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PIP telephoning me. Please help
- Pauline
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3 years 8 months ago #262673 by Pauline
PIP telephoning me. Please help was created by Pauline
Hello can I ask for help please.
I applied for PIP back in early June. Filled in the form and in July had a telephone call from PIP telling me they would call me for consultation over the phone for my claim. I was so concerned about this and explained that I don't know if I could do this over the phone.
The lady said she would ask my GP to do it, I did not mind because I have nothing to hide. But this morning I had a text message from them, telling me they are calling me on August 23rd for a consultation. I do not know how I can cope with a 45 minute telephone call. I have major problems word finding.
I suffer from Brain injury secondary to carbon monoxide poisoning and have multiple cognitive problems. Short term memory amongst other issues is terrible for me. In my form I sent PIP the neurologist diagnoses and the MRI brain scan result that shows multiple brain lesions that can be seen in people who suffered from carbon monoxide poisoning.
I sent a report from a Psychiatrist who diagnosed me with PTSD and a CBT therapist report that shows how bad things are for me. I also suffer from chronic pain.
I have about a week to go for this telephone call and am petrified in case I mess things up because my brain does not function properly.
I have no family to help. I live in a rural area and have no friends to help me.
My brain injury began in 2014 when I was breathing low level carbon monoxide poisoning for months and I have been stuck at home since then. I only go out for doctor appointments or hospital appointments.
Can I ask please. Is there any one who has had the call from PIP?
What do I need to know, or do?
I cannot believe they would tell me they would contact my GP and then text me this morning that they were calling me.
Please help me
I applied for PIP back in early June. Filled in the form and in July had a telephone call from PIP telling me they would call me for consultation over the phone for my claim. I was so concerned about this and explained that I don't know if I could do this over the phone.
The lady said she would ask my GP to do it, I did not mind because I have nothing to hide. But this morning I had a text message from them, telling me they are calling me on August 23rd for a consultation. I do not know how I can cope with a 45 minute telephone call. I have major problems word finding.
I suffer from Brain injury secondary to carbon monoxide poisoning and have multiple cognitive problems. Short term memory amongst other issues is terrible for me. In my form I sent PIP the neurologist diagnoses and the MRI brain scan result that shows multiple brain lesions that can be seen in people who suffered from carbon monoxide poisoning.
I sent a report from a Psychiatrist who diagnosed me with PTSD and a CBT therapist report that shows how bad things are for me. I also suffer from chronic pain.
I have about a week to go for this telephone call and am petrified in case I mess things up because my brain does not function properly.
I have no family to help. I live in a rural area and have no friends to help me.
My brain injury began in 2014 when I was breathing low level carbon monoxide poisoning for months and I have been stuck at home since then. I only go out for doctor appointments or hospital appointments.
Can I ask please. Is there any one who has had the call from PIP?
What do I need to know, or do?
I cannot believe they would tell me they would contact my GP and then text me this morning that they were calling me.
Please help me

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- LL26
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3 years 8 months ago #262674 by LL26
Nothing on this board constitutes legal advice - always consult a professional about specific problems
Replied by LL26 on topic PIP telephoning me. Please help
Hi Pauline,
I am sorry to hear that you are worried about your forthcoming assessment. I don't know why DWP said this would be done with the GP. This isn't normally what happens - the GP may be contacted to give health information about the claimant, but this isn't usually an assessment. I suspect that DWP have not really explained what is happening. Unfortunately this happens quite often!
Firstly, since presumably you highlighted communication issues on your PIP form, then the Assessor will expect these problems, so don't worry about this. You can write down a list of important things to say and refer to the list if needed.
it may well be of assistance if someone was with you, to prompt if necessary. Maybe there is a neighbour who knows you? I don't have an IT background, but it may be possible to eg get a relative on skype via a computer at the same time as the call.
Otherwise there may be local support groups who could help. Your GP may have a list of such groups. (Volunteers who help with either physical tasks such as gardening or housework, or to help with phone calls or paperwork.) Failing that a local church may have volunteers who provide help, even if you are not religious.
As for the content of the phone assessment, it is hard to predict exactly what will be said. Normally the assessor will go through your illness/disability, how/what/when etc and might discuss medication. There is often a discussion about your typical day. Sometimes there are more direct questions about specific PIP activities.
The typical day questions would ask about what you do when you get up, can you wash yourself, do you cook a meal etc. It's sort of an indirect way of getting the information. Common pitfalls are driving. Unfortunately DWP have the mindset that driving ability equates to ability to do virtually everything! (You drive, so you can chop a potato, you can remember how to operate a car, and arrive somewhere therefore you can remember to take your medicine.....)
