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Contact an All Party Parliamentary Group about the cuts

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As well as contacting your own MP about the proposed benefits cuts, you may be able to get your message to other MPs of all parties, if there is  an All Party Parliamentary Group (APPG) which covers your condition.

The race to try to persuade MPs that the Green Paper provisions will be a disaster for many claimants is likely to be a short one.

There are growing reports that Labour aim to introduce a bill in May and, if it certified as a money bill, the Lords will not be able to amend or delay it for more than a month, meaning the PIP and UC cuts could be  on the statute book by the end of July, ready to be implemented next year.

So, the more MPs who hear from claimants who are going to suffer real harm from the changes, the better.

APPGs consist of members of both Houses of Parliament, from all parties, who share an interest in a particular topic.  A number of these groups relate to different health conditions.

Weā€™ve listed some of the ones we think are most relevant below, but you can see a complete list of all APPGs here.

You should probably email the person listed as the Public Enquiry Point first and ask them to forward your concerns about the effects of the cuts to all members of the group.

As always, emails need to be polite and short enough that people will read them.  In this case, MPs should want to be informed about whether people with the condition they meet about are likely to be affected by the Green Paper cuts.

Acquired Brain Injury

Ageing and Older People

Autism

Brain Tumours

Carers

Deafness

Debt and Financial Inclusion

Dementia

Diabetes

Down Syndrome

Dyslexia

Eating Disorders

Endometriosis

Eye Health and Visual Impairment

Food Banks

Genetic, Rare and Undiagnosed Conditions

Health

Homelessness

Less Survivable Cancers

Liver Disease and Liver Cancer

Long Covid

Mental Health

Motor Neurone Disease

Multiple Sclerosis

Myalgic Encephalomyelitis (ME)

Obesity

Obstructive Sleep Apnoea

Osteoporosis and Bone Health

Parkinson's

Prostate Cancer

Respiratory Health

Special Educational Needs and Disabilities

Spinal Cord Injury

Suicide and Self-Harm Prevention

Usher Syndrome

Vascular and Venous Disease

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  • Thank you for your comment. Comments are moderated before being published.
    Haseya
    · 1 days ago
    There are people who are disabled who could work, if we lived in a society where people were supported. If Employers cared enough, and if they in turn were supported to support those who need supporting!! And there are people who are disabled that can't work, or can no longer work. There are a thousand and one ways in which disabilities affect people, and a thousand and one ways in which people need support, whether financially or otherwise.
    We don't live in a society where differences are embraced, never mind disability differences. And yet once again those of us with disabilities, who usually fall within the poorest in society, are punished and kicked and turned on, to claw back money that the governments themselves have spaffed up against the wall in one easy way or another.

    I do wonder if they will break the Tories record of lives lost to suicide etc because of their proposed cuts.
  • Thank you for your comment. Comments are moderated before being published.
    Julie
    · 10 days ago
    Know this isn't right area but can't find where to write but really worried anxious my review has been in since 31st Oct 2024 and still haven't got outcome it runs out in June so I cant use it for my needs after this date incase I get turned down with all the changes and have to pay back.. Just a very worrying time
    • Thank you for your comment. Comments are moderated before being published.
      Haseya
      · 1 days ago
      @Julie If it is coming close to the deadline, and they haven't finished your assessment, they will write to you with an extension. Don't worry, they won't just stop your payments, and to the best of my knowledge (in that I've never heard it before) you won't pay anything back because of how long it's taken them to deal with your review. If you're worried though give them a call.
  • Thank you for your comment. Comments are moderated before being published.
    Mysticalforce
    · 14 days ago
    Iā€™ve have severe fibromyalgia & mental health challenges. I struggle each day with chronic fatigue.Ā 
    care for my disabled 88 year old Mother, who has multiple chronic health conditions.Ā 

    I fear losing PIP & how I would financially cope, in the event that my beautiful & kind hearted Mother, passed away!


  • Thank you for your comment. Comments are moderated before being published.
    Gingin
    · 20 days ago
    Response received from The public contact for the Carers All-Party Parliamentary group today:

    Thank you very much for contacting me regarding your concerns about the Government's proposed reforms to the welfare system.

