Charcot Marie Tooth & DLA claim

Hi,
I am new to the site and I would like to hear from any one out there that has Charcot Marie Tooth and their experiences of claiming DLA? Both myself & my youngest son have thsi condition; at present we are at the appeal/tribunal stage of DLA and I am hoping that we can get a few tips to help!!

Helen wrote:

Hi,
I am new to the site and I would like to hear from any one out there that has Charcot Marie Tooth and their experiences of claiming DLA? Both myself & my youngest son have thsi condition; at present we are at the appeal/tribunal stage of DLA and I am hoping that we can get a few tips to help!!

I'm afraid I have never heard of the medical condition known as Charcot Marie Tooth, so please pardon my ignorance.

As you are now at the appeal stage of the claim, I would suggest that you refer to the guide entitled "Support for Clients with DLA & AA Appeals" in the DLA Resources area under the sub-heading DLA Appeals HERE.

Looked it up -- pretty nasty (and nowt to do with dentistry)...

www.bbc.co.uk/health/conditions/charcotmarietooth1.shtml

Hi Helen... I have a few pointers on this let me have your email address ....

Hi Tommo
Any advise/tips with this would be brilliant. My email is: helcave1@hotmail.co.uk
Thanks for your time.

Hi helen, Todays Express page 35 has an article all about Charcot Marie Tooth. It may be useful for you. Best Wishes, (20th April)