The important thing to remember is to tell the truth. If you feel you are getting confused, or can no longer cope then ask for a break or tell the assessor you need to finish. (This is where having a supporter or friend can really help, as the assessor can't see you, and may not realise you can't cope.) Take a moment to process the question. If you are nervous and worried, it is easy just to start replying immediately, and of course your answer may not then make sense. If you do take a moment you can think properly about the question which should help you to formulate the answer. Make sure you have a cup of coffee or glass of water. Maybe a pen to make notes. Your supporter if present can also make notes. It is a matter for you if you wish to make a recording,
www.benefitsandwork.co.uk/help-for-claimants - this is the link to the members guides, which will have more information about assessments and making recordings. (Page 93 is particularly relevant.)
Once the assessment is done, maybe 2 or 3 days later phone DWP and ask for a copy of the report (PA4). Some of the DWP advisors get a bit awkward about this, but you are entitled to a copy. If so, politely hang up. Phone again and it is likely you will get another more helpful advisor!) If you do need to appeal, then having the form can be very useful to contradict assumptions made by DWP as a result.
One final point, if you think a phone assessment will be disadvantageous, and you can get this confirmed by your GP, you can ask for a face to face appointment. However, if this is agreed, then it will probably take a long time to get this arranged, which I suspect may just heighten your anxiety. On that basis, since your phone assessment is not long away, it may be preferable to deal with this, and be done with it.
I always liken assessments to going to the dentist. No one likes dentistry, but it is a necessary evil to be rid of toothache. Having ongoing toothache is far worse! So yes, the assessment is likely to be a challenge, but take it at your pace, be yourself, don't worry too much, and it will be soon over. Hopefully then, you will be awarded the PIP that you are entitled to receive.
In the meantime, try not to worry unduly.
I hope this helps. Good luck!
LL26
I am sorry to hear that you are worried about your forthcoming assessment. I don't know why DWP said this would be done with the GP. This isn't normally what happens - the GP may be contacted to give health information about the claimant, but this isn't usually an assessment. I suspect that DWP have not really explained what is happening. Unfortunately this happens quite often!
Firstly, since presumably you highlighted communication issues on your PIP form, then the Assessor will expect these problems, so don't worry about this. You can write down a list of important things to say and refer to the list if needed.
it may well be of assistance if someone was with you, to prompt if necessary. Maybe there is a neighbour who knows you? I don't have an IT background, but it may be possible to eg get a relative on skype via a computer at the same time as the call.
Otherwise there may be local support groups who could help. Your GP may have a list of such groups. (Volunteers who help with either physical tasks such as gardening or housework, or to help with phone calls or paperwork.) Failing that a local church may have volunteers who provide help, even if you are not religious.
As for the content of the phone assessment, it is hard to predict exactly what will be said. Normally the assessor will go through your illness/disability, how/what/when etc and might discuss medication. There is often a discussion about your typical day. Sometimes there are more direct questions about specific PIP activities.
The typical day questions would ask about what you do when you get up, can you wash yourself, do you cook a meal etc. It's sort of an indirect way of getting the information. Common pitfalls are driving. Unfortunately DWP have the mindset that driving ability equates to ability to do virtually everything! (You drive, so you can chop a potato, you can remember how to operate a car, and arrive somewhere therefore you can remember to take your medicine.....)
The important thing to remember is to tell the truth. If you feel you are getting confused, or can no longer cope then ask for a break or tell the assessor you need to finish. (This is where having a supporter or friend can really help, as the assessor can't see you, and may not realise you can't cope.) Take a moment to process the question. If you are nervous and worried, it is easy just to start replying immediately, and of course your answer may not then make sense. If you do take a moment you can think properly about the question which should help you to formulate the answer. Make sure you have a cup of coffee or glass of water. Maybe a pen to make notes. Your supporter if present can also make notes. It is a matter for you if you wish to make a recording,
www.benefitsandwork.co.uk/help-for-claimants - this is the link to the members guides, which will have more information about assessments and making recordings. (Page 93 is particularly relevant.)
Once the assessment is done, maybe 2 or 3 days later phone DWP and ask for a copy of the report (PA4). Some of the DWP advisors get a bit awkward about this, but you are entitled to a copy. If so, politely hang up. Phone again and it is likely you will get another more helpful advisor!) If you do need to appeal, then having the form can be very useful to contradict assumptions made by DWP as a result.
One final point, if you think a phone assessment will be disadvantageous, and you can get this confirmed by your GP, you can ask for a face to face appointment. However, if this is agreed, then it will probably take a long time to get this arranged, which I suspect may just heighten your anxiety. On that basis, since your phone assessment is not long away, it may be preferable to deal with this, and be done with it.
I always liken assessments to going to the dentist. No one likes dentistry, but it is a necessary evil to be rid of toothache. Having ongoing toothache is far worse! So yes, the assessment is likely to be a challenge, but take it at your pace, be yourself, don't worry too much, and it will be soon over. Hopefully then, you will be awarded the PIP that you are entitled to receive.
