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PIP appeal no GP evidence
- Shelleljay
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3 days 12 hours ago #312466 by Shelleljay
PIP appeal no GP evidence was created by Shelleljay
Just want to say first really sorry for the long post. Just that really. Was awarded zero for everything on initial assessment and MR. I'm 40 and had stroke age 32. I'm left with homonymous hemianopia (blind spot in both eyes on left hand side so nearly half vision in both eyes. I've suffered with migraines for as long as I can remember (was told 4 times I went to a&e for the stroke that I was having a migraine even though I categorically told them it wasnt I knew was a stroke hence no clot busting drug which is why I've been left permanently partially sighted). I have anxiety and depression since before the stroke been on antidepressants for nearly 20 years but both got worse after the stroke. I work 30 hours a week but after stoke job was adapted to suit my needs, I wfh apart from 1 day a month I have to go into the office. I can work when I want as long as my works done so if I have a bad migraine I can make up the lost hours a few days later or at night or over the weekend. Before the stroke and the year after I used to be in the doctors every week with migraines, head and neck pain and palpitations and chest pain (after stroke tested heart and realised i have PAT which is basically really fast resting heartrate that can spontaneously happen when at rest). I would say for the first year I was coping, the past 7 years it's got worse and worse to where I don't leave the house other than the 1 day in the office and I get a taxi there and back as I'm now to anxious to go by bus because of my vision. Ive not been out socially or been on holiday since the stroke because i dont like to be around people or strange places. I have daily cuts and bruises from bumping into things. I never go to my doctors mainly for the past 7 years other than yearly mot and my repeat meds because I honestly don't trust them. Every issue I had I was repeatedly told its nothing, I'm young blah blah, then after the stroke and heart it was well you look good and it could have been worse. So DWP are focusing on the fact I work even though I've told them of adjusted role and schedule around my worse days and the fact I haven't seen GP regarding how bad my anxiety has got but on appeal I explained my reluctance to see the GP as I don't feel it would go anywhere beyond meds which I'm already on. Can anyone give any advice for my response to PIP bundle basically their assumption because I work and haven't had recent GP input is I must be fine but I am far from and struggling to cope but silently. So much more but I'm aware this post is really long. Only GP evidence i have is from 8 years ago which is diagnosis of stroke, eye test, partially sighted certificate and repeat meds list plus a few messages to docs regarding bad migraines and head pain, palpitations then nothing for the past few years other than med reviews. Case law states medical input doesn't determine the severity of conditions as some people don't seek treatment (me). I don't have no friends to corporate anything buy my 18 year old daughter wrote a statement and i done a 2 week diary but didnt make a difference at MR. Really Sorry it long but I'm desperate and my submission needs to be in in the next few days
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- LL26
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1 day 14 hours ago #312493 by LL26
Nothing on this board constitutes legal advice - always consult a professional about specific problems
Replied by LL26 on topic PIP appeal no GP evidence
Hi Shelleljay,
No worries about the long post, sometimes we need to know all the information so we can give you more detailed advice.
DWP have several 'stock phrases' they use as excuses - working and not seeing GP are 2 of these! Firstly there is no law preventing disabled people working and claiming PIP. Secondly, many people who have long term illness seldom see their GP - there's no available appointments anyway, and unless your health changes or the meds no longer work, I suspect you just tick the repeat prescription box and never get to see it need to see the doctor!
Here are some ideas to consider
1. What is your job? If this is computer based do you need expanded text or sone sort of overlay etc? Compare and contrast what you used to do with what you actually do now. What other 'reasonable adjustments' are made?
2. You are partially sighted - Have you seen an optician or hospital eye doctor recently - could they have an updated report, or alternatively get an optician appointment or even pay privately for a consultant and ask for a report?
Although you haven't seen your GP recently you could ask for an appointment to discuss your health. You could ask for a report or failing that get a copy of your GP notes. Maybe generally it is about time for a medicines review?
