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1 month 1 week ago #289168 by Paulp
Pip application was created by Paulp
Hi I’m Paul and completely new to claiming benefits. I’m 63 and for the last 15 months have been really ill with what the Neurologist believes is stage 3 Parkinson’s.
I am awaiting a DAT
I not claimed anything whilst I’ve been off work but have now got to the stage when I cannot manage on my own and my wife has had to give up her job to care for me.
Is it true because I haven’t had a confirmed diagnosis that I can’t claim Pip, and because I’m not receiving Pip my wife cannot claim carers allowance?
I’ve just received the How your disability affects you and I’m a bit overwhelmed at the number of questions and amount of information they require.
Do you think Parkinson’s would be enough to get awarded.? I find it almost impossible to walk on my own.
Any tips and advise for completing would be appreciated.
Thank you

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1 month 1 week ago - 1 month 1 week ago #289173 by LL26
Replied by LL26 on topic Pip application
Hi Paulp,
Welcome to B&W!
PIP is awarded if you can show that disability and or illness prevents ir restricts you from doing the specified activities under the descriptors. Depending on your level of disability you get points for each descriptor and need to score 8+ for standard rate and if you get over 12 then its enhanced rate.
There are 2 separate sections (components) one for Daily Living the other for Mobility. There is no need for a formal diagnosis at all, but of course having one will make proving your case easier. Likewise because PiP is awarded on the basis of lack of function any illness can give rise to a claim, providing there is sufficient disability. Therefore there is no reason why having Parkinson's would preclude a claim.
Have a look at the members' guides.
Each descriptor looks at a certain area, for example the ability to cook and prepare food, toilet needs, being able to socialise with others etc. Take each topic at a time.
I'll start with toilet needs, as this is one of the easiest descriptors to understand. Do this same analysis for all descriptors.
1. Do I have any difficulties? 2. What problems do I have?
3.Why?
4.When? Is it constantly or only at certain times?
5. If not constant would it amount to the majority of days?
6. Do I need some form of help? A gadget or maybe a person?
7. If I manage the activity can I do it safely, in a reasonable time, in an acceptable manner, this includes without eg significant pain being breathless, etc, can I repeat across the whole day as reasonably required - if you fail just one of these criteria this indicates you can't do the activity correctly, it may indicate some form if help or you can't do (legally for PIP) at all.
So now consider do you have problems with toilet needs.
Do you need incontinence pads even as a precaution, maybe you need a grab rail to prevent falls. If eg you have difficulty bending you might need personal assistance with cleaning yourself. Managing incontinence has a higher points level, more so if you have double incontinence. Many of the descriptors are cumulative, and the toilet needs one illustrates thus very clearly. If you have a catheter or stoma bag or similar this would comprise an aid. So, consider your needs, could an aid or appliance help , do you need a person even with an aid? Maybe you have a risk of injury, eg falls and hence need supervision. If you can't complete the task in the manner that most people would think was OK or too slowly, or can't do it safely, quickly enough etc every time then you would get points according to whether you hsve incontinence and to what degree. Other descriptors follow a similar pattern. Basically it is I can do this OK I need a gadget I need a person physically or to encourage/prompt Even with help I'm not safe, quick enough etc Or because eg I am so profoundly disabled I couldn't even attempt this activity If you have any doubts about how you perform these activities you can write a disability diary. Write what you do, does it hurt, did you eg drop something, did you fall etc. Did you have or need help? Did you avoid something because it was too difficult or there was no help? Maybe something went well, include this too. How far did you walk, why didn't you go further, did you have any pain, did it increase, when did it decrease? What time did you get up, was this normal or not, did you have to sleep during the day, were you awake at night? Any information you can write even if you miss a day or part of it can be very helpful. Think about connections. If you fall outside do you fall inside - maybe not because you hold the furniture at home, or you stumble and regain balance - but it still shows poor mobility. Think also about mental health issues, needing encouragement forgetfulness, confusion as well.
Have a think about all of this.(Yes it is a bit daunting-sorry!) If you need help about specific topics please repost. There might be more specific info here www.parkinsons.org.uk/ you may wish to seek a benefits advice organisation such as CAB. I hope this helps.
LL26

Nothing on this board constitutes legal advice - always consult a professional about specific problems
Last edit: 1 month 1 week ago by LL26.
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1 month 1 week ago #289176 by LITTLEBAY
Replied by LITTLEBAY on topic Pip application
Often god to do these forms typed up on a computer.....as easier to do and then can be accessed readily again. Referring to the question on the form and then typing it up as separate sheets.

OLD TIMER
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1 month 1 week ago #289183 by denby
Replied by denby on topic Pip application
Dear Paulp, in addition to LL26's wise and thorough advice. Having helped care for my mum through years of Parkinson's I'm aware that it can sap the mental energy to tackle or complete tasks. So do be aware that you personally don't have to write the diary, if you take the advice to do one. Your admirable wife can do it, in any format though B&W provide templates, or even eg another member of the household if there are any.
Another factor is variability, the Guides do cover this. Mum used to have 'off' and 'on' spells all day as the meds worked and wore off. The important thing here for a PIP claim is the majority of the time. So if you have a problem four days a week/over 12 hours in every 24, say this, not 'sometimes'. Ie do not give them room to assume that 'sometimes' is less than 50% of the time, as they will then discount that problem.
And many things can be 'aids'. Mum had to buy satin sheets to help her be able to move in bed overnight...
Hope that makes sense and helps,
Denby
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