In the meantime, try not to worry unduly.
I hope this helps. Good luck!
LL26
Nothing on this board constitutes legal advice - always consult a professional about specific problems
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- denby
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3 years 8 months ago #262676 by denby
Replied by denby on topic PIP telephoning me. Please help
Dear Pauline, so sorry to hear you have been misled by them, and how upsetting this is. Everything LL26 has said about dealing with a phone assessment is excellent advice. However, there are two other possible courses of action. Especially as you have no-one already known to be with you, it is in some of our views essential to ask for a phone assessment to be recorded by the assessor. If you do so immediately, it is virtually certain they will reschedule the booking for later. This is because few assessors are willing to do their work on the record. Please ask yourself, do you want to be assessed by a person who has something to hide? A delay caused by your asking for a recording would give you longer to find a person as LL26 suggests and get to know them at least a little before the day.
A second approach if you cannot face the phone assessment at all is to phone or better get someone to do so as your representative, ASAP, to tell them it would cause you Overwhelming Psychological Distress. I put capitals because it is a standard term they use, OPD. The phone call could be made from anywhere in the country, I was able to do this for our daughter over 100 miles ago when, like you, they texted her with an appointment. The person calling can say they should do a paper-based assessment instead. You need to ask your GP if they will write a letter to say that you should have a paper based assessment as a telephone one would cause you Overwhelming Psychological Distress. [You might have to pay £40-ish for the letter]. Send the letter in recorded delivery as as soon as you can. If you take this choice and succeed you will then have to call/have someone call frequently until they say the assessment is done, to ask for a copy of the report to be sent. You can then go through the report before the decision is taken, and write in to coldly challenge all important errors and omissions in it. [That saved us an MR and Appeal for our daughter.]
Hoping this gives you back some control. There was a person who had suffered carbon monoxide poisoning in my pottery class for awhile years ago which gives me a slight idea of the challenges this has left you with. Above all do not take a phone or face to face assessment without a recording, it is pure self defence against what you have sadly already found to be a deceiving set-up.
My best wishes,
Denby
A second approach if you cannot face the phone assessment at all is to phone or better get someone to do so as your representative, ASAP, to tell them it would cause you Overwhelming Psychological Distress. I put capitals because it is a standard term they use, OPD. The phone call could be made from anywhere in the country, I was able to do this for our daughter over 100 miles ago when, like you, they texted her with an appointment. The person calling can say they should do a paper-based assessment instead. You need to ask your GP if they will write a letter to say that you should have a paper based assessment as a telephone one would cause you Overwhelming Psychological Distress. [You might have to pay £40-ish for the letter]. Send the letter in recorded delivery as as soon as you can. If you take this choice and succeed you will then have to call/have someone call frequently until they say the assessment is done, to ask for a copy of the report to be sent. You can then go through the report before the decision is taken, and write in to coldly challenge all important errors and omissions in it. [That saved us an MR and Appeal for our daughter.]
Hoping this gives you back some control. There was a person who had suffered carbon monoxide poisoning in my pottery class for awhile years ago which gives me a slight idea of the challenges this has left you with. Above all do not take a phone or face to face assessment without a recording, it is pure self defence against what you have sadly already found to be a deceiving set-up.
My best wishes,
Denby
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- Mollymoo99
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3 years 8 months ago #262677 by Mollymoo99
Replied by Mollymoo99 on topic PIP telephoning me. Please help
Dear Pauline,
Sorry to hear you are so stressed about your upcoming telephone assessment.
If I can at all put your mind at ease.
I was terrified too, sleepless nights, couldn’t think about anything else, like yourself, I was going to be on my own during the call.
The assessor I had was a nurse ( I asked what her profession was) she was very nice and basically just went through every question on my form and asked some questions regarding the topic in hand, I felt she was just getting a clearer scope as, as much as it is hard for us, remember they are only getting a snippet of what your life is like on a form.
That is why you are the best person to explain your difficulties to them rather than a GP.
My advice is read through your form before your call, make some notes about each question that you would like to go into detail and keep it with you during the call.
I did get a little upset during the call just describing things to her and she was very reassuring, asked if I wanted to take a break, get a glass of water.
You have lots of medical information, and the assessor (depending on their profession) may not be as informed on your issues, so you are the best person to describe those.
I asked for the report after mine and the nurse had even wrote “ client was very anxious throughout assessment and had some difficulty coping, needing constant reassurance from the HP”.
Which I thought was encouraging as it means she was human and empathetic.
Don’t read the horror stories that you will find on google, i’m Hearing more and more positive outcomes all of the time.
