Benefits and Work can reveal that, in order to avoid publishing controversial guidance given to health assessors, the DWP are arguing that fraudsters might be inspired to fake end-stage chronic kidney disease if they saw the document. 

In December, Benefits and Work made Freedom of Information request for “copies of any training or guidance issued to health assessors and/or DWP case managers in relation to the severe conditions criteria (SCC) for the work capability assessment.”

From April the SCC will be used to decide which new universal credit claimants are eligible for the higher rate of the health element, so it is vital to understand how the department is interpreting the legal test set out in the Universal Credit Act 2025. 

This is especially so as there is doubt about whether disability minister Stephen Timms explanation to MPs of how the law would work, is accurate.

However, the DWP refused to provide us with the guidance documents on the grounds that they “would, or would be likely to, prejudice the prevention or detection of crime”.  This was a grounds for refusal we had never seen in 20 years of making requests.

Eventually, the department sent us a heavily redacted copy of guidance issued to health assessors in 2023.  In the accompanying letter they told us that sections had been redacted because:

“Disclosure of this information would be likely to prejudice DWP’s ability to prevent and detect fraudulent claims. It would enable individuals to manipulate or tailor their responses to meet eligibility thresholds, undermining the integrity of the assessment process and the fair allocation of public funds.”

The SCC were originally introduced in 2017, but their purpose then - and until April of this year – was simply to decide whether individuals with severe conditions need to be reassessed, not to decide how much money they get.

Back then, the DWP were happy to provide us with a copy of the guidance, which we still have.

We have compared the 2017 guidance with the 2023 guidance and concluded that the two appear almost identical in content, except where it relates to the technical aspects of entering findings into DWP software.  There have also been some changes to formatting and layout.

So, we can now reveal some of the redacted text that the DWP say would allow individuals to make fraudulent claims.

One redacted section discusses the fact that where there is medical evidence that a claimant is not suitable for a transplant, the assessor should accept this.  The example is given of someone with end stage chronic kidney disease who also has significant left ventricular dysfunction.  Because they would be unlikely to survive transplant surgery, “severe conditions advice could be offered.”

So, what the DWP seems to be arguing, is that claimants reading this might be tempted to fake end-stage kidney disease along with heart disease in order to get benefits.

Another redacted section explains that although an acquired brain injury may have lifelong effects, some recovery of function is possible over time.  It is hard to see how this knowledge would be of value to a fraudster.

Even more difficult to understand is the reason for redacting this paragraph:

“The advice must be based on recognised and current interventions - not based on some research initiatives or proposed research. For example stem cell research in Parkinson’s Disease.”

How is it of value to a fraudster to know that assessors cannot take into account experimental treatments?

The redactions also include all 4 case studies included in the guidance.

One of the case studies involves a man with such severe osteoarthritis that he has had two hip transplants and is on 4 times daily morphine for pain.  Even then he fails the SCC, so it seems  improbable that fraudsters would be persuaded that surgical interventions were worth trying to fake.

Another involves a woman who has antisocial personality disorder, has had repeated custodial sentences for violence and “harms herself through hitting her head off walls or cutting her wrists  . . . on a daily basis”.  She also fails the SCC, so it seems unlikely that fraudsters would be inspired to fake years of prison time and self-harm in the hope of eventually getting additional benefits.

The reality is that most of the redactions in this document cannot be justified on the grounds of crime prevention, only on the grounds of obsessive secrecy.

In 2023, the Information Commissioner John Edwards published a highly critical report on the DWP’s FoI failings.  He said that  there was an increase in the amount of information being withheld by DWP where it previously would have been “disclosed or proactively published”.

In 2022, when he was chair of the work and pensions committee, Timms similarly accused the DWP of having a “culture of secrecy”. 

And when he became disability minister in 2024, Timms claimed that he would create a new era of transparency at the DWP, as part of an effort to restore trust in the department.

In fact, he has done exactly the opposite.

Members can judge how reasonable the redactions are, by downloading both copies of the DWP Severe Conditions Prognosis Re-referral Guidance from DWP resources section of the members' ESA/UC guides page.  We have highlighted in the 2017 version what we think are all the redactions in the 2023 version.  There's more on the guidance, including extracts here.