3. What is your medication - you can look up bnf.nice.org.uk/ this will tell you about your dose etc. This will inform you of whether you have the highest dose or not. Clearly a very high dose indicates a serious medical condition. Maybe you can't take a higher dose due to allergy or side effects - then say this. If you only take the lowest dose available you don't need to refer to this, but it is always good to know.
4. You may have already done this, but have a rethink about the descriptors - pay particular attention to the so-called reliability criteria - all 4 must be met
Safety
Acceptable standard
Reasonable time
Repetition
I'll throw some suggestions out -
Cooking etc Poor eyesight - safety in the kitchen , using knives etc, carrying hot pans, being around hot liquids? Can you see the cooker dial, can you see to ascertain if food is cooked? How predictable are the migraines? Do these make you blackout - could you black out in the kitchen? (It's about the possibility and consequent risk if you fall or scaled self etc )
Eating etc - Do you have trouble seeing things to grip them, eg cup of tea etc. Does food fall off the plate or fork if you can't see properly - this could lead to scalding etc (and may amount to not being 'acceptable' if you spill food around - also might indicate not a reasonable time if you take over twice the time of an able person.
Medication - can you see to read and or open the packets- safety issues if you can't. Maybe you need a dosett box and or someone to fill it?
Bathing - how safe are you? Can you see to get in/out? Again blackouts with migraines? Blood pressure issues?
Toileting - unless you have incontinence issues, then actually sitting down or rising might require a grab rail etc if you are unsteady for any health reason.
Dressing - can you see to do up buttons etc( Problems with bending?
Reading - do you use large text, magnifier etc, do you miss words out because you don't see them and therefore guess. Do you use text to voice apps? Think about reasonable time.
If you struggle to read does this cause issues with letters etc and budgeting? Do you any any problems eg entering Pin numbers - maybe you get timed out?Perhaps you use alternative ID types? Even if you don't use these things I've suggested, under this it other descriptors, is it reasonable for you to use these?
Mobility - it probably isn't safe for you to go on any journey (familiar or unfamiliar) with someone with you? Do you need to use a white stick (orientation aid) ? If you are constantly bumping into things, this suggests that you have a great propensity to hurt yourself and perhaps fall. Clearly if you fall outdoors you can hurt yourself very badly and worst still get hit by a car. This indicates a risk of substantial harm which comprises the safety criteria.
Think also if your walking causes increased heart problems, pain or even induces migraine.
In terms of the migraine, if you are unwell and need to go to bed, then there is a strong argument that you can't do anything safely etc for yourself during these times - this could apply to all relevant descriptors. Particularly so if migraines are often, or you need to lie down to prevent the headaches.
Acceptable standard also includes pain - if you have a significant amount of pain doing a descriptor activity, it is likely that this won't be 'acceptable'. For example any walking done with a reasonable amount of pain IS discounted, so this could mean although you can physically walk some way legally for PIP your distance could be zero
All the descriptor activities have to be done repeatedly across the whole day, as required.
This could mean preparing 3 or 4 meals a day. Eating and drinking several times during the day. Toilet 4 times more if incontinent etc etc
If you regularly can't manage a normal/usual amount of repetitions or avoid trying because it's too difficult due to pain, stamina, breathlessness, poor eyesight etc etc then this indicates you either need some sort of help or actually 'cannot' do the descriptor activity.
These are a few pointers as to things to consider to expand on why you you can't do the activities and should be awarded points.
I hope this helps.
Let us know how you get on.
LL26
No worries about the long post, sometimes we need to know all the information so we can give you more detailed advice.
DWP have several 'stock phrases' they use as excuses - working and not seeing GP are 2 of these! Firstly there is no law preventing disabled people working and claiming PIP. Secondly, many people who have long term illness seldom see their GP - there's no available appointments anyway, and unless your health changes or the meds no longer work, I suspect you just tick the repeat prescription box and never get to see it need to see the doctor!
Here are some ideas to consider
1. What is your job? If this is computer based do you need expanded text or sone sort of overlay etc? Compare and contrast what you used to do with what you actually do now. What other 'reasonable adjustments' are made?