Like LL26 said, it’s an experience no one wants to do, but it has to be done in order to get your claim sorted out. You will feel so much better once it’s done, mine lasted an hour (which may seem horrendous) but actually once I started talking about each point, it flew in, never felt like an hour at all .
You can do it! We are all behind you!
Kindest regards, loubylou.
Sorry to hear you are so stressed about your upcoming telephone assessment.
If I can at all put your mind at ease.
I was terrified too, sleepless nights, couldn’t think about anything else, like yourself, I was going to be on my own during the call.
The assessor I had was a nurse ( I asked what her profession was) she was very nice and basically just went through every question on my form and asked some questions regarding the topic in hand, I felt she was just getting a clearer scope as, as much as it is hard for us, remember they are only getting a snippet of what your life is like on a form.
That is why you are the best person to explain your difficulties to them rather than a GP.
My advice is read through your form before your call, make some notes about each question that you would like to go into detail and keep it with you during the call.
I did get a little upset during the call just describing things to her and she was very reassuring, asked if I wanted to take a break, get a glass of water.
You have lots of medical information, and the assessor (depending on their profession) may not be as informed on your issues, so you are the best person to describe those.
I asked for the report after mine and the nurse had even wrote “ client was very anxious throughout assessment and had some difficulty coping, needing constant reassurance from the HP”.
Which I thought was encouraging as it means she was human and empathetic.
Don’t read the horror stories that you will find on google, i’m Hearing more and more positive outcomes all of the time.
Like LL26 said, it’s an experience no one wants to do, but it has to be done in order to get your claim sorted out. You will feel so much better once it’s done, mine lasted an hour (which may seem horrendous) but actually once I started talking about each point, it flew in, never felt like an hour at all .
You can do it! We are all behind you!
Kindest regards, loubylou.
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3 years 8 months ago #262685 by Gary
Nothing on this board constitutes legal advice - always consult a professional about specific problems
Replied by Gary on topic PIP telephoning me. Please help
Hi Loubylou and denby
Thank you both very much for your sound advice from different perspectives.
It does give encouragement to fellow members hearing other peoples experiences.
Gary
Thank you both very much for your sound advice from different perspectives.
It does give encouragement to fellow members hearing other peoples experiences.
Gary
Nothing on this board constitutes legal advice - always consult a professional about specific problems
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- Pauline
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3 years 8 months ago #262732 by Pauline
Replied by Pauline on topic PIP telephoning me. Please help
Thank you so much for your advice.
On the letter they posted to me about the phone assessment they say “ you are able to have you telephone consultation recorded. If you would like this, please let the assessor know at the start of the appointment”
I will ask for our conversation to be recorded, but I will also have my own recorder on anyways. Because of the severity of my brain injury, I have had to use it several times because I won’t remember a conversation. Writing things down is difficult for me because I can no long spell or read what I write. Thank goodness I have spell check on my PC.
Your advice about GP. My GP is really not helpful and when I ask for a letter of help for anything, she tells me she can’t do that. The delay in getting my diagnoses for brain injury was because of the GP. Several GPs in the same practice ignored my desperation for help from 2014 until 2020. Sending me to a psychiatrist when I needed to see a neurologist. I could write a book about the way I have been treated. I have had to fight to be heard.
I truly have no one to turn too. My family abandoned me in 2015, They could not understand the impact that carbon monoxide has had on my life. My inability to go out except to hospital or doctor appointments makes it so much harder for me because I do not know anyone here.
I moved from Birmingham to Northern Ireland in 2014, that was the beginning of me been poisoned. I never had the opportunity to meet anyone here, I have been housebound ever since.
Sorry I am rambling on.
Thank you once again
Pauline
On the letter they posted to me about the phone assessment they say “ you are able to have you telephone consultation recorded. If you would like this, please let the assessor know at the start of the appointment”
I will ask for our conversation to be recorded, but I will also have my own recorder on anyways. Because of the severity of my brain injury, I have had to use it several times because I won’t remember a conversation. Writing things down is difficult for me because I can no long spell or read what I write. Thank goodness I have spell check on my PC.
Your advice about GP. My GP is really not helpful and when I ask for a letter of help for anything, she tells me she can’t do that. The delay in getting my diagnoses for brain injury was because of the GP. Several GPs in the same practice ignored my desperation for help from 2014 until 2020. Sending me to a psychiatrist when I needed to see a neurologist. I could write a book about the way I have been treated. I have had to fight to be heard.
I truly have no one to turn too. My family abandoned me in 2015, They could not understand the impact that carbon monoxide has had on my life. My inability to go out except to hospital or doctor appointments makes it so much harder for me because I do not know anyone here.
I moved from Birmingham to Northern Ireland in 2014, that was the beginning of me been poisoned. I never had the opportunity to meet anyone here, I have been housebound ever since.
Sorry I am rambling on.
Thank you once again
Pauline
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