Benefits and Work has created a brief, anonymous questionnaire about the PIP cuts in which your answers will immediately be published online.  The one page survey is for anyone who currently gets PIP daily living without scoring any 4 point descriptors.

The purpose is to provide some of the evidence about who the cuts will affect and how, which the government is desperately trying to keep hidden from the public.

So please consider completing the survey.  It will allow, campaigners, researchers, journalists, MPs and ordinary members of the public to get a better understanding of who Labour is targeting as it tries to rush through these savage cuts.

In the survey you are asked not to give your real name or any name you routinely use online, in order to protect your privacy as your answers will be immediately published online.

There's more information and a link to the survey here.

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  • Thank you for your comment. Comments are moderated before being published.
    · 1 days ago

    https://petition.parliament.uk/petitions

    I have just voted on here, they need 100k signature's its only at 11k :(
  • Thank you for your comment. Comments are moderated before being published.
    · 4 days ago
    I didn't get to contribute😢
  • Thank you for your comment. Comments are moderated before being published.
    · 4 days ago
    Why was the petition closed so early? 
  • Thank you for your comment. Comments are moderated before being published.
    · 5 days ago
    Keir Starmer really does not like us and believes we are making a choice to evade work, so we get what we deserve. Labour know they won't get into power again and honestly don't care, because they are lining their own pockets with side hustles, so us protesting means absolutely nothing to them. The PIP cuts are getting a lot of attention and are bad, but tying PIP to LCWRA is unforgiveable.  Without LCWRA, you are deemed fit for any full time work. You lose your work allowance which is probably the biggest incentive to try work. And of course, you are down to living on £400 a month for the foreseeable, despite JSA/standard UC being deliberately not enough to live on long term to incentivise work. Its 3.4 million who will be pushed into absolute poverty, not 400,000. Starmer plans to waive the digital services tax from 2% to zero, which mainly benefits US owners like amazon, facebook, X/twitter, in order to get a tariff free deal with Trump. Raising it to 6% would mean no benefits are cut. 
  • Thank you for your comment. Comments are moderated before being published.
    · 7 days ago
    **The GOVERNMENT consultation I hasten to add… 
  • Thank you for your comment. Comments are moderated before being published.
  • Thank you for your comment. Comments are moderated before being published.
    · 7 days ago
    In the absence of a major Disabled Rights Movement, the future for disabled people is catastrophic.

    Other minority groups that were historically persecuted have created rights movements to protect themselves from discrimination.
  • Thank you for your comment. Comments are moderated before being published.
    · 8 days ago
    Wouldn’t be surprised that they have discussed bringing workhouses back, they seem happy too make the poorest people poorer, either kill us of earlier or lock us up for debt, as we are not moving forward & equal we are going backwards in time where only the elite & rich are welcome to a voice
    • Thank you for your comment. Comments are moderated before being published.
      · 7 days ago
      @Hellen I gave ‘Workhouses’ as one of my responses in the consultation… 

      Ditto the Assisted Dying Bill.. 
  • Thank you for your comment. Comments are moderated before being published.
    · 8 days ago
    I hope when/if the time comes Benefits and Work can set up a questionaire/database for people who lost their PIP because of the changes. They can describe their conditions/disabilities, and show what points they got. If we get a big enough data set of unfair decision making it may be useful. 
  • Thank you for your comment. Comments are moderated before being published.
    · 8 days ago
    B&W have done a good thing setting up this independent survey. The responses are so revealing and brave. Being told what people suffer and informed of the individual financial implications give a proper insight into the lived experience.

    We must all do our best to complete it as a way to submit our own personal impact statement in order to counter the government's bogus consultation which doesn't ask the right questions and so stands in the way of truth.

    If you possibly can, please also complete the government survey, steering away from their questions and giving your own answers.

    The government cannot be allowed to hide behind skewed statistics, pretence of savings and nonsense about changes in behaviour. They and the Work and Pensions Committee Green Paper inquiry should be faced with real cases, accounts from each of us of what we stand to lose.
  • Thank you for your comment. Comments are moderated before being published.
    · 8 days ago
    Labour were not elected 9 months ago on a manifesto pledge of impoverishing 400,000 disabled people.

    The UK is NOT a democracy.