    I am so sorry to hear about the distress that this has understandably caused you and other carers. We have been contacted by lots of people in the past two weeks who have shared with us the impact that the devastating changes will have on them and their families.

    As Secretariat for the APPG on Carers, I have already suggested to the Chair of the Group, Anna Dixon MP, that we shortly hold a meeting to enable MPs and Peers who are Members of the APPG to discuss the proposals, and the impact they will have on carers like yourself, and the people you care for, in detail. I will also be sharing your email with Anna and other Members of the Group.

    In case you haven't seen - Carers UK issued the below statement following the Government's Spring Statement last week - as you will see, we said that the proposals were 'shocking' and 'shameful', and an 'unprecedented step in the wrong direction and must be swiftly rectified'. https://www.carersuk.org/press-releases/spring-statement-shocking-carers-benefits-cuts-are-a-first-in-decades/

    As a first step in fighting against these changes, Carers UK has produced a detailed policy briefing which outlines the proposals we are most concerned about, and the impact these will have on carers. You can see this here:
    https://www.carersuk.org/media/l2ua5lqd/carers-uk-briefing-on-pathways-to-work-green-paper-v27-03-2025.pdf

    We have also created a short survey to enable carers to tell us in detail about the impact the reforms will have on them and those they care for. We will use the results from this in the campaign we are running to oppose the reforms. If you would like to complete the survey, you can do so here: https://www.surveymonkey.com/r/2W82GT2

    We have also been working hard to secure media focus on the impacts the reforms will have on carers. Our Director of Policy and Public Affairs, Emily Holzhausen CBE, discussed the impact of the benefits cuts on carers on the Today Programme. You can also read about our concerns in The Guardian, The Independent and The Mirror.

    We are also calling on MPs to push back against the proposed changes. On Thursday last week, we worked with Steve Darling MP, Liberal Democrat spokesperson for Work and Pensions, who raised an Urgent Question asking the Government to make a statement on the impact on unpaid carers because of their proposals. You can watch the video here. The changes were also debated in the House of Lords. We will continue to work with MPs and Peers from all parties to raise awareness of how the proposed changes will have a huge impact on thousands of carers.

    Finally, I wanted to ask if you would be willing to speak to my colleague Grace (CCā€™d here) who works in our campaigns and media team. We are looking for people who would be willing to talk about the impact the changes would have on them in support of the campaign we are shortly going to be launching. We will of course completely understand if this isnā€™t something you would like to do, but if you would be interested in having an initial chat to explore this in more detail, please do not hesitate to contact either Grace or myself.

    I hope this is helpful and thank you again for getting in touch.
  • Thank you for your comment. Comments are moderated before being published.
    gingin
    · 20 days ago
    I have emailed the All Party Parliamentary Groups for Health, Carers, Debt and Financial Inclusion, Genetic, Rare and Undiagnosed Conditions and Poverty & Inequality, as follows:Ā 


    These proposals will plunge families like ours into poverty, and we will not be able to ameliorate our circumstances through work. Under these proposals, our household is likely to lose around Ā£900 per month, comprised of LCWRA, PIP daily living and Carerā€™s Element of UC.

    My husband, who has Myotonic Dystrophy, a progressive neurological disease, has significant daytime fatigue, frequent falls and swallowing difficulties, among other symptoms. Under PIP proposals he would be likely deemed ineligible for PIP Daily Living, as he would not currently score 4 points in one category. My husband is unemployable, due to the significant risk of choking or falling, as well as his daytime fatigue.

    I work part-time in a relatively low-paid NHS administrative job. As I have to care for my husband, I am unable to work full-time. I have calculated that if I were successful in gaining a more senior NHS role our financial position would be improved by Ā£12 per month in the first year, and our total income would in fact drop by Ā£300 per month in the third year.

    We are bringing up two daughters.

    The government has repeatedly said they are ā€˜putting disabled people at the heartā€™ of everything they do. But these proposals are only pulling the rug from under us, leaving us with nowhere to turn and nothing we can do to improve our financial outlook. No amount of support from a work coach will make my husband employable. What is more, we cannot even have our say, as the most important elements of the changes are not being consulted on.

    Family carers are doing a job that Social Care is unable to in these times, but these proposals are making that job near impossible to do.

