× Members

Mobility question 13

More
3 years 10 months ago #260014 by Princessib
Mobility question 13 was created by Princessib
Hi
My son is transferring from DLA to PIP, after a mandatory reconsideration he has been awarded 8 points for DL and 10 for mobility. We are going to appeal, but I’m a little stuck by what to put for the mobility planning and undertaking a journey. I have watched the webinar which has helped a little.
My son is incontinent of bladder and bowel, and obviously suffers with anxiety surrounding this. He doesn’t go to unfamiliar places and definitely not alone, but the MR states that there is considered to be no evidence of psychological distress on journeys. Am I wrong in wanting to argue this?
He needs help to change if he is out, and the distress of potentially having to walk wet and soiled through an unfamiliar town is natural. He is also at risk of falls but they state physical problems can’t be considered? They awarded 0 points for this section and the 10 points came from just the mobility part.
I am unsure if I’m just flogging a dead horse by arguing this. It currently means the loss of a motability car, which obviously would have huge implications for him when he does (eventually) learn as he would not be able to drive a car without significant adaptations.
Thank you if you’ve read this far! And for any advice.

Please Log in or Create an account to join the conversation.

More
3 years 10 months ago #260027 by LL26
Replied by LL26 on topic Mobility question 13
Hi I,
This is quite a complicated area of law!
Under Mobility 1 the leading case is MH v SSWP 2016. Because this was a tricky problem, unusually the Upper Tribunal satc with 3 judges. Descriptors 1b and 1e refer to problems caused by overwhelming psychological distress. 1d and 1f do not. Whilst this may seem obvious DWP are not minded to accept that the fact that there are points to be scored without requiring OPD. (The MH decision led to DWP passing a new law to amend Descriptors 1c,d and f, which was later deemed unlawful. DWP have therefore always struggled with this concept!)
So, there are two scenarios. Firstly does your son genuinely get OPD if going out somewhere? This would be anxiety that means normal thought and function is just consumed by a big panic, and there doesn't seem anyway out if it. Can also be physical symptoms such as shaking vomiting, heart race etc. If so, then he could correctly get 10 points. I am presuming that this is via 1d ie on the basis of need to be accompanied on unfamiliar journeys. Hence DWP is clearly thinking your son only has problems in unfamiliar places. (This tends to suggest that DWP accept the need for help then!!)
Or if DWP award 10 points via 1e, then they have accepted the OPD, which isn't reflected in the comments you make.
Hence if DWP accept help is required 1d, to gain more points you simply need to show that ALL journeys require the same help!
Even if your son does and occasional journey in his own this will not matter as DWP are required to consider the 'majority of days' (Reg. 7) Also, every PIP activity has to be done safely, to an acceptable standard, repeatedly and within a reasonable time. I'm not sure from what you say whether or not your son could actually change his soiled clothing without help, or it us just difficult but he could do it. Clearly it is not acceptable for a person to wander around in soiled clothing, it is unhygienic and potentially could lead to chafing etc. If your son can't change his clothes or is very slow, then it is reasonable for him to require help. That of course means the 'help' needs to always be with him. Your son may not be safe either- if he would get upset, wander off to find a toilet, get lost etc, fall over....
So there does seem to be possibilities to score points under 1f.
Your son"s falls may also render him 'unsafe' under Mobility 2. Remember the 4 criteria set out above will also apply here. Additionally severe discomfort needs to be taking into account. Any walking with SD must be excluded.Normally this includes breathlessness, pain, fatigue but there us no reason why chafing from soiked underwear could not comprise this, if it caused severe discomfort. I have a vague recollection that there was a case about this point for DLA, and if I am correct there is no reason why it shouldn't still be good law for PIP.)
Ok, so I have offered a few suggestions how you can look for further mobility points. If you which to take matters further you will need to fill outcan SSCS1 form and apply to the tribunal. There is a small risk of losing your current award but the tribunal would have to give a warning first.
If your son had at least Mid Rate Care and High Mobility DLA, this clearly indicates substantial disability. Whilst DLA and PIP sometimes do not fully match up, the tribunal would need to consider the previous DLA award and fully explain why the PIP award is not comparable. This means that if it is possible to match PIP points to equate with the DLA award it should be done. Whether or not that means your son is actually eligible for an enhanced rate of either or both PIP components will have to be examined by the tribunal.
Have a look at the members guides if you have not done so already.
Check here
www.benefitsandwork.co.uk/personal-independence-payment-pip-2
Make sure you include all the details of the DLA award with the SSCS1 if you do wish to appeal.
Good luck. I hope this helps.
LL26

Nothing on this board constitutes legal advice - always consult a professional about specific problems
The following user(s) said Thank You: KimABT

Please Log in or Create an account to join the conversation.

More
3 years 10 months ago #260068 by Princessib
Replied by Princessib on topic Mobility question 13
Thanks so much for your reply. Yes my son has always (since he was a small child) received higher rate DLA for both mobility and care, he has spina bifida. The whole initial report stated because he has upper body strength and is intelligent, he can do therapy, changes, washing etc by himself.