    ▪Monarchy - anti-democratic.
    ▪Heriditary Lords - anti-democratic.
    ▪First-past-the-post system - anti-democratic.
    ▪Party whip system - anti-democratic.
    ▪Bait-and-switch manifestos - anti-democratic.

    The facts speak for themselves.
    • Thank you for your comment. Comments are moderated before being published.
      · 3 days ago
      @Democracy? Or Scam? Sadly its closer to 1.5 million, the 400k is just by 2029/2030 year.  But it will be more after that as the effect is gradual due to people not being affected until next review.
  • Thank you for your comment. Comments are moderated before being published.
    · 8 days ago
    I want to know how long it will be until the Right To Try comes into force.

    Until that comes into force, the risk of trying a job or self-employment far exceeds the reward.

    That is only good change they are proposing, and is only relevant for some of us.

    We really need the safety net of a continued LCWRA guarantee to be in place before we start work or self-employment.

    Until the Right To Try: No Reassessment guarantee is in active force, we cannot attempt anything, because if it doesn't work out, our survival is endangered.
    • Thank you for your comment. Comments are moderated before being published.
      · 1 days ago
      @Hellen I was knocked back for dla,I never received a penny,when pup came in I applied again, was rejected so appealed and was awarded low rate mobility,then I got sicker and was sent reassessment form,I never filled in the daily living part,I didn't see the point,when the assessor came to my house she told me I couldn't refuse the daily living part of the assessment, I just said I was too anxious to do it and I wanted her out as soon as possible as it was causing me extreme stress to have her in my home,we did the whole assessment and I was awarded higher rate on both components for 3 years,then on reassessment again they did a paper assessment and I was awarded ongoing not to be reassessed till after 2033,now I'm set to lose the lot,cont esa,pip with no 4 points on any category and the carers allowance my oh only got last May,what can I say?  That I won't be working no matter what happens because I'm incapable of it money or no money,,my medical retirement pension is £ 345 a month,cant live on that! I can tell you this though, all of this gas given me a nervous breakdown and I know I'm not the only one,they really don't care at all
    • Thank you for your comment. Comments are moderated before being published.
      · 3 days ago
      @Anon
      Sadly at least on paper the right to try isnt as good as the Tory proposal.

      The Tory proposal was no more WCA's at all combined with not being called in for one and getting fast tracked back to the benefit if the job failed for health reasons.

      Labour's idea is you can fast track back without an assessment but because WCA's will be resuming they havent promised it wont be held against you in your next WCA.
    • Thank you for your comment. Comments are moderated before being published.
      · 3 days ago
      @H I"m afraid it'll be self-employment, with all the attendant risks.
    • Thank you for your comment. Comments are moderated before being published.
      · 3 days ago
      @Scorpion This isn't about employers.

      If a disabled person tries work and finds out by the end of day 1 that they literally cannot do that work, then they have to quit and keep LCWRA with no risk of reassessment.

      It is as simple as that. Otherwise nobody will try work.

      Many large employers have a high employee turnover rate already and invest very little on day 1 or week 1 of hiring an employee.

      If a disabled person tries work, and at any point in time discovers that cannot continue that work, they should be able to return to LCWRA with no risk of reassessment.