    The headline loss average of Ā£1700 per year does not apply to my family. The loss would be far greater and I do not see how we would manage at all.

    I implore you to see that these proposals are draconian, that they are discriminatory against the long-term sick and disabled, and that they will cause devastation for families like us. I respectfully ask that you use your influence to oppose these changes.

    Yours sincerely,
  • Thank you for your comment. Comments are moderated before being published.
    Anji
    · 21 days ago
    Which APPG do you think is the most appropriate for ADHD? The autism one?
  • Thank you for your comment. Comments are moderated before being published.
    Matt
    · 22 days ago
    I have contacted Deafness, Eye Health/visual impairment, diabetes and Usher's syndrome (I have congenital Rubella Syndrome which has many of the features of Usher's, namely both sight and hearing loss).Ā Ā 
    • Thank you for your comment. Comments are moderated before being published.
      J
      · 15 days ago
      @Neil Cook My guess is it is people who became Deaf rather then those who were born Deaf, but this is just a guess
    • Thank you for your comment. Comments are moderated before being published.
      Matt
      · 16 days ago
      @Neil Cook Usher syndrome is a genetic malformation whereby new born babies have varying degrees of hearing loss, ranging from mild to profound. Their vision develops normally until puberty when they develop retinitis pigmentosa, an incurable, degenerative eye condition which first manifests itself with night blindness.Ā Ā 

      Rubella, on the other hand, will show up at birth with very obvious, large cataracts which will need urgent removal to enable visual development (when I was born in 1968 one had to wait until the age of five due to instrumentation before surgery could be performed). This will permanently impair vision due to the development of nystagmus. Hearing loss is the most common of the triad of Congenital Rubella Syndrome (followed by ocular malfunction and congenital heart disease, plus, sadly in many cases, quite serious cognitive issues).

      Hope this helps to explain why I contacted the parliamentary Ushers Syndrome group
    • Thank you for your comment. Comments are moderated before being published.
      Neil Cook
      · 21 days ago
      @Matt I'm curious what us contacted deafness? I know it's a hearing impairment but I've never heard of that type before
  • Thank you for your comment. Comments are moderated before being published.
    Les
    · 22 days ago


    Has any other veteran identified an anomaly concerning Veterans who receive either War Pensions Scheme (WPS) or Armed Forces Compensation Scheme (AFCS) due to injuries/illnesses incurred through military service depending on whether they were injured before or after April 2005.

    I am in receipt of a 100% War Pension due to injuries received in Iraq in 2004. Ā As a consequence on discharge I applied Ā for and qualified for Higher Rate of DLA/PIP. Ā However I believe veterans receiving PIP are disadvantage because they are subject to reassessment under the new rules. Those injured after April 2005 receive a different scheme called the Armed Forces Compensation Scheme (AFCS) and as a consequence can also receive the Veterans equivalent of PIP known as Guaranteed Income Payment (GIP). This is a lifetime payment with no reassessments and is administered by the Veterans Agency not DWP.

    In essence veterans injured in 2004 and before are thrown to the wolves of the DWP who have to experience of dealing with former members of the Armed Forces.
    • Thank you for your comment. Comments are moderated before being published.
      Mick
      · 11 days ago
      @Les
      Hi Les, I e been searching the Internet for any reference to Veterans in all of this mess.Ā  A few links below that I have found but, no reference directly to War Pensions as per usual, only mentions AFCS in one of them:





      Please do post and let us know if you get any answers from your MP or OFV.

      Cheers!
    • Thank you for your comment. Comments are moderated before being published.
      Les
      · 16 days ago
      @Mick Hi Mick. Ā Iā€™ve written to my local MP and the Office for Veterans. Ā Still waiting for responseā€¦ Wait out šŸ™ˆšŸ˜
    • Thank you for your comment. Comments are moderated before being published.
      Les
      · 16 days ago
      @sara Hi Sarah..Iā€™ve actually written to my MP and the Office for Veterans. Ā Still awaiting response. Ā Wait out šŸ™ˆ
    • Thank you for your comment. Comments are moderated before being published.
      Mick
      · 21 days ago
      @Mick
      Just to add, when I was dealing with the year and a half battle, I tried to direct and communicate everything through Amber Rudd, the DWP Work and Pensions minister at that time and also the Veteran's affairs minister Andrew Robathan.Ā  It changed part way through the whole thing and I think Ben Wallace then took over, followed later by Johnny Mercer.

