Benefits and Work has obtained copies of “official sensitive” summaries of the responses to the “Modernising Support for Independent Living” Green Paper on proposed changes to Personal independence Payment (PIP).

The documents are for the attention of the Minister for Social Security and Disability and the Secretary of State, some of which are marked "Official sensitive".  

Although the consultation was started under the Conservative government, Labour allowed it to continue after they took power, receiving six thousand more responses after the date of the election.  However, they declined to publish any details of the results of the consultation and said they would not be responding to it.

At Benefits and Work we felt strongly that, after asking people to take the time and trouble to contribute, the government had a duty to share the results.

Initially, the DWP refused our request under the Freedom of Information Act to release any analysis of the consultation.

However, that decision was reversed on review, although substantial portions of some of the documents have been redacted.

Response numbers

The DWP received 16,071 responses to the consultation, made up of:

Postal: 134

Email:  1,593

Online individuals: 13,899

Online organisations: 445

Unknown organisations

The DWP summaries look at responses from organisations separately from individuals.  However, they only consider 115 organisational responses, even though hundreds more contributed.  This is because it appears that only those organisations who responded by letter or email could be identified.

As an accompanying letter to Benefits and Work from the DWP explained: 

“445 responses were recorded on the online form as coming from an organisation. However, the form did not ask for the name of the organisation. Thus it is likely that this category includes some responses from individuals.”

The result is that hundreds of organisations, including Benefits and Work, are not listed amongst the organisations who responded to the consultation because the DWP forgot to ask for organisation names in their online form.

Instead, all those organisations responses have been included in the individual respondent summaries.

Vouchers

Probably the issue that most readers will be interested in is how the suggestions that PIP should be replaced by a catalogue, vouchers, receipts or a one-off grant were received.

Amongst organisations, the DWP have recorded that 0% agreed with any of these suggestions, though a small percentage – from 16% to 9% -were neutral in regard to them. 

But overwhelmingly 92% of organisations disagreed with vouchers, 91% were against receipts, 87% were against a catalogue and 84% against a one-off grant.  Comments included:

"People should be allowed to choose how they want to spend their PIP to best help themselves.  They know what they need.  The suggested proposals  are unnecessarily  bureaucratic  & undermine a person's  ability to make decisions about  their  own  care  &  takes  away  their  control.”  Mencap

“Removing a cash payment removes the autonomy and independence of people to spend their PIP cash award freely.” - RNIB, Disability  Rights UK

The DWP assessed individual responses in a different way, looking at themes rather than percentage agreement.  Though overall, response to all the payment ideas was negative.

So for a voucher scheme, the most common theme highlighted in 45% of responses was that “it would identify individuals as benefit claimants,  potentially leading to discrimination,  exacerbated health conditions and reduced independence.”

One individual commented: “I hate the very notion of a voucher scheme for anyone,  as it stigmatises people and restricts what they spend their money on.  It's treating people like second-class citizens.  I think the government should allow people (who are already stressed and ill) to spend their benefits on how they see fit.”

Catalogues were also not popular with 31% saying there were no benefits to the idea and 29% saying that it would remove individual choice as to how they spent their money.

29% of people thought the one-off receipts system would be too complex, whilst 30% of respondents pointed out that a one-off grants system would not be suitable for ongoing or variable expenses.

As one respondent remarked:   “Most conditions that people claim PIP for are ongoing and potentially life long. A one off grant will cover some up front costs such as purchasing a wheelchair but wouldn't help with maintenance or with any of the regular day to day living expenses that are increased for those who have disabilities.”

Overwhelmingly negative

It is clear is that the vast majority of the suggestions for change made in this consultation were badly received.  For example, few people thought that placing more emphasis on what condition a claimant has, rather than its functional impact, was a good idea.

But some ideas, such as claimants not needing to be reviewed if they have a specific health condition or disability, were responded to more positively.

Often however, the DWP’s analysis of individuals’ responses is imprecise and not entirely clear. This is almost certainly because this was a hasty written and badly designed consultation which was not properly tested before being released. 

The failure to capture organisations’ names is just one example of errors that should have been picked up before the online consultation was ever published

So, when the DWP tried to analyse the results of the consultation, it has very obviously struggled to do so, not least because there were so many confusingly worded, open questions.

We’ve published all the documents we obtained so that readers can discover for themselves, as far as it is possible, what responses were given.   

What is very clear is that the DWP will have to do far better with its forthcoming green paper on welfare reform, if it is not going to find itself back in court due to the inadequacy of its consultation process.

