ME, Fibro and Pots and GP's factual report

Hi,

I've just been reading in your guide and it says, "If you are making a claim for PIP then you should consider talking to your GP about any of the issues below that are relevant to your claim" referring to the GP's factual report. I haven't seen my Doctor for over six years and when I did he demonstrated that he didn't understand what ME was at all. I'm not sure what to do, he doesn't know anything about my life and my limitations. I'm worried that even if I can get to see him it's possible he'll write nonsense on the report because he doesn't understand ME. Am I better off not seeing him? And advice would be very much appreciated. I've been badly gaslit by medical professionals in the past and the thought of it makes me panic.

Many thanks

My advice is go for writing a diary as per B&W suggestions. I was really surprised in a good way by how much weight they gave to one for our daughter. I compiled it myself as she'd never have managed it herself, by attempting to call her daily and noting the reply, no reply, depressed reply, etc. I typed it up in a table with the dates on the left column. She has CFS and fibro, couldn't get a POTS diagnosis though has the symptoms, so quite like you, does have Ehlers Danlos .diagnosis.

Thanks Gary

Hi, I also have ME so I am aware of the level of ignorance among some health professionals although there are also good ones. I would suggest that you look at the action for ME website, you’ll see that there are health professionals who can help. If you can book an appointment with their doctor (online/phone I think) they will provide you with a report. I don’t know if you have a tight time deadline, but if you don’t this might be an option for you.