The DWP have revealed the draft criteria they will be using to select claimants for the Severe Disability Group, which will allow fast-track claims for disability benefits.  Benefits and Work would like to know if readers with severe, lifelong conditions think they would meet the criteria.

What is the Severe Disability Group?

The purpose of the Severe Disability Group is to improve the disability benefits assessment process for claimants who have conditions which are severely disabling, lifelong and with no realistic prospect of recovery.

Claimants who fit the criteria will not need to complete a detailed application form or go through a face-to-face assessment in order to claim personal independence payment (PIP) or to be found to have limited capability for work-related activity (LCWRA) for employment and support allowance (ESA0 or universal credit (UC).

The introduction of a Severe Disability Group was first consulted on in the Health and Disability green paper in 2021.

The resulting Health and Disability white paper published in 2023 revealed that design and testing of the Severe Disability Group had already begun.

The DWP have now announced that they are widening the testing of the Severe Disability Group, with two separate tests taking place, both relating to PIP.  There is more on this below.

How the Severe Disability Group works

Where a claimant is considered likely to meet the criteria for the Severe Disability Group, a short form will be sent to their specialist clinician.  The form is similar to the SR1/DS1500 form used for claimants who are terminally ill.

You can download a copy of the SR1 form from the response to this freedom of information request.

If the specialist confirms that the claimant meets the criteria, they will not be required to attend an assessment and will no longer be required to fill in complex forms, such as the PIP ‘How your disability affects you’ form or the ESA50/UC50.

Testing the criteria

The DWP are currently running two tests of the draft Severe Disability Group criteria

One test involves asking a selected group of clinicians to identify patients they believe are suitable.

The other test involves the DWP contacting claimants they consider to be likely to meet the criteria and asking if they would be willing to take part.  If they are, the DWP will then contact their clinician and ask them to complete a brief form. 

The DWP have said that participation is entirely voluntary, claimants can withdraw at any time and they “will not be financially disadvantaged by taking part.”

Official criteria

In order to meet the Severe Disability Group criteria, the DWP say claimants must :

have an irreversible or progressive condition, confirmed or managed by a secondary care specialist, with no realistic prospect of improvement 

have had no significant response to treatment, or treatment will not improve function, or no further treatment is planned

have a severe impairment of physical or mental function (or likely to develop this within 6 months) such that they need assistance from another person to complete two or more activities of daily living

The Secretary of State is satisfied that, for the individual patient the criteria have been fulfilled for: 
enhanced Personal Independence Payment (PIP) daily living or mobility components
functional limited capacity for work-related activity (LCWRA) or support group

Our interpretation

There is no published official guidance on how to interpret these criteria. So, please be aware that the definitions below are our understanding of the criteria, they are not official definitions.

An irreversible condition is one that may not deteriorate further but will also not improve, such as a learning disability, ADHD, spinal cord injury or cerebral palsy.

A progressive condition is one that is known to deteriorate, such as osteoarthritis, Parkinson’s disease, COPD or Alzheimer’s disease.  

A secondary care specialist is someone who is not in the first line of treatment.  So, a GP or mental health nurse would not be included, but a cardiologist or a psychiatrist would be.  It appears that you don’t need to be currently seeing a specialist, but you need to at least have had your condition confirmed by a specialist.

There is no planned treatment that will improve your condition further.

Your condition needs to affect two or more activities of daily living to the extent that you need assistance from another person.  These activities aren’t defined, but the list of PIP daily living activities would seem to be a likely place to start.

For PIP, you need to be able to meet the threshold for an enhanced award of the PIP daily living or mobility component.  If you don’t already get an award, you can check the criteria using the Benefits and Work PIP test.

For UC or ESA, you need to meet the criteria for being in the LCWRA group or the support group.  If you don’t currently get either of these benefits you can our UC WCA test for LCWRA or use our ESA test for the support group.

Would you qualify?

The DWP say they worked with specialist health professionals to develop the criteria and also consulted with several charities.

But, as always, they don’t seem to have talked to any of the claimants who will be on the receiving end of this system.

So, we’d like to hear your opinions and queries about the criteria in the comments section below. 

And, if you currently get at least one component of PIP at the enhanced rate or you are in the LCWRA group for UC or the support group for ESA, do you think you would meet these criteria and be eligible for the Severe Disability Group?  Or is there something about your condition, your contact with health professionals or something else that you think would threaten your chances?

You can read the full Severe Disability Group test: information for clinicians  Please note: considerably more details about the Severe Disability Group criteria were added to the DWP web page on 27 February.

