My daughters condition has got worst but less than

My daughters condition has got worse, however, she has less than 12 months before her DLA award is up for review.
Previously we had to fight for my daughters DLA and went to tribunal, we are worried despite her condition worsening we may end up with nothing if we report the decline?
When the change of circumstances is reported, will we need to renew again in less than 12 months?

In all honesty, I don't know what to do. She has lower rate mobility and Higher rate care atm. She was diagnosed with a very rare autoinflammatory bone disease in November which is very hard to treat, she has been unable to attend school due to the pain and is undergoing cycles of drug therapy every 3 months to see if she can be made more comfortable. TBH, she is now using a wheelchair when she can go out and the school are looking for alternative provision for her education. The additional money would definitely come in useful for private hydrotherapy which the hospital is unable to provide because of covid. The worry and stress of her condition is a lot to contend with and know DLA will make things even worse but feel I should fight for the enhanced rate to pay for the extra therapy which is one of the few things that help her pain. In the back of my mind, I do worry, DLA will take aware her DLA altogether as we had to Tribunal to get her last award 4 years ago. If I go for the fight and it's only rewarded for the remaining 12 months, I will find it very difficult to go through it all again. I hope you understand my situation. I appreciate all your help and advice.

Catherine and all, many thanks for your contributions. Am I right in thinking if I go ahead and fight for higher rate mobility for her, a new award will be issued not just an 'upgrade' until her present award expires next year?