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Question about Hypermobility and Stand then Move for Mobility

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1 year 11 months ago #276632 by Waxwing
Hello

I have two questions please about Mobility and Hypermobility.

1.) I am assisting my brother with the preparation of a claim for PIP and we are a little confused about the "Can stand and then move" section of the descriptors. He suffers from severe spinal osteoporosis and has kyphoscoliosis of the spine and when he stands his back gives a audible crack and he is in significant pain after this happens. I have looked on the Citizens advice website about moving around and it says about standing "This question is about how your condition makes it difficult for you to: stand safely without help" My question is should my brother give detailed information about the problems he has standing because of the severety of his osteoporosis and kyphoscoliosis and the pain he has when he does this?

2.) He has very recently has an assessment from a Genetics Consultant because he is being tested for a rare hereditary genetic disorder and connective tissue disorder including EDS (Ehlers-Danlos syndrome) on his letter he had from the consultant it explains that he has hypermobility in his joints (which explain why he has a good range of movement but is still in significant pain and discomfort) I found a article on Ehlers-Danlos Support UK who claim to be "EDS UK is a professional member of the organisation Benefits and Work" www.ehlers-danlos.org/support/benefits-a...ities/help-with-pip/ and there article about hypermobility that can be found here www.ehlers-danlos.org/news/eds-uk-partic...in-pip-consultation/ is a consultation with CAPITA about EDS and Hypermobility. My brother does not have an official diagnosis for EDS but he has been assessed as having Hypermobility in his joints. Would it be advised to include that article with his PIP claim and for him to mention on Question 15 of the PIP2 that he has hypermobility and that he is being tested for EDS amongst other problems and to refer to that article for more information to back up his claim.

Sorry for the long winded questions and I appreciate your advice.
Thank you in advance for your time and assistance.
Kind Regards
Waxwing

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1 year 11 months ago #276645 by BIS
Hi Waxwing

After all this time, you should know there is no need to apologise for your posts' length. You write what you need to say, and we're always happy to read.

I absolutely would give detailed information about his back conditions and emphasise the amount of pain he is in and the impact of that. Remember, he cannot stand as people without the condition do. It's also important to remember the person reading it probably has no knowledge of any of them - so state it all. Include information throughout the form where the hypermobility issue is relevant because he already has a confirmed diagnosis

I would also give the information on EDS on question 15 as you have said and explain why you have included it.

Good luck

BIS

Nothing on this board constitutes legal advice - always consult a professional about specific problems
The following user(s) said Thank You: Waxwing

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1 year 11 months ago #276664 by denby
Thank you Waxwing - and do let us know how it goes. When we first did daughter-with-EDS's PIP claim they refused to take a statement about EDs into account, which I always felt was wrong. We won on appeal anyway, so raspberry to the assessor for their attitude to the EDs document.
You have stirred me that I must insist the rheumatologist gives me evidence of my osteoporotic fractured vertebrae towards my claim, as well as the k****d knees.
Many thanks,
Denby
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1 year 11 months ago #276693 by Mollie
When I made my PIP application I went into great detail regarding standing up and getting ready to walk. I even described how when entering a room, I scan to find the most suitable chair to sit in and then get up from. Are the chairs too low/high, do any of them have arms, is there room for my crutches, is there a spare seat for my partner, is it close to where I will exit the room? These things are done in a couple of seconds but are preparation for standing.
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