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PIP with CSVD 11 months 2 weeks ago #200334

Hi and many, many thanks for providing such a great resource :)

Tried to complete the online PIP assesment test and I can't help but think it is very biased towards people with physical disabilities. I'm completely mobile in a physical sense, it's my brain that struggles?

Some examples;

Q1. Preparing Food - Yes I can cook food, but I often burn it and my hands, I'm don't have anyone to supervise me, as my wife is physically disabled and the children are too young to cook themselves?

I burn the food because I forget it's in the oven (even with an alarm) and my hands because I forget the tray is hot - have a blister on my index finger, cos I did this tonight.

Oh btw I have Cerebral Small Vessel Disease, I'm only 51 now and 49 when diagnosed, but it started when I 47, according to the consultant it's likely to develop into dementia later on down the line - although I've not been told officially, many sources describe CSVD as vascular dementia.

Anyhow, I get many symtoms, but by and large I'm mainly affected by problems with memory, for example, I've forgotten our wedding and the children being born :(, but can remember peoples names from school when I see them after many years. Short term memory is diabolical, more than two things on a mental shopping list and I forget everything, its all lists, lists, lists for me.

I think the point I'm trying to make and the question, is that while I can do most things on the example PIP test, the problem is remember to do them well, I often forget to take my medication, probably 3 - 4 times per week.

Re: Toilet, sorry for the following!! Have no problem going, but I often forget that I've gone and don't wipe.

Re: Communication, Often I say innappropriate things!

So yes I probably need supervision for most things, but don't have it so I'd be lying if I say I need supervising, hope that makes sense?

Just to say, really sorry for the basic questions, the family social worker advised that I apply for PIP, as I am struggling.

Best wishes and thanks in advance, Lee :)

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PIP with CSVD 11 months 2 weeks ago #200347


You are confusing the need for supervision and actually receiving it.

PIP considers whether the claimant has a need for supervision, they do not need to be receiving it to score points although you do need to explain what happens of you do not receive any, your post gives examples that you could use on the PIP2.

The following user(s) said Thank You: LeeM

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Nothing on this board constitutes legal advice - always consult a professional about specific problems

PIP with CSVD 11 months 2 weeks ago #200349

Thank you Gordon, found your very useful pdf doc on pip which said just that about supervision. The good news is that before joining I doubted I had a claim, spending a day on the site reading I'm now convinced I do, of course obtaining it is another thing, awesome site you have here.

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