The 10 points he received for mobility were given under the moving around section.

He honestly, has never gone anywhere unfamiliar by himself, it just isn’t a thing he would do. He has to be driven everywhere because he is so slow at walking, and stumbles a lot. He has just started getting the bus to college alone, but that is only because we buy his pass for him, the thought of him having to ask for a ticket himself sends him into a complete panic. If the bus is full, or if there’s a long line of people waiting, then he has to be picked up - after a day at college is he is so tired he just hasn’t got the capability to wait,. He misses his stop a lot because he’s too slow to get to the door in time. But I am unsure if this comes under the 2nd mobility question or if I can argue this for the following a journey section too.

He has panic attacks (sweating, fast breathing, just an total inward meltdown) if he needs to go and get new shoes because he hates people knowing about his disability . But he has never gone to see anyone about it, we have offered. Their argument is « You are able to use public transport and to go out unaccompanied. Physical problems can not be considered in this PIP activity. There is considered to be no evidence of overwhelming psychological distress on journeys. We have therefore decided that you can plan and follow the route of a journey unaided ».

With regards soiling, he could do it himself albeit slowly if he was out, but it wouldn’t be to a hygienic standard. If the soiling has gone onto his clothing then he would definitely need help. But again this isn’t a scenario that occurs currently as he doesn’t go out by himself, throughout school and college he has had an ECHP with full-time support for his physical needs.

We are intending to appeal to the tribunal anyway, as I do honestly believe the points have not been awarded correctly on the daily living section - even though he has been awarded 9 points, he has been given 0 points for managing treatments and 2 for toilet needs. But it was the mobility section I was struggling on.

Please Log in or Create an account to join the conversation.

More
3 years 10 months ago #260096 by LL26
Replied by LL26 on topic Mobility question 13
Hi I,
Thanks for the further information.
You mention that your son misses his stop because he is too slow at walking. Perhaps you should speak to/make a complaint to the bus company as this is unacceptable. This would amount to discrimination of a disabled person, which is of course prohibited by law. I find it quite shocking that the bus driver would ignore a disabled person in this way, and clearly this also suggests that the easy access seat near the exit is not being made available either.
Certainly being too slow walking off the bus indicates significant problems with mobility, which could be very good evidence for any appeal. Remember that points for actual walking also require being able to stand and then move...the whole action has to be done safely and in a reasonable time etc. If the problem missing stops is due to not being able to stand quickly this is also relevant.
A few more points that may assist. Obviously by using the bus, your son is accompanied on the journey, this is more apparent if it is in fact the same bus driver all the time or one or two on rotation.
I am getting more of the sense that your son's problems going on transport is due to a fear of people rather than a fear of journeying itself. This may indicate points/more points fir engaging with others.
Aside from needing help changing soiked clothing, does your son need incontinence pads, even if he doesn't actually wear them? This would comprise 2 pts under 5b. If you can show physical help with toilet needs then more points could be available for this activity. (Remember Reg7 requires the highest points to be awarded where more than one activity applies in any one descriptor section.)
Now think about why your son doesn't need help most of the time with managing soiled clothing when out and about. You say that thus doesn't occur as son doesn't go out often! So effectively he avoids the problem by altering his day! Avoidance indicates the need for help. Pip points should be awarded if it is reasonable for you to require help, even if you don't actually get it.
So, DWP reckon his upper body strength (if indeed your son really does have this) means he can change soiled clothing.on that basis why doesn't he do it himself then! Whilst some people are inherently lazy, I have never yet found someone who prefers to have someone else clean them after incontinence as a result of laziness. It is embarrassing to have to be cleaned by someone else, so you only get help if you really can't do it yourself! Also, cleaning oneself has little to do with strength, this activity requires the ability to bend and twist. You could no doubt explain further how your son"s poor mobility causes this problem, and that his intelligence plays no part either.
Physical problems can comprise the need to be accompanied, and can give rise to OPD. The aftermath of soiling oneself and coping with it, is plausible as a cause for this.
Don't worry that DWP have boldly stated that your son doesn't have problems that he clearly has. Explain everything you have stated here, using the suggestions I have made as a framework. Evidence from the ECHP would also be really good. Before you write into DWP, have a good think about how your son approaches the PIP activities, or why these are avoided. What can't he do, why, what helps does he need, even if he can do the activity, is he safe, dies he do it acceptably, within reasonable time, repeatedly. Dont be scared to announce what points score he shiukd get, remembering Regulation 7- highest value should prevail. Where you do agree with DWP you can say so.
Hopefully this will permit a successful MR or subsequent appeal if required
Good luck.
LL26

Nothing on this board constitutes legal advice - always consult a professional about specific problems
The following user(s) said Thank You: Princessib

Please Log in or Create an account to join the conversation.

Moderators: GordonGaryBISCatherineWendyKellygreekqueenpeterKatherineSuper UserChrisDavid