2. You are partially sighted - Have you seen an optician or hospital eye doctor recently - could they have an updated report, or alternatively get an optician appointment or even pay privately for a consultant and ask for a report?
Although you haven't seen your GP recently you could ask for an appointment to discuss your health. You could ask for a report or failing that get a copy of your GP notes. Maybe generally it is about time for a medicines review?
3. What is your medication - you can look up bnf.nice.org.uk/ this will tell you about your dose etc. This will inform you of whether you have the highest dose or not. Clearly a very high dose indicates a serious medical condition. Maybe you can't take a higher dose due to allergy or side effects - then say this. If you only take the lowest dose available you don't need to refer to this, but it is always good to know.
4. You may have already done this, but have a rethink about the descriptors - pay particular attention to the so-called reliability criteria - all 4 must be met
Safety
Acceptable standard
Reasonable time
Repetition
I'll throw some suggestions out -
Cooking etc Poor eyesight - safety in the kitchen , using knives etc, carrying hot pans, being around hot liquids? Can you see the cooker dial, can you see to ascertain if food is cooked? How predictable are the migraines? Do these make you blackout - could you black out in the kitchen? (It's about the possibility and consequent risk if you fall or scaled self etc )
Eating etc - Do you have trouble seeing things to grip them, eg cup of tea etc. Does food fall off the plate or fork if you can't see properly - this could lead to scalding etc (and may amount to not being 'acceptable' if you spill food around - also might indicate not a reasonable time if you take over twice the time of an able person.
Medication - can you see to read and or open the packets- safety issues if you can't. Maybe you need a dosett box and or someone to fill it?
Bathing - how safe are you? Can you see to get in/out? Again blackouts with migraines? Blood pressure issues?
Toileting - unless you have incontinence issues, then actually sitting down or rising might require a grab rail etc if you are unsteady for any health reason.
Dressing - can you see to do up buttons etc( Problems with bending?
Reading - do you use large text, magnifier etc, do you miss words out because you don't see them and therefore guess. Do you use text to voice apps? Think about reasonable time.
If you struggle to read does this cause issues with letters etc and budgeting? Do you any any problems eg entering Pin numbers - maybe you get timed out?Perhaps you use alternative ID types? Even if you don't use these things I've suggested, under this it other descriptors, is it reasonable for you to use these?
Mobility - it probably isn't safe for you to go on any journey (familiar or unfamiliar) with someone with you? Do you need to use a white stick (orientation aid) ? If you are constantly bumping into things, this suggests that you have a great propensity to hurt yourself and perhaps fall. Clearly if you fall outdoors you can hurt yourself very badly and worst still get hit by a car. This indicates a risk of substantial harm which comprises the safety criteria.
Think also if your walking causes increased heart problems, pain or even induces migraine.
In terms of the migraine, if you are unwell and need to go to bed, then there is a strong argument that you can't do anything safely etc for yourself during these times - this could apply to all relevant descriptors. Particularly so if migraines are often, or you need to lie down to prevent the headaches.
Acceptable standard also includes pain - if you have a significant amount of pain doing a descriptor activity, it is likely that this won't be 'acceptable'. For example any walking done with a reasonable amount of pain IS discounted, so this could mean although you can physically walk some way legally for PIP your distance could be zero
All the descriptor activities have to be done repeatedly across the whole day, as required.
This could mean preparing 3 or 4 meals a day. Eating and drinking several times during the day. Toilet 4 times more if incontinent etc etc
If you regularly can't manage a normal/usual amount of repetitions or avoid trying because it's too difficult due to pain, stamina, breathlessness, poor eyesight etc etc then this indicates you either need some sort of help or actually 'cannot' do the descriptor activity.
These are a few pointers as to things to consider to expand on why you you can't do the activities and should be awarded points.
I hope this helps.
Let us know how you get on.
LL26
Nothing on this board constitutes legal advice - always consult a professional about specific problems
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- Shelleljay
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1 day 11 hours ago #312497 by Shelleljay
Replied by Shelleljay on topic PIP appeal no GP evidence
Thankyou for the reply. This whole process is such an ordeal I feel so sorry for disabled people who have it worse than me and have to fight.