 Downloads

Review of 1,600 individual consultation responses
This is an analysis of the responses by a sample of 1,600 people.  Although the Agree/Disagree questions cover the responses by 14,344 people.

Charities and Organisations Green Paper Response Summary 16 August
This summary provides "a detailed review of 25 influential charity and professional organisations" responses.

Charities and Organisations Green Paper Response Summary 30 August
This summary provides a detailed review of all 115 organisational responses.  Note:  many organisations including Benefits and Work are not included here because the online questionnaire asked whether you were an individual or an organisation, but then failed to ask for the name of your organisation.  So, the DWP collected what looks like responses from hundreds of unknown organisations.

Modernising Support for Independent living - Consultation Response Overview slides
This is a set of slides which review 350 individual responses, out of a total of 9,700 responses that had been received at the time the exercise was carried out.

Response topics
We're not entirely sure what this document is.  It contains lists of general and granular topics

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  • Thank you for your comment. Comments are moderated before being published.
    · 38 minutes ago
    Thank you b&w for putting post up. I really do think if you have a diagnosed life long disability condition and need help with most activities ie washing and dressing etc etc there are many  human act laws to protect the disabled people. This government differently needs real disabled people who have to live with these terrible conditions and hear their inputs to get us in their side than maybe government can show passion to us all 
  • Thank you for your comment. Comments are moderated before being published.
    · 51 minutes ago
    This is great news. Does this mean then the DWP have to leave us alone?
  • Thank you for your comment. Comments are moderated before being published.
    · 1 hours ago
    Thank you to the B&W team for uncovering this information.

    I suspect many claimants took time to consider and phrase their responses carefully despite the poorly worded questions. It is disappointing to learn that I have wasted an afternoon responding to a consultation that in hindsight, was not fit for purpose. Thus we will need to go through the whole procedure again, even though we are unwell and often exhausted.  Fight on we will though as experience suggests they are hoping we will give up and go away.
    • Thank you for your comment. Comments are moderated before being published.
      · 25 minutes ago
      @Prudent It’s still worth filling out as hopefully the dwp got the point that 1600+ cares enough to spend time to fill in a very lengthy form

      If less than 100 responded the dwp would of used that as an excuse to do whatever the hell they like (we got some concessions in the wca consultation but not many as not many filled it out)

      If the dwp didn’t read the responses properly and that’s on them (and if that’s obvious from the official dwp response then that could be used as evidence in a future lawsuit that the dwp continue to cut corners and not do things in the honest and correct manner)

      I think if anything for the upcoming wca consultation rerun the disabled community should aim for 10k+ individual responses 

      Yes details of responses are important - but facts and figures such as number of responses are just as, if not more important as it conveys the message that ppl are interested and changes can’t be silently pushed through, that the disabled community won’t stay silent in all this
    • Thank you for your comment. Comments are moderated before being published.
      · 37 minutes ago
      @Prudent Hopefully It will be shelved , Because it is insanity ,
  • Thank you for your comment. Comments are moderated before being published.
    · 2 hours ago
    It appears that about 95% of the thousands of responses were negative and the other 5% were from Fraser Nelson.

    Is there a bigger waste of time than constantly assessing people with lifelong conditions that have already "passed" multiple assessments already?  It is basically performative cruelty to titillate the press. 
    • Thank you for your comment. Comments are moderated before being published.
      · 31 minutes ago
      @Louise Can I ask what has Fraser Nelson got against Disabled people? What is his problem? Doesn't he know that in a blink of an eye his life and the lives of all the people who froth at the mouth to abuse Disabled people on the likes of the Mail, Telegraph and the Times could change in a way where they could never work again? Though in regards of Fraser he has BUPA and millions of pounds to fall back on. 
  • Thank you for your comment. Comments are moderated before being published.
    · 4 hours ago

    It's bewildering there are actually lawmakers out there who still think "disabled people = Buy everyone a wheelchair and yup, that's it, good to go..." when in the real world, the most severely disabled people usually need ongoing help from other people a lot more than they need to buy one off 'things' from catalogues.

  • Thank you for your comment. Comments are moderated before being published.
    · 4 hours ago
    I have epilepsy&multiple learning difficulties&special needs. I can’t work yet Am super stressed&anxious that the Labour Party may force me into a job I can’t do . I still have black outs a few times a week due to my epilepsy and headaches that last a few days .Am very worried&nervous and reeves isn’t gonna say more until end of March which is a long time away 
  • Thank you for your comment. Comments are moderated before being published.
    · 4 hours ago
    All the pretense that they are trying to help the disabled. 
    Both Conservatives and Labour alike, have no interest in how we struggle to live our lives. 
    It's a money saving exercise, plain and simple!!
    It's disgusting and shameful, I'm absolutely sick of it all.

