Tired....

I'm a carer to OH last 28 years ..he's on DLA indefinitely, my health caught up with me 8 years ago, dx with Fibromyalgia, 3 types of Arthritis and all the rubbish that goes with it. I m tired. I'm a strong advocate for everyone , as an ex welfare rights worker, I enjoy helping, the challenge , the fight, challenging the injustice...then when it comes to fighting my own corner...I deflate, I'm tired of it all. over the years the DWp has gone from a department that was reasonable, contactable, rational and yes, yes, believe me, at times showed compassion.
It now Toxic at every turn. Since 2010 the hate and distress in my heart for this unjust department , has done two things, made me fight harder and have no fear of them...
then it comes to me.....
my PIP review is in .
My last review was sooooo toxic, they took me to the wore, phoning me the day before the Tribunal deadline and He seriously negotiating my lawful entitlement like it was something on Ebay.
I steeled up , and accepted what I considered is fair, and lawful.
the whole ordeal , sent me to a place I never want to go again. That part of personality is hidden from everyone, except my lovely husband , who is sooo ill. we both are such fighters.
in a nutshell ...please tell , the way forward with this review. I feel like just printing off all the 75 pages of the last review , and sending it to them to chew on, but since 2016, my life has closed in even further , its just naff, as much as I try , and all buckets of positivity I try to use, are empty. I m Tired. This process of survival on benefits is exhausting.
A little bit of sign posting how to deal with this review , with less stress , would be very much appreciated.
No apologies for my moaning . This is my reality of life with OH Strokes, Post stroke Central pain, heart disease, full metal jacket on his right coronary artery, his cognitive issues, that do my head in, the anxiety of avoiding blood clots, his random bleeding etc....along side this widespread Fibromyalgia, which is an evil cow tbh, obesity with spinal disease , pain , chronic fatique and dealing with depression.
I'm so tired.
thanks for letting moan here . x

And breathe....

I

Just sending love raindaisy

Parent to a fibro. CFS etc daughter on PIP
Know I should apply myself but keep ducking it due to knowing the trauma. [But started a diary... ]
Denby

I can only understand....I have several problems including a long history of chronic fatigue syndrome. Toxic? My ESA was stopped while I was waiting for an hospital letter as I had damaged my knee and could not straighten my leg an could not walk.

Phoned my 'work coach' and politely explained why I could not attend the interview.....she blurted back 'I don't believe you live in this country!'. I had never dealt with her before, and she was seething with anger. A complete lunatic. What followed was an interesting saga lasting 4.5 years. I finally won the dispute, but I was lucky, and I was forced to find endless ways to psyche myself up. So I think I completely understand when you say 'toxic'. I wish you luck.

Procastinating..rang dwp , asked for an extension. no problem. he was very particular about phone numbers. I said I dont use landline at all, but have one, prefer mobile. said he would change my preference. as soon as I put phone down, got a withheld call, i answered straight away as i was sitting right next to it, then the caller hung up. Im not usually paranoid, but testing testing 123...lol ...I'll request a paper review the thought of sitting on the phone for 2 hours , im not i can be polite for that long! Thank you , this website is awesome, and all the work you put in , is so valuable ...i will just plod on with this not fit for purpose exercise .