I have a question re the submission response to the dwp bundle.
So after the initial award of zero points and I requested the assessment report, there were lots of ommission and misinterpretations of what I said etc, most of which I addressed in my MR, but there are more on the bundle I recd from dwp of what they have assumed or blatantly lied about etc.
My question is, in my response to the bundle is it basically for me to address the incorrect assumptions on the bundle or do I need to go through all the descriptors again?
I feel I need to addresses all the assumptions made. For example the bundle says 'works 30 hours with no adaptations and has no issues traveling alone to an unfamiliar place'. I told the assessor I work 30 hours in a role adjusted to meet my needs, I now work from home and my role was changed to a non time sensitive role to avoid stress and can work when I want, i no longer answer external phone calls etc, and I said i absolutely would never travel alone to an unfamiliar place.
Also dwp said 'takes medication daily' where i actually said i miss days either because of forgetfullness/deppressive days where my daughter will tell me I need to take my meds or during a migraine where my daughter will tell me to take my meds and physically hand me my meds. There are around 20 of these in the bundle that I feel I should address in my response.
Is this what they mean by if I have a response to the bundle? Thanks
I have a question re the submission response to the dwp bundle.
So after the initial award of zero points and I requested the assessment report, there were lots of ommission and misinterpretations of what I said etc, most of which I addressed in my MR, but there are more on the bundle I recd from dwp of what they have assumed or blatantly lied about etc.
My question is, in my response to the bundle is it basically for me to address the incorrect assumptions on the bundle or do I need to go through all the descriptors again?
I feel I need to addresses all the assumptions made. For example the bundle says 'works 30 hours with no adaptations and has no issues traveling alone to an unfamiliar place'. I told the assessor I work 30 hours in a role adjusted to meet my needs, I now work from home and my role was changed to a non time sensitive role to avoid stress and can work when I want, i no longer answer external phone calls etc, and I said i absolutely would never travel alone to an unfamiliar place.
Also dwp said 'takes medication daily' where i actually said i miss days either because of forgetfullness/deppressive days where my daughter will tell me I need to take my meds or during a migraine where my daughter will tell me to take my meds and physically hand me my meds. There are around 20 of these in the bundle that I feel I should address in my response.
Is this what they mean by if I have a response to the bundle? Thanks
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- Shelleljay
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1 day 11 hours ago #312498 by Shelleljay
Replied by Shelleljay on topic PIP appeal no GP evidence
Sorry I forgot one of the ones that really annoyed me, they said 'no safety incidents apart from one I was 4 years ago I was in hospital for and no incidents since' I told them about the incident I went to hospital for 4 years ago and told then I have incidents daily since by walking into open cupboards, bumping and tripping into things I cant see, car slamming on brakes as I've not seen the car. I have constant bruises and cuts but all have been treatable at home and not needed hospital treatment.
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- LL26
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12 hours 7 minutes ago #312511 by LL26
Nothing on this board constitutes legal advice - always consult a professional about specific problems
Replied by LL26 on topic PIP appeal no GP evidence
Hi Shelleljay,
In an appeal response I normally have 3 sections. First a paragraph about your health background. So, for you, the stroke, how it started, when etc. What's changed, any surgery or other treatment etc. This is your story. Think if it as describing your health to a close friend. Pretend you are talking. Write down what you would say.
Here's an example.
"I used to be so lively, out to choir, driving and going to art class. I don't do these now. It is so frustrating I hate being like this. Even watching TV is so difficult. I use the audio description this helps..."
The next section is a brief, yes brief, criticism of DWP assessment report and decision. What you need to do is to sit down with a piece of paper and formulate 4 or 5 bullet points that sum up the problems of the assessment report. So, eg one of these could be that the assessor misunderstood what was said and or failed to record what was said. You then provide an example of each - For example The Assessor has incorrectly recorded that I do not have any reasonable adjustments at work. I said this 7 times.