      Any other arrangement does not de-risk trying work, perpetuates the welfare trap, and guarantees that no disabled people will even think about trying work.
  • Thank you for your comment. Comments are moderated before being published.
    · 9 days ago
    I injured my lower back at 18 & although I lived as normal life as possible I’ve had problems with pain & spasms for the most part. I’m also a victim of domestic violence for 12yrs. I’m out of that relationship. My back & anxiety I lived with for many yrs. I’m now 58. A couple of years ago, back symptoms increased as did my anxiety. 
    I got mental health help & was diagnosed with ptsd. I did talk therapy for months, but that timed out. I asked for an mri & was diagnosed with spondylosis on the area scanned. I’m taking medication for physical & mental health. I struggle with daily activities & mobility & after assessment, I was awarded standard living component but only scored 4 for mobility a am not paid that part. I’ll not go over everything here but will focus on the main thing that’ll affect me with the new 4 points. To start I need help with washing & dressing my lower body & need help getting in or out a bath. Both of these areas, where need help. If I try to get in the bath & while getting out the bath, washing & dressing my lower body, mostly it pulls on my back & causes very painful spasms. I then have to get diazepam from my dr to release the spasms. This can take 3-4day to ease the spasms. While I have spasms, I can barely walk, perhaps a few steps with a stick to the toilet. I cannot clean myself tho. I cannot walk more than a few steps. Can’t get up sit down easily. Can’t so or stand to cook. Cannot twist either way. I get 2 points for lower body & 3 for bath. So I’ll no be eligible for standard living pip. If they was to review the point & raise lower body care to 4 or the getting in or out the bath, then I’d be eligible for standard living. If the don’t raise this or cancel the 4 points idea, I’ll be left in such pain because of the spasms, that I’ll end up being entitled to the higher payment in living & mobility. Because I’m almost completely immobile with these spasms. It confuses me but I’m also anxious about losing this payment, which pay for help with my daily struggle to bath & dress. I cannot afford this care more than twice a week, on lower standard amount,  but it’s helped improve my mental well-being. I’d gladly work if possible, but by removing my pip, I’ll become more disabled. I truly hope the government reconsiders or perhaps looks into reviewing the points system, by upping some points. Importantly, I hope consider consulting on this issue, because they need to get it right. If rushed through, not only will this cause suffering to the vulnerable, eventually I’ll cost even more money. Like in my case. It needs to be addressed. I agree there’s many people exploiting the system, that must stop. But not by rushing it through parliament in a very hushed way. Or by punishing people in genuine need. Like In my case, where it would end up costing the government more. It will take me a long time to apply again. Leaving me in pain until I’m awarded even higher rate of pip. I’d rather the government took a little more time over this. I’d  stay in the lower payment than suffer painful spasms & not be mobile for months at a time. Just because the point system is wrong. Let’s hope the government actually realise they need to look in closer detail. 



  • Thank you for your comment. Comments are moderated before being published.
    · 9 days ago
    I have been assessed for PIP twice. Initial decisions saw me score none or very few points. MRs and I still didn't qualify. Yet at the tribunal stage I was successful both times, most recently getting enhanced rates for both components. Lucky enough to get 4 points for 1 activity both times at the appeal. But Holy Moly, it is stressful going through the process. 
    I will probably have to go through it all again when next assessed....
    Please if necessary, take your case to appeal and argue your opinion with as much vigour as possible, to get the result you are entitled to!
    • Thank you for your comment. Comments are moderated before being published.
      · 8 days ago
      @WorkshyLayabout It is to put people off of trying 
    • Thank you for your comment. Comments are moderated before being published.
      · 8 days ago
      @Blip! Having been told I was entitled to 0 points So no PIP AT at all I took my claim to appeal and I then became entitled to higher for both parts last time So it is always worth an appeal The stress is always off the chart
    • Thank you for your comment. Comments are moderated before being published.
      · 9 days ago
      @Blip! If the assessor were to assess a person correctly, there would never be the need for a mandatory reconsideration and a tribunal. The whole process is made as deliberately long winded and as difficult as it can be. 
  • Thank you for your comment. Comments are moderated before being published.
    · 9 days ago
    I have just listened very carefully to Liz Kendall's reply to the questions after announcing the cuts, definitely says that people who are too sick to work will not be reassessed. So, the question is who is deemed to ill to work and when will she release the criteria for this status?
    • Thank you for your comment. Comments are moderated before being published.
      · 5 days ago
      @Kevin1342 The bar is going to be set very high. It really means people with a terminal illness or people who would need residential care if they were not cared for at home. Severe learning disabilities really or lacking mental capacity/needing an appointee
  • Thank you for your comment. Comments are moderated before being published.
    · 9 days ago
    I am deaf both ear since birth, no hearing aids cos they no benefits to my need. I scored 8 points in communcation in daily living and 10 points in planning and journey in mobility.

    I am very distressing - will I get PIP under new 4 points?
    • Thank you for your comment. Comments are moderated before being published.
      · 2 days ago
      @Cmjdexter Is that if you are assessed before new changes or also that you can continue LCWRA if you currently claim but DON’T have an assessment before changes?

