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Hope for DLA and Fibromyalgia

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13 years 3 months ago #65002 by chicken007
Hope for DLA and Fibromyalgia was created by chicken007
Just wanted to give everyone who is suffering from fibromyalgia and is stressed out about DLA some hope.
I spent weeks worrying about my renewal as previously I had received DLA for rheumatoid arthritis but my diagnosis was changed by a new consultant to fibromyalgia. I really thought I would not get it renewed but spent a lot of time reading through the guides and gathering medical evidence.
Only 2 weeks after I sent back the forms I received a letter back to say I had been awarded High Rate Care and Mobility for 5 years!!
I still cannot believe it but am so grateful to all the advice I have read on this site. Thank you very much.

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13 years 3 months ago #65006 by terdun9
Replied by terdun9 on topic Re: Hope for DLA and Fibromyalgia
Hi there Chicken
congrats on your renewal and wow five years your so lucky it was done with no problems. i have just been award high M and middle C but 3 years it seem to Valry so much from place to place as to how-long people seem to get don't know why.
well done again Jacqui

To Much Pain Will Kill Y ou In The End

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  • Dee
13 years 3 months ago #65010 by Dee
Replied by Dee on topic Re: Hope for DLA and Fibromyalgia
Hi, just read you comments, I agree with you it seems it does vary. I live in Suffolk and I suffer from ME, CFS, Fibromyalgia, chronic back pain, depression, I had to go to appeal. It was taken out of the appeal at the 11th hr and they awarded me high rate mobility and low rate care, indefinitely (what ever that means, until the feel I have to apply again, as they have changed rules).

I was receiving high,high. Nothing had changed for the better, they had got a whole lot worse. The Dr who visited me put in his report that his conclusion was that I was understating what I could really do. How do you fight these so called professionals, they should report facts not there one thoughts. He was here for less than an hour. How did he know what I could do or not do. They don't see you when you are crying because you are in so much pain you can't even stand. At the moment I am putting up with everything and trying to be positive and live my life, it get to the point that the care component is need, but If I appeal again I could loose mobility. That's more important as I need transport. I am tired of fighting. I need to be positive and live, at 47 I would have been at management level in my old job. Do they think we want to be as we are?

It makes you feel angry, but they do it for money?, where is their compassion for people in distressing situations!.

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