      The response I got with the excuses and fobbing off about WP having other supplements in place of PIP came from Alok Sharma who was the employment minister.

      Before PIP myself and my partner were both on indefinite DLA highest rates and no moreĀ  reviews.Ā  PIP then reviewed me and took me to a 3 year enhanced.Ā  A further PIP review later put me to the current indefinite 10 year.Ā  My partner went to PIP from DLA and got indefinite 10 year.Ā  Who the hell knows what will happen when our reviews come around under this new load of nonsense or what they are going to change the PIP system to after the review and redesign it again, as they have said they intend to do.
    • Thank you for your comment. Comments are moderated before being published.
      sara
      · 22 days ago
      @Les @Les, this is exactly the sort of specific case scenario which has been overlooked and which should be brought to the attention of Endall and Thieves. I hope you can get it to your mp at least because it's an example of how the government has not acknowledged the complex fall out of the proposals. The more concrete examples we can gather and present for scrutiny the better.
  • Thank you for your comment. Comments are moderated before being published.
    keepingitreal
    · 22 days ago
    The link was with reference to the question at the end of my post, which was:

    • Thank you for your comment. Comments are moderated before being published.
      Anon
      · 19 days ago
      @James I particularly like all your comments James
    • Thank you for your comment. Comments are moderated before being published.
      Anon A
      · 20 days ago
      @James It's too late though for that,they have another 4 years and all this will be over.there is no-one on our sideĀ 
    • Thank you for your comment. Comments are moderated before being published.
      keepingitreal
      · 21 days ago
      @Dez Surely this green paper consultation is questionable too, though. B&W have called it 'bogus'. It is not a genuine attempt to engage with the public on the actual contents of the upcoming May bill (which the government is trying to certify as a money bill but which they have claimed is about supporting disabled people into work), and it's not supposed to end until 30 June.

      It just all looks procedurally irregular.Ā 
    • Thank you for your comment. Comments are moderated before being published.
      Dez
      · 22 days ago
      @keepingitreal Unfortunately, I believe it was the consultation and the way it was managed that was deemed unlawful, not the proposal itself. Hence why Labour have had no qualms about adopting it themselves.Ā 

      The Tories were found to be not fully transparent about the fact that they intended to do away with the disability element of UC for those not eligible for PIP and this meant that people could not respond to the consultation properly. Because they didn't know exactly what they were responding to. Thus, it was deemed by these duplicitous actions that the Tories were not interested in helping disabled people but saving money and that was how the courts nailed them.Ā 

      It was also easier to drag the Tories into court because the Tories were no longer in government at this point. Doing this with a government in power would probably be a different and much trickier process but let's hope those in our corner find a way of doing so. Honestly, I'd just be happy with Starmer being tripped up as much as possible. He responded like a complete child to this ruling so he clearly deems disability advocates and the courts a huge inconvenience and I hope he knows no peace while he pushes these awful proposals through.Ā 
    • Thank you for your comment. Comments are moderated before being published.
      James
      · 22 days ago
      @keepingitreal They did because it was a statutory instrument regulation of an existing act. This is why Starmer is bringing in a new act of parliament which the judges will not be able to over ride. This is also the reason why we must vote for a party that will stand up for us and not turn its back on us once in power. Frankly I do not trust anybody anymore and I also want to live in a society that is less technology based and more people based
  • Thank you for your comment. Comments are moderated before being published.
    keepingitreal
    · 22 days ago
    1) How can they produce a bill in May when they've already said the green paper consultation will run until 30 June?

