Hi Fiona
Your question is a legitimate concern, and I know you want to hear the views of other members. However, right now, the moderators have to use their limited time to address immediate issues that members need help with. We currently have a lot of posts with people trying to fill in MRs or Appeals or dealing with migration from ESA to UC as well as many other immediate issues.
I'm publishing your post, but I'm also locking it, as I have done with several others recently. These types of questions, where we have no answer but promote discussion, are increasing the distress of some members and also require a lot of our time to moderate. Hope you understand.
BIS
Nothing on this board constitutes legal advice - always consult a professional about specific problems