Comments

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  • Thank you for your comment. Comments are moderated before being published.
    Big H · 2 months ago
    I've had osteoarthritis and sciatica for at least 12 years, and my back problems started 7 years before that but I couldn't get a doctor to refer me for a scan.  I also have lymphoedema, so lymphatic system in legs permanently damaged, require stockings for life, have had 3 leg ulcers (now healed) but legs require careful treatment to ensure they don't develop any skin openings etc etc.  I didn't claim PIP until about 2021, when we really started to struggle to manage financially, but given my medical history I wonder whether I would fall into this category.  I cannot manage my legs at all without my son's help - can't get stockings on, can't get trousers, socks etc on, require supervision and help in the shower, can't walk unaided, can't go out alone.  I hope it's not doing to be a problem, because I do have a history of depression but I'm on top of it for now.  From what I've heard from various sources, I think it's a lottery for many of us, sadly.  I wish good luck to all.
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    Katie · 2 months ago
    Yes I think I do I'm on uc been on sick for 2 years I have ptsd an depression and anxiety I'm on medication an I'm in the group for no work activities but don't get any pay for it from uc an I send my sick notes in 
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    Gail · 2 months ago
    Those who have no realistic chance of improvement but have had the condition for a long period of time so therefore don’t see a secondary professional or have access to one so have no way of proving this seem to have been overlooked
  • Thank you for your comment. Comments are moderated before being published.
    Sue · 2 months ago
    Yes I think my son would qualify. He is autistic with severe learning disabilities and epilepsy. He gets enhanced rate PIP in both areas  and has just been awarded LCWRA for UC. He is assessed as lacking mental capacity for everything but the most basic decisions and myself and my husband are his CoP deputies. 
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    Kevin Atkins · 2 months ago
    I believe that I would qualify due to sero Positive Rheumatoid Arthritis,  Osteo Arthritis, COPD and Sleep Apnoea.
    However I have had to successfully appeal my PIP twice as my Assessment was rejected. Will the DWP accept the specialists opinions?
  • Thank you for your comment. Comments are moderated before being published.
    Jane · 2 months ago
    I am diagnosed autistic, have moderate to severe hearing loss, degenerative disc disease, spondylosis, severe generalised anxiety disorder, depression, arthritis, ME, fibromyalgia, coeliac disease, IBS, rapid gastric emptying. I have been treated for complex PTSD and am on multiple meds. I was subjected to a 2.5 hour face to face assessment for PIP. My husband drove me there due to my anxiety. I receive standard rate PIP daily living. Please consider how dreadful and debilitating the PIP process is for those who haven't previously qualified for enhanced rates. 
  • Thank you for your comment. Comments are moderated before being published.
    Jane · 2 months ago
    I would agree that autistic claimants should be spared the trauma of in person assessments, whether for enhanced or regular rates. It is pure torture and having accompanied an autistic relative at their assessment I could see they struggled to convey their difficulties. With an ASD diagnosis it would help to make PIP claims streamlined and straightforward. 
  • Thank you for your comment. Comments are moderated before being published.
    Sue · 2 months ago
    I’d potentially qualify with a current 10-yr PIP award due to post-covid heart damage, dysautonomia, breathing issues (plus inflammatory arthritis and endometriosis but those were ignored in my award). I think it is great that some people will be able to make use of this. I wouldn’t do it myself as the hope I will get better is the only thing keeping me going, and having my consultants confirm I wouldn’t would be devastating.
  • Thank you for your comment. Comments are moderated before being published.
    Penny · 2 months ago
    Yes I think I would qualify. I am in the ESA support group (contributions) and receive high level PIP for both mobility and care. When I was moved over from DLA to PIP I had a face-to-face assessment at home and the woman told me she'll mark me down as not having to be seen again. I have osteogenesis imperfecta, spinal curve, hearing loss, chronic pain and chronic fatigue. Sad there's nothing that can be done other than managing my condition and the only way is down not up. 
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    M · 2 months ago
    If anyone is on a ongoing award and getting enhanced I would suggest to email your mp and request that people in this position are excluded from the process ad they get a light touch anyway 

    What is the point in putting these people thought another assessment 
    Just to say you didn't need assessed


    Any ideas regarding this people  
    • Thank you for your comment. Comments are moderated before being published.
      Noz · 2 months ago
      @M I fully agree with this ‘M’….this is me and at the end of the 10y period I will get my pension!
  • Thank you for your comment. Comments are moderated before being published.
    M · 2 months ago
    I think if this goes ahead claimants should be given the option if they want a assessment or assessed via the Severe disability group 