    2) How can they certify it as a money bill when they have claimed it is about supporting disabled people into work, giving them dignity, not writing them off, blah blah?Ā 

    3) How can they go ahead without a proper impact statement?Ā 

    • Thank you for your comment. Comments are moderated before being published.
      Matt
      · 22 days ago
      @keepingitreal I wonder if Starmer & Co are panicking about possible legal challenges etc. Also, don't forget there are significant rumours that Reeves will have to increase taxes in the Autumn - and if there is one thing that scares Labour is the image that they are a high tax, high spend party.
  • Thank you for your comment. Comments are moderated before being published.
    JH
    · 22 days ago
    It actually just gets worse doesn't it? They are hell bent on rushing this through before anyone can delay or stop it.Ā 
  • Thank you for your comment. Comments are moderated before being published.
    Mick
    · 23 days ago
    Is there any point when this is going on:

    • Thank you for your comment. Comments are moderated before being published.
      Nat
      · 20 days ago
      @Mick This honestly makes my blood boil! How can they claim to support and advocate for us when they so enthusiastically back these reforms and cuts to disability benefits!? šŸ¤¬
    • Thank you for your comment. Comments are moderated before being published.
      Ala
      · 20 days ago
      @Anniesmum 2024 spring, even a person from the ME charity, during a parliamentary work committee was mainly talking about HIMSELF getting a job at THAT charity! I was absolutely fuming after seeing his naĆÆve believe, that they will be HELPING get suitable jobs! He didn't realise, he is setting all ME/CFS sufferers as ā€œcapable to get back into workā€. I did ask him to correct this error, and I think, he did, but the damage was done! And no firm defence of sufferers not ever able to get back to work! I could see a year ago, what's on the DWP mind...
    • Thank you for your comment. Comments are moderated before being published.
      Anniesmum
      · 22 days ago
      @Mick Should we contact them anyway? Not sure what to do about this. This is one of the conditions I suffer with. Bloody hell! How can they sit on the board for M.E and then want benefit cuts. šŸ˜³
  • Thank you for your comment. Comments are moderated before being published.
    Alpro Cherry
    · 23 days ago
    Done.Ā 
  • Thank you for your comment. Comments are moderated before being published.
    Justin.
    · 23 days ago
    How will they decide WHO with Autism qualifies & who DOESNā€™T?My Nephew is non verbal & non communicative and WILL never work, have a family or contribute to society do is HE expected to go out & be an Entrepreneur?šŸ˜”
  • Thank you for your comment. Comments are moderated before being published.
    Gingin
    · 23 days ago
    Thanks for the list and info. Im writing to as many as seem relevant (my husbandā€™s condition isnā€™t listed here)-Ā 
    Poverty & Inequality
    Genetic, rare & undiagnosed conditions
    Carers
    Debt & financial inclusion
    Health
  • Thank you for your comment. Comments are moderated before being published.
    Elizabeth Vidler
    · 23 days ago
    Don't see anything about epilepsy or seizures on these lists but not really sure where it would be as it is a symptom not an illness in its own right.
  • Thank you for your comment. Comments are moderated before being published.
    colcs
    · 23 days ago
    Thank you for putting up the link so that we can send emails to relevant people regarding the proposed cuts that this labour government are proposing.

    I have emailed several people that covers several conditions that i have .

    This money bill that they are planning to introduce in may is absolutely appalling.

    Like thousands of us with health issues this is such a major worry for us all .Ā  Ā Ā 
  • Thank you for your comment. Comments are moderated before being published.
    Matt
    · 23 days ago
    Thanks, will do. Alarmed at the prospect that Labour are going to make this a money bill, without any safeguards from the Lords (I suspect they know the strength of feeling already) and I presume if it's a money bill, there can be no Judicial Review?
    • Thank you for your comment. Comments are moderated before being published.
      Matt
      · 22 days ago
      @Anon A money bill is (probably called) a finance bill brought in by the Treasury, usually at the time of the Budget, or Spring Fiscal Statement. It cannot be opposed by the House of Lords (1911 Parliament Act) and thus can secure Royal Assent very quickly (in months rather than years). Also, it would be very difficult to challenge this through the Courts.Ā 
    • Thank you for your comment. Comments are moderated before being published.
      Alex
      · 23 days ago
      @Neil Cook He will get a big payday when he leaves office, I'd bet my life on it. Ā They won't tax the rich, when it's obvious to everyone that this is what needs to be done.Ā 
    • Thank you for your comment. Comments are moderated before being published.
      Neil Cook
      · 23 days ago
      @Matt Proves what a coward Starmers is
    • Thank you for your comment. Comments are moderated before being published.
      Anon
      · 23 days ago
      @Matt What is a money bill?

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