred from my job, both of which they can't tell my internal state or the extra work I do in advance or the toll on me. Plus it was a 1:1 phone call whilst I was in my safe space "at home" not dealing with any sensory triggers or in a big group / social setting. They should understand that my state is situational, if they did as you say understand Autism and masking - the Psychiatrists who did my ASD assessment and the DR in my Occ Health report for Reasonable Adjustments at work, both documented I was anxious sounding yet DWP say the opposite. They even ignored my ADHD diagnosis letter I posted to them in the listed evidence - saying my memory was good - well I pretty much spent a weekend preparing for this call and had print outs
.
Anyway I'll try to have a read of the second half of the report before I give the MR response.
Please Log in or Create an account to join the conversation.
- BIS
- Offline
Less More
- Posts: 10017
1 week 5 days ago #311912 by BIS
Nothing on this board constitutes legal advice - always consult a professional about specific problems
Replied by BIS on topic Neurodivergent PIP Decision - 0 points
Hi Chill-E
I just wanted to add to what LL26 has said. You cannot call the assessor a liar, but you can use phrases such as:
"the assessor was mistaken ...", 'the assessor failed to take account of ....", "the assessor omitted...", the assessor misunderstood..." etc etc.
Re the lack of mental health input. You should reiterate that you have had some, you are waiting for more. I would also add that you should not be discriminated against because you don't currently have input, as it is not a reflection on your condition or your difficulties. There is a well-known national shortage of mental health services.
Just be careful what you say about the driving issue. The DWP have been known to contact the DVLA and say that, because of what a claimant has written on a PIP form, they should not be driving. Obviously, you will have to address it, but you don't want to give the impression that you are a danger on the road. But if you don't cope with sudden roadworks or detours, then you should say so.
The deadline for your MR is one month from the date on the decision letter as far as I am aware. After that it becomes a late submission. If you are going to be late, talk to them before the deadline, because we have had a couple of members in the last year who were refused late submissions.
BIS
I just wanted to add to what LL26 has said. You cannot call the assessor a liar, but you can use phrases such as:
"the assessor was mistaken ...", 'the assessor failed to take account of ....", "the assessor omitted...", the assessor misunderstood..." etc etc.
Re the lack of mental health input. You should reiterate that you have had some, you are waiting for more. I would also add that you should not be discriminated against because you don't currently have input, as it is not a reflection on your condition or your difficulties. There is a well-known national shortage of mental health services.
Just be careful what you say about the driving issue. The DWP have been known to contact the DVLA and say that, because of what a claimant has written on a PIP form, they should not be driving. Obviously, you will have to address it, but you don't want to give the impression that you are a danger on the road. But if you don't cope with sudden roadworks or detours, then you should say so.
The deadline for your MR is one month from the date on the decision letter as far as I am aware. After that it becomes a late submission. If you are going to be late, talk to them before the deadline, because we have had a couple of members in the last year who were refused late submissions.
BIS
Nothing on this board constitutes legal advice - always consult a professional about specific problems
The following user(s) said Thank You: Chill-E
Please Log in or Create an account to join the conversation.
- Chill-E
- Topic Author
- Offline
Less More
- Posts: 6
3 days 14 hours ago #312140 by Chill-E
Replied by Chill-E on topic Neurodivergent PIP Decision - 0 points
Hi BIS Thanks appreciate your replay - especially the advice on Driving - certain don't want that becoming an issue with DVLA / insurance
I sent the MR form on Monday morning and that's now been confirmed by DWP who texted today to say up to 15 weeks. I actually was only recently diagnosed with ADHD 4 wks ago, and received the full 26 page report (which I was told would take 6-8 weeks) on Tuesday, so after the MR form has been sent - as I was just trying to get the thing out of the way before the 1 month deadline they gave me.
I'm in two minds if to let the MR be done without my ADHD diagnosis report, and then present this at appeal. I guess if DWP want it they could always ask (doubt they would) but as they largely ignored my Autism diagnosis report and my Occupational Health report , then I don't see them reading 26 pages for the MR.
Thankfully I think the ADHD report is really well written and details my functional difficulties and accompanying anxieties - which are also mentioned in the documents already submitted with the original application
Anyway, look forward to any advice on whether to withhold the ADHD report from MR, but submit when I need to appeal (which I think will be needed) vs submitting the report for the MR
I sent the MR form on Monday morning and that's now been confirmed by DWP who texted today to say up to 15 weeks. I actually was only recently diagnosed with ADHD 4 wks ago, and received the full 26 page report (which I was told would take 6-8 weeks) on Tuesday, so after the MR form has been sent - as I was just trying to get the thing out of the way before the 1 month deadline they gave me.
I'm in two minds if to let the MR be done without my ADHD diagnosis report, and then present this at appeal. I guess if DWP want it they could always ask (doubt they would) but as they largely ignored my Autism diagnosis report and my Occupational Health report , then I don't see them reading 26 pages for the MR.
Thankfully I think the ADHD report is really well written and details my functional difficulties and accompanying anxieties - which are also mentioned in the documents already submitted with the original application
Anyway, look forward to any advice on whether to withhold the ADHD report from MR, but submit when I need to appeal (which I think will be needed) vs submitting the report for the MR
Please Log in or Create an account to join the conversation.
- LL26
- Offline
Less More
- Posts: 1599
3 days 9 hours ago #312151 by LL26
Nothing on this board constitutes legal advice - always consult a professional about specific problems
Replied by LL26 on topic Neurodivergent PIP Decision - 0 points
Hi Chill-E,
Since you only sent the MR in on Monday, there is every possibility that if you sent in the extra report now, then the 2: would marry up. I never know entirely how DWP makes decisions, but there is every chance that the additional evidence will sway the decision in your favour, especially if this s positive report. I would therefore send it now, but do keep a copy. Then in a week or so time, phone DWP and check they have received this and ask that this is considered as part of the MR. Make sure you put name and NI number on all pages. You can mark the letter 'additional evidence for Mandatory Reconsideration'.
I hope this helps.
LL26
Since you only sent the MR in on Monday, there is every possibility that if you sent in the extra report now, then the 2: would marry up. I never know entirely how DWP makes decisions, but there is every chance that the additional evidence will sway the decision in your favour, especially if this s positive report. I would therefore send it now, but do keep a copy. Then in a week or so time, phone DWP and check they have received this and ask that this is considered as part of the MR. Make sure you put name and NI number on all pages. You can mark the letter 'additional evidence for Mandatory Reconsideration'.
I hope this helps.
LL26
Nothing on this board constitutes legal advice - always consult a professional about specific problems
The following user(s) said Thank You: denby, Invisible, Chill-E
Please Log in or Create an account to join the conversation.
Moderators: Gordon, latetrain, BIS, Catherine12345, Chris, David, Keely, Jasmine