Hi David,
Yes, I have I also spoke with Citizens Advice I have an appointment to see them next week, I have to take all my paperwork with me, and the lady assured me that they can not stop my benefit until there is a response back, so I’m gathering all the relevant information that I can, fingers crossed that they will be able to sort things out for me even it means going for an MR I will do that, as I refused for a black mark to be against my name! I have fought very hard for my condition to be recognised it has taken me years and I means years, for my voice to heard. Many, many thanks for all your help and assistance and to those who also replied too.
Kind regards,
Marie.