Keep it snappy. Things I have previously included are
• the assessor was rude and kept overtalking
• the assessor did not appear to understand my health conditions. He is shown as being a paramedic - and therefore does not appear to have any specialist mental health training
• there are many comments made in the report that clearly are not relevant to me. I do not walk to my mother's house each week as sadly my mother passed away 11 years ago.
• there are many inconsistencies and contradictions in the assessment report. (Eg....)
• the assessor has not considered safety and the substantial risk of injury I have whilst completing descriptor activities
• there are many spelling and grammatical errors, and some sentences do not make sense. For example 'claimant drives but hasn't cooking.' These errors confirm a lack of attention and may well explain why there are inconsistencies and incorrect answers.
You can then add another sentence saying as appropriate eg due to the incorrect answers and the manner of the assessment the report should not have been relied upon by DWP who have simply followed the report despite overwhelming evidence to the contrary.
Don't call the assessor a liar - you can't prove this. Also, using the bullet points gives enough criticism. If you nitpick everything, whatever valid comments you make will get lost or the decision maker will just stop reading if he has received a 60 page waffle about the assessment.
3rd part. Go through each descriptor as I've stated in the previous post. Here you can have a slightly more in depth and focussed criticism of the report/decision and explain what is incorrect/ignored etc and the real nature of your disability and the correct points.
I hope this helps.
LL26
In an appeal response I normally have 3 sections. First a paragraph about your health background. So, for you, the stroke, how it started, when etc. What's changed, any surgery or other treatment etc. This is your story. Think if it as describing your health to a close friend. Pretend you are talking. Write down what you would say.
Here's an example.
"I used to be so lively, out to choir, driving and going to art class. I don't do these now. It is so frustrating I hate being like this. Even watching TV is so difficult. I use the audio description this helps..."
The next section is a brief, yes brief, criticism of DWP assessment report and decision. What you need to do is to sit down with a piece of paper and formulate 4 or 5 bullet points that sum up the problems of the assessment report. So, eg one of these could be that the assessor misunderstood what was said and or failed to record what was said. You then provide an example of each - For example The Assessor has incorrectly recorded that I do not have any reasonable adjustments at work. I said this 7 times.
Keep it snappy. Things I have previously included are
• the assessor was rude and kept overtalking
• the assessor did not appear to understand my health conditions. He is shown as being a paramedic - and therefore does not appear to have any specialist mental health training
• there are many comments made in the report that clearly are not relevant to me. I do not walk to my mother's house each week as sadly my mother passed away 11 years ago.
• there are many inconsistencies and contradictions in the assessment report. (Eg....)
• the assessor has not considered safety and the substantial risk of injury I have whilst completing descriptor activities
• there are many spelling and grammatical errors, and some sentences do not make sense. For example 'claimant drives but hasn't cooking.' These errors confirm a lack of attention and may well explain why there are inconsistencies and incorrect answers.
You can then add another sentence saying as appropriate eg due to the incorrect answers and the manner of the assessment the report should not have been relied upon by DWP who have simply followed the report despite overwhelming evidence to the contrary.
Don't call the assessor a liar - you can't prove this. Also, using the bullet points gives enough criticism. If you nitpick everything, whatever valid comments you make will get lost or the decision maker will just stop reading if he has received a 60 page waffle about the assessment.
3rd part. Go through each descriptor as I've stated in the previous post. Here you can have a slightly more in depth and focussed criticism of the report/decision and explain what is incorrect/ignored etc and the real nature of your disability and the correct points.
I hope this helps.
LL26
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12 hours 5 minutes ago #312512 by LL26
Nothing on this board constitutes legal advice - always consult a professional about specific problems
Replied by LL26 on topic PIP appeal no GP evidence
Hi Shelleljay
....yes falls, stumbles, collisions are all important. You could do a 'survey' for a week or two. Note all the times this sort of thing happens. It could make for an interesting read!
LL26
....yes falls, stumbles, collisions are all important. You could do a 'survey' for a week or two. Note all the times this sort of thing happens. It could make for an interesting read!
LL26
Nothing on this board constitutes legal advice - always consult a professional about specific problems
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