Benefits and Work has heard from a member who has received an additional £5,000 backdated working tax credit (WTC) as a result of a backdated award of PIP.  Other members are continuing to report a trickle of backdated PIP payments, ranging from £3,000 to £11,000. 

The payments are being made because of errors by the DWP.  But many claimants are being told that they may be waiting a year for a decision, whilst some have been unable to get any response at all.

The payments are in relation to a case known as MM, in which it was decided that the DWP had got the law wrong when making decisions about the PIP activity ‘Engaging with other people face to face’.

The errors relate to the difference between ‘prompting’ and ‘social support’ and also about how much time can elapse between social support and a social activity.

You can read more here about the errors that were made and who might be eligible for a back payment.

Additional working tax credit

In our update article a fortnight ago, we told readers about Midnight who received a payment of £5,000 in backdated PIP.

Midnight has now posted again to say:

“Another update for anyone who is going through this ! After my back pay was received from DWP I called HMRC and advised that I have been back dated enhanced PIP and because I was working during that time period I should have been entitled to additional Working Tax Credit!

“I have just received an additional £5.5k from them meaning in total I've had a back payment of £10.5k.This has changed my life in a way I can't even articulate, I've been able to buy a car for my family, pay off debt and can afford to live day to day without any fear of running out of money, it's made a phenomenal difference to my whole families life . . .

“Thank you to this group and everyone in it, you'll never know how much you've helped flip my whole life around”
Midnight

More backdated PIP awards

Other members have also contacted us since our last update.

“I received a payment this evenning for £3,258.08 from pip ..if this help anyone out there ...I started receiving pip at a standard rate in 2016 /17...,I need promoting to help with everything ..my medication..food toilet...I was awarded 2 points back in 2016 ..I asked them to look again in 2018  Regarding my daily living ..was told no everything's alright ...then I found out regarding the change of law regarding  to do stuff ..for yourself ..ie prompting....I did receive a telephone call from pip .., I hope this helps anybody out there on pip like me ...let me know if this helps”
David

“Just wanted to update u guys. Got a call this morning in response to the form I sent back a couple week ago and I got amazing news! £11,000 to be paid into my account in next 5 days!! Absolutely life changing! I hope anyone else who's going through this is successful. Thanks to the people who have posted on here you guys gave me hope. Here's to the future. X”
Harris

“I got a phone call on Monday to say I was due backdated money due to law change and am owed just short of £11,000. Have been given 2 extra points so now also to get enhanced rate.  She said letter being sent and money would be paid within 2 weeks. Really shocked I hadn’t contacted them at all so came out the blue. Hoping money comes sooner than 2 weeks as really been struggling financially and this will let me get back on feet and pay overdue bills and fill my cupboards up. Shocked and relieved and very thankful. Backdated to 2016.”
Al

“I believe my autistic friend is one of those who received a backdated amount for “engaging with other people”. He only answers the phone to his mum and I, and I have to handle all his affairs as he can’t make calls and freezes during appointments. He has been on enhanced for both for his last two PIP renewals so I guess the payout is from earlier years. He received £4100.”
Sue

Long delays for some

However, other posters have warned that a long wait may be in store for anyone who thinks they may be entitled to a back payment.

“I rang today and they said the reviews are taking 49 weeks. They got my review form in September 2023 and I still ain’t heard anything back yet”
Jade

“I phoned them last week regarding this matter they said I am selected to be looked at but could take a year”
Samantha

Others have been waiting considerably longer than a year:

“I contacted dwp in sept 2021 to be told im in the list to be looked at. Still waiting now march 2024.”
Miss F

Miss F got  a response form another reader who has received a payment:

“They will get to you eventually - I waited 3.5 years. They might say you are not affected as they did with me. If so, have them look at it again as I did. They then back dated what they owed me”
AA

And some readers have had no response whatsoever from the DWP:

“I contacted the DWP nurmous times about this issue, they have never got back to me, and I had sent it recorded delivery. This was signed for, so they have received my letters.”
Sidney

Benefits and Work resources

Benefits and Work members can download the following resources from the PIP guides page.

Engaging with other people review guide
A six page guide to who may be affected by the review and what to do if you think you are.

Sample letters
Sample letters for people who think they may be affected by the DWP's error in assessing people who have difficulties engaging with other people.

Video explainer
A 7 minute video explaining who may be affected by the review and what to do if you think you are.

Video transcript
A transcript of the video.

DWP Memo
A 5 page memo issued by the DWP on the subject of the changes to the law.

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  • Thank you for your comment. Comments are moderated before being published.
    · 5 months ago
    Just wondering when people get awarded historical back payments, how long does it take for it to be paid in to an account.
  • Thank you for your comment. Comments are moderated before being published.
    · 5 months ago
    I'm in so much shock. I just been called to tell me they had assessed me for the mm ruling and found I should of been entitled to enhanced daily living due to social support. I was told I am getting a backpay of 11k! I originally called a few years ago to ask it to be looked at and was told they'll get round to me at some point as my name was on the list for the review. I am shocked but happy because for so many years they've given me standard when I knew I should of been enhanced so I'm happy it's been rectified 
     Anybody waiting I know its hard to but they will get round to you I had no faith in getting this decision  
  • Thank you for your comment. Comments are moderated before being published.
    · 5 months ago
    This isn't about being upgraded and paid backpay.. I just received 21 thousand after 3 and a half years or trying to get awarded pip on my initial claim I was awarded ZERO points I had a mandatory review denied appeal denied court appeal and was awarded 24 points the enhanced rate of both components.. I have uncontrolled epilepsy and struggle daily .. I finally was victorious but it was hard and demeaning. Who ever looked at the initial claim and gave me no points wants removing from their post x. 3 and a half years it's taken me x. 
    • Thank you for your comment. Comments are moderated before being published.
      · 4 months ago
      @Charlie Charlie I am so sorry for the loss of your Mum she deserved so much better.  I too have c.o.p.d. and it took me 3 applications over seven years to get P.I.P. awarded and I couldn't have done it without the help from this site. May your Mum Rest in Peace, take care of yourself Charlie.❤
    • Thank you for your comment. Comments are moderated before being published.
      · 4 months ago
      @Annmarie My mum had copd she was 61 and got refused pip 2 3 tines she appealed and stil got refused last time was Jan 2024 they said no basically she is fit for work on 30th Jan 24 she got sepsis shock at 3am and died in AnE at 15 55. The cause of death sepsis shock caused by chest infection plus fluid in 1 lung down to my mum having copd. It's disgusting she could of done so much more if she were entitled to pip including going to the other side of town for chest xray app etc she had panic attacks anxiety couldn't travel on busses etc but would of gone in taxis along as I was with her 25 each way though for chest appointment s they don't care.
    • Thank you for your comment. Comments are moderated before being published.
      · 5 months ago
      @Amanda It's awful having to be put through this test when we have illnesses and diseases. Unless people have these conditions they just don't care 
  • Thank you for your comment. Comments are moderated before being published.
    · 6 months ago
    I was on PIP and got taken off it 2 years ago even though I have Chronic urticaria and osteoarthritis and cutaneous Mastocytosis which is  totally debilitating. I dont sleep if I am having a spontaneous episode I am covered from head to feet in rashes which really knocks my confidence so then depression sets in then it's like a vicious circle week in week out okay days then really bad days I see my consultant  twice a year I have been under dramatic therapy yet  they told me I am not eligible for pip hence why they took it off me then now sent me a text and a phone call stating it's under review I dont understand the actions .
    • Thank you for your comment. Comments are moderated before being published.
      