  • Thank you for your comment. Comments are moderated before being published.
    · 4 hours ago
    What a surprise, nobody liked it.  No wonder they didn't want to release the results. 
  • Thank you for your comment. Comments are moderated before being published.
    · 4 hours ago
    What is evident here is typical dwp behaviour and how they deal with benefit claims - nothing investigated thoroughly; no coherent conclusions; snatching at details that suit them and creating their own narrative because they have not even asked sufficient or the right sorts of questions to reveal the truth. If it was strategy rather than incompetence you'd have to admire it, were it not so damaging.
  • Thank you for your comment. Comments are moderated before being published.
    · 5 hours ago
    Thank you, Benefits and Work team. :)
  • Thank you for your comment. Comments are moderated before being published.
    · 5 hours ago
    Again it is very obvious that the majority of responses in the sample agree that a formal diagnosis must be required to qualify for PIP and that is what they are spelling out in the news nowadays.

    Some may argue that it is already required in the current system but I remind them that self reported problems on your medical report is not a formal diagnosis and to get pip nowadays you do not need to have a diagnosis.

    Self reporting symptoms of an illness is not a diagnosis of that illness as the diagnosis, in most cases, requires an input from a specialist specially for mental illness.

    What I mean by self reporting is that when you go to the GP and tell him I have this and that and he types what you say in your medical report and prescribe you a medication giving you some advice about your symptoms without going into details and when you take the medication and read about it you find it treats this and that then you will come to your mind that you have this and that.

    I know this comment will disappoint some/majority of you but we have to face the reality and prepare for what is coming to us.

    Best of luck for us.








    • Thank you for your comment. Comments are moderated before being published.
      · 9 minutes ago
      @sevenbees I've never heard  of a doctor prescribing medication without telling the patient what condition it's for, or at least what condition they think you have, ie making a diagnosis based on the symptoms you have reported. Obviously if symptoms worsen, or the medication doesn't work then further investigation follows and the diagnosis might alter, but they don't leave you to go home and look up what conditions are treated by the medication.
    • Thank you for your comment. Comments are moderated before being published.
      · 12 minutes ago
      @pugbbe2 Agree with you when you consider the hoops we have to jump through already-it also dismisses those who are stuck on waiting lists through no fault of their own 
    • Thank you for your comment. Comments are moderated before being published.
      · 17 minutes ago
      @sevenbees I too have seen via the Media that people make up issues to claim PIP which again is propaganda to paint disabled people as liars, if the individual has zero evidence then they are not going to cut the mustard for a penny. Then for the Universal Credit incapacity benefit rate, the media makes out a person walks into a job center and comes out on LCWRA just by saying that he or she is disabled or ill, it's complete nonsense.

      Everyone has to go through a process where the illness/disability is scrutinized, maybe things are different in different regions of Britain but here in Cornwall if you do not have evidence, even a dossier proving that the person is disabled or ill then they don't get a penny.


    • Thank you for your comment. Comments are moderated before being published.
      · 28 minutes ago
      @pugbbe2 What I understand from your comment is that there no such pip without a formal diagnosis, and then there is no point disagreeing with my statement.

      If all pip claimants have formal diagnosis then why my comment got 12 downs? it does not make any sense. :D

      I guess because they know exactly what I am relating to.
    • Thank you for your comment. Comments are moderated before being published.
      · 3 hours ago
      @sevenbees I’m sorry but that’s completely incorrect. You can’t just self diagnose an illness. You have to have so much evidence, with pip. Also on top of the evidence you have to submit as they contact your GP surgery. You also have to have a full assessment. This whole ridiculous self diagnoses the dwp are spewing is utter nonsense and they know this. This was taken from the dwp website. 

      No, you can't self-diagnose to get Personal Independence Payment (PIP). You'll need to have an assessment to complete your application.
      Explanation
      PIP is a benefit for people who have a disability or long-term health problem that makes it hard for them to do daily activities or get around.
      You'll need to provide evidence of how your condition affects you. This could be a letter, report, or care plan.
      The assessment is not a diagnosis of your condition. It's an opportunity to talk about how your condition affects you.


      I’m sorry but I’m going to completely disagree With your statement.  

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