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PIP from standard award to enhanced
2 years 9 months ago #266942 by Pauline
Replied by Pauline on topic PIP from standard award to enhanced
Elizabeth please don't give up, I know how you feel. I have FND and fibromyalgia amongst other problems that affect me neurologically. I cannot focus on much or retain anything. If you have someone to help you that would be great. I had no one. We where all in lockdown when I was doing my form. If you are alone and cannot get help. Do the best you can, sit with a note book away from the PIP form and write a long list of your health problems.
I decided to take my time. I wrote everything down before doing the form. The form was so daunting for me, it actually upset me. Taking myself away from the form calmed me down. Its easier to tackle the form this way. Because you can write bits when you feel calmer. Its also useful if you did find someone to help you, to show them your list. It takes pressure of you if you write a separate list.
Every word you write separately on your symptoms will help you on the form. Then to add the sentences that you need, such as the word " Retain " I wrote on my form. " My neurological disfunction causes me to forget words, to spell, to focus, to pay attention in conversation because I lose track. Having chronic pain amongst my neurological problems makes it overwhelmingly hard to listen and retain my conversations with someone because I cant pay attention correctly"
I had one week left to post my form because it took ages for me to do it.
If you are doing the review form online or posting it, your list will help you, because your written symptoms will trigger an easier way for you to write a better sentence. FND causes memory issues. If you are to have an assessment phone call. Please record the call. Hopefully you will have a decent human assessor. I did not. However my recording became the most important thing I ever did. It was my only proof that the assessor lied about me.
Here is the most important thing that I learned about this whole PIP thing.
The very long form is their first way of scaring people.
The very long wait after filling in the form adds to that fear, because it is designed to scare people.
Then the dreaded call from the assessor. People are so filled with fear at this point because they fear making mistakes, they fear losing.
Try if you can to listen to the trick questions. such as "can you lift your leg on the bed to put your socks on" when you already know that you said on the form you can barely lift your feet off the floor. Having your recording will help later on if you need it.
Take a little bit of time in a quite place to write out your list of symptoms and your new symptoms. Please do not give up, because the PIP system in my opinion is designed in such a way to scare people so much that the whole thing becomes so overwhelming to them, because they have had months and months of waiting that adds to their fear.
Do not allow panic to overwhelm you.
Remember that you have your medical reports to back you, and if needed, your recording for your own personal use can always help if needed later on.
I wish you all the best and hope this helps you Elizabeth.
You can do this
I decided to take my time. I wrote everything down before doing the form. The form was so daunting for me, it actually upset me. Taking myself away from the form calmed me down. Its easier to tackle the form this way. Because you can write bits when you feel calmer. Its also useful if you did find someone to help you, to show them your list. It takes pressure of you if you write a separate list.
Every word you write separately on your symptoms will help you on the form. Then to add the sentences that you need, such as the word " Retain " I wrote on my form. " My neurological disfunction causes me to forget words, to spell, to focus, to pay attention in conversation because I lose track. Having chronic pain amongst my neurological problems makes it overwhelmingly hard to listen and retain my conversations with someone because I cant pay attention correctly"
I had one week left to post my form because it took ages for me to do it.
If you are doing the review form online or posting it, your list will help you, because your written symptoms will trigger an easier way for you to write a better sentence. FND causes memory issues. If you are to have an assessment phone call. Please record the call. Hopefully you will have a decent human assessor. I did not. However my recording became the most important thing I ever did. It was my only proof that the assessor lied about me.
Here is the most important thing that I learned about this whole PIP thing.
The very long form is their first way of scaring people.
The very long wait after filling in the form adds to that fear, because it is designed to scare people.
Then the dreaded call from the assessor. People are so filled with fear at this point because they fear making mistakes, they fear losing.
Try if you can to listen to the trick questions. such as "can you lift your leg on the bed to put your socks on" when you already know that you said on the form you can barely lift your feet off the floor. Having your recording will help later on if you need it.
Take a little bit of time in a quite place to write out your list of symptoms and your new symptoms. Please do not give up, because the PIP system in my opinion is designed in such a way to scare people so much that the whole thing becomes so overwhelming to them, because they have had months and months of waiting that adds to their fear.
Do not allow panic to overwhelm you.
Remember that you have your medical reports to back you, and if needed, your recording for your own personal use can always help if needed later on.
I wish you all the best and hope this helps you Elizabeth.
You can do this
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