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  • Thank you for your comment. Comments are moderated before being published.
    · 11 days ago
    How can you fake a real medical condition such as this?  Whoever involved in this must be taken to psychiatric hospital or jail to neutralise the risks of harm to public safety. 
    This is what power do to one’s mind that why accountability exists. 
  • Thank you for your comment. Comments are moderated before being published.
    · 11 days ago
    Point to note... no downvotes here...
    Because that would make it obvious...
    Kidney failure is a diagnosed condition...
    Are the DWP saying they are so inept they forget to ask for evidence?
  • Thank you for your comment. Comments are moderated before being published.
    · 11 days ago
    But surely it's not difficult for someone to be responsible for contacting the Dr of the claimant, if this isn't allowed due to patient confidentiality, an up-to-date repeat prescription would have the claimants name/NI/ list of current drugs.
    Anyone could see by the list of drugs whether a person was genuine. You would have difficulty to fake a prescription and there must be a way they can be checked out.
    It's shameful. 
    They keep putting my morphine up, I've Osteoporosis and my vertebrae break for the fun of it.  I'm in pain every waking moment even with the morphine but it allows me to function.
    Admittedly I've not tried to get any disability allowances as my husband at present is earning enough so that I don't need to work, so I  haven't tried to claim as I realise that there's many that can't afford to live that need it more. 
    I've got a disabled parking badge and the key for the loos both of which are a massive help to me.
    I never know whether I should be claiming, just in case something happened to my husband, it's hard to know what to do and all rather daunting, so I keep putting it in a back burner.
    So whatever the government think, I know there's alot if it's that don't claim that could claim.


    • Thank you for your comment. Comments are moderated before being published.
      · 10 days ago
      @Tina My strong advice to you would be to make sure that your husband is paying for life insurance/critical illness insurance and don't forget check any death in service benefit his company offers and then take a hard look at the pensions you're both hopefully contributing to and see what they would pay the surviving partner as those can vary between companies. 
      Did you know that even non-taxpayers can make pension contributions to build up their own pension, if you need help sorting out private and state pensions Martin Lewis and his Money Saving Expert website is a good place to start.
      The other thing you should do is to get a State Pension Forecast now to check that you have enough qualifying years and that if you should have had Home Responsibilities Protection while you were a stay at home parent those years have been correctly recorded. The place to do that is here https://www.gov.uk/check-state-pension.

      And, finally, to answer your question I think you should claim now while you are in good circumstances because it is much easier to deal with the difficulties of claiming benefits while everything else is stable. Claiming disability benefits can be a very long and drawn out process that routinely takes almost a calendar year if it goes well and the idea of having to cope with that while grieving and being in financial difficulty is very daunting. 

      Wishing you the best of luck with the whole process.
  • Thank you for your comment. Comments are moderated before being published.
    · 11 days ago
    My son was diagnosed with kidney failure a year ago, he is on dialysis 3 times a week, awaiting a pancreas and kidney transplant, and even though he enclosed all the medical evidence, he didn’t qualify on the ridiculous 4 point system that they started. He was denied pip and hasn’t got the energy to apply again. 
    He is still working 50 hours a week as he can’t afford not to.
    People who make the decisions don’t live in the real world.
  • Thank you for your comment. Comments are moderated before being published.
    · 12 days ago
    I'm no medical expert but I'm guessing it must be incredibly difficult to feign kidney failure ? Who runs the DWP ?-simpletons, clearly 
  • Thank you for your comment. Comments are moderated before being published.
    · 19 days ago
    I have stage 4 CKD which was diagnosed at stage 2 in 2018. I also have multiple other serious chronic health conditions, around half of which are progressive. I'm diagnosed Autistic, and registered sight-impaired. The idea of someone being able to fake CKD would be laughable if these morons didn't actually believe that that's what people are doing. The fact that they do believe that though, makes it terrifying.
  • Thank you for your comment. Comments are moderated before being published.
    · 20 days ago
    FAKE kidney failure !! HOW ? A simple blood test will confirm if you do or not...indesputable.45 years a kidneyp patient with two transplants under my belt. Lat one is now failing and I DO have left ventricle insuffiency as well.  I still used to have to prove it every 3 years despite STILLL attending renal unit every 3 months.
    • Thank you for your comment. Comments are moderated before being published.
      · 11 days ago
      @shadowpony
      It sounds like the DWP will dispute every possible disabiltity or long term illness and even illnesses that are life long - as if these disabilities do not exist or are faked. If people really cant work and are forced to live off very little, I can imagine the streets full of elderly disabled people begging for money. Shame on all political parties that go along with this narrative. I read that Reform said there is no such thing as disabled - just abled differently and no such thing as long term sick - but rather a change of heart is needed. I think a big issue is how many times they keep changing the pension age to be older and then discount ailements that are considered " just old age" and how do we get jobs then?   After reading this all I can think is that they will say every one who is claiming is faking their disability if serious conditions like heart and kidney are faked. It is really insane. Surely a judge would throw this out of court. perhaps they hope to put people off from  reapplying for their disability and hope you wont take them to court over it. there will end up long wait lists of tribunals etc first... 
    • Thank you for your comment. Comments are moderated before being published.
      · 18 days ago
      @Kev Rooney the forms of fakery the dwp cite are so ludecris as to be laughable. how the hell can you fake kidney deasese or heart failing?
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