    Does anyone know when this will be likely implemented 

    DLA consultation was in 2010 and PIP was implemented in 2013

    Based on that I would suggest 2027/2028 and this would be for new claims only then cast the net out for claimants in receipt of PIP enhanced 

    Any ideas anyone 
  • Thank you for your comment. Comments are moderated before being published.
    Dan · 2 months ago
    I don't think the proposed system would be a success for many claimants. It would be dependent on a fully functioning NHS system, where we could all access the care and treatment we need. 
    My appointment with the a rheumatologist was cancelled at start of covid and I haven't heard back. If PIP claims were dependent on recent interaction with a specialist we are all doomed. It's hard enough for me to see my gp.
  • Thank you for your comment. Comments are moderated before being published.
    Tracy · 2 months ago
    For once , a common sense approach! My son is 17, still in education. He has ASD and Learning Difficulties. High PIP and LCWRA in place. I would love to think that he could one day work or live without 24 hour support but that will never happen.  The whole process of applying for PIP and 
    LCWRA for him is mentally exhausting and frankly depressing and upsetting! When you are looking back years and little or nothing has improved in spite of all the effort by him, his family, teachers etc. 
    My only concern is that, as others have said, once he is signed off from his Paediatrician , there will be no-one else to sign the forms. He is extremely fortunate that he is rarely ill and even his doctor doesn't know him! 
  • Thank you for your comment. Comments are moderated before being published.
    Wilf · 2 months ago
    What’s going on? The whole idea behind PIP was they were focussing on how the condition affects you, and not focussing on the diagnostic label, but now it seems they are reverting to that. I get both PIps at present, but services are no longer involved (they are too over stretched) and they are not going to want to say my condition is hopeless (which would be no good for my mental health) even if they were still involved. I think this will end up being biased against people with chronic mental health difficulties. 
  • Thank you for your comment. Comments are moderated before being published.
    KG · 2 months ago
    I can see a problem for sufferers  of ME, dysautonomia, POTS and MCAS as they are usually not under any specialists 
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    Ysabel · 2 months ago
    I qualify according to the criteria: ADHD, Autism, osteoarthritis, Lipoedema & Hypermobility Spectrum Disorder - all chronic and (mostly) untreatable. And i get enhanced on mobility, too. 
  • Thank you for your comment. Comments are moderated before being published.
    Kirsty · 2 months ago
    How will this work, I was diagnosed with autism and learning disability when I was a child and now I’m in my mid 30’s but don’t have a specialist clinician for autism and learning disability as an adult?
  • Thank you for your comment. Comments are moderated before being published.
    Shirley · 2 months ago
    I'd definitely qualify - I have ME, Poland's syndrome, cervical stenosis and spondylitis, and arthritis, carpal tunnel syndrome of my non-PS affected hand, with the arthritis getting worse.
    There's no treatment for any of this, only symptom management; taking shed-loads of drugs to cope with the symptoms, plus more drug to counter the side effects of the pain meds :(

    I already have an indefinite enhanced award for both care and mobility, and need support for most criteria.

    The average life expectancy for ME is 55, people with PS are more prone to some cancers. I told my last assessor not to bother coming back when I was 70, as I'd probably be dead! I'm 64 currently.
    • Thank you for your comment. Comments are moderated before being published.
      LG101 · 2 months ago
      @Shirley There is treatment for carpal tunnel syndrome. Day surgery under local anaesthetic. 
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    Marian · 2 months ago
    I have had Fibromyalgia and Chronic Fatique Syndrome for over 30 year's. I now use a wheelchair. I receive PIP at full personal care and half mobility. I just wondered how people like me would qualify for severe disability. Evidence is difficult to obtain as doctors just wash their hands of patients like me. I was diagnosed by a rheumatologist many years ago and have never seen a specialist since so I would miss this criteria.
  • Thank you for your comment. Comments are moderated before being published.
    TwistedWitch · 2 months ago
    I have COPD, Diabetes, ME, Hidradenitis and Osteoarthritis, but I only see my GP or the dedicated Nurse for two of the conditions listed above. So despite me being in a poor state healthwise I don't think I would qualify because I very much doubt they would take the word of a Nurse if even a GP isn't considered qualified enough to sign off on this! Fortunately for me I am also on SP, so it's only PIP I need to worry about and my last renewal a year ago was given a ten year award. My heart breaks for any poor beggar in this terrible trap.
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