      It’s so confusing. Surely they realise a lot of us find it difficult to absorb info. Seems like they were already setting us up to fail when writing the Green Paper!!  
    • Thank you for your comment. Comments are moderated before being published.
      · 7 days ago
      @Anon A I too am on the new style ( cbesa) and l have learned something from Disability Rights on this issue.
      As long as you are still deemed unfit for work on your next assessment, you will continue to be paid.
      I believe that the PIP assessment will be used though FROM Nov 2026 to decide the outcome.
      And that’s the sticky part.
      I wish you well 
    • Thank you for your comment. Comments are moderated before being published.
      · 7 days ago
      @Deaf Man I sure you will be fine, I cannot see how those points could be reduced. You have over 4 points in two descriptors.
    • Thank you for your comment. Comments are moderated before being published.
      · 8 days ago
      @Robin Hood That's my position, ongoing award and yet because its for mh ,they completely ignored my physical health problems, I feel I will not be in that group, I'm on cb esa as well,they're not going to keep paying that are they?
    • Thank you for your comment. Comments are moderated before being published.
      · 9 days ago
      @Deaf Man In your position if your disability will deemed to be on-going I gather that means you’re PIP will be a light touch meaning you shouldn’t be called in and on-going should be indefinitely.
  • Thank you for your comment. Comments are moderated before being published.
    · 9 days ago
    Hello, I have had a quick look at some of the forms that people have submitted, and I am grateful that they have. However, it would probably strengthen our cause further if we could get evidence from younger people (under 40) who currently receive PIP standard daily care for why it is important to them that the cuts do not go ahead. Also, as would be expected, most of those stating that they have physical disabilities are 50+. As I have mentioned before in other posts, my sensory impairments were present at birth. If possible, could B & W ensure that their forms are passed onto organisations such as Sense, cerebral palsy, spina biffida.  Many people with these conditions will have managed (often by sheer bloody mindedness) to live independent lives, but are the most likely to suffer from the cuts.  RNIB used to state that 50% of sight loss is preventable; not for those born congenitally sight impaired.  The prognosis for those, especially for something as dreadful as Battens syndrome, or Ushers, or until 1970, Rubella is pretty grim.
  • Thank you for your comment. Comments are moderated before being published.
    · 9 days ago
    Of all the replies to this, there are only about 2 people on Enhanced Daily Living who actually scored a 4 or more in one of the tasks. These replies paint a sad picture of people who are struggling very much with their illnesses and disabilities yet (in the eyes of the DWP) - just not struggling enough to score a 4. If this small survey is anything to go by, it is a VERY worrying indication of just how many people will lose PIP because of the intended 4 point rule. I hope there can be a legal challenge over it because the new intended 4 point rule is deliberately setting up claimants to fail because the goalposts will have been moved.
    • Thank you for your comment. Comments are moderated before being published.
      · 8 days ago
      @Moose The DWP assessors always lie and water down the effect to which your illness is affecting your ability to do things. I was housebound and said I that the last time I had managed to even get out the house was two weeks ago and that I often had to return home as I couldn't even make ot down the street. The assessor said I can walk and get out 'most days'. Challenging this stuff is so stressful and they know many won't go out their way to challenge it as they're already struggling so much. This is how they rob you of points
    • Thank you for your comment. Comments are moderated before being published.
      · 8 days ago
      @Moose That's because B&W asked for people scoring under 4 points to complete the form.
  • Thank you for your comment. Comments are moderated before being published.
    · 9 days ago
    I can tell you one thing, if pip is cut then it’s going to push me out of work, pip allows me to stay in work and not have to suffer trying to work full time hours as being disabled I can’t work that long through the pain and disability. I have worked the past 15 years and had to reduce hours over time but I make sure I do my fair share, so instead of pip cuts getting more people into work it’s going to do the total opposite to the likes of myself and push me out of work into a worse position. PIP Is a lifeline for so many employed and unemployed, it’s a disgrace what is happening. 
    • Thank you for your comment. Comments are moderated before being published.
      · 9 days ago
      @John Well said John my wife is in the same boat she insist on working but after 5 hours that her lot for the rest of the day.
  • Thank you for your comment. Comments are moderated before being published.
    · 9 days ago
    Hi all, I have completed the survey. Let's hope common sense and justice prevails.
    I try to stay positive but as I've always told myself...they are the government, they can do want they like !  Despite so called consultations, they are just a formality, many decisions are already made. 
    But let's hope that the protests against these discriminatory and cruel changes have some impact and that disability organisations will also be listened to.

    We'll just have to deal with it when if and when it ever happens, but we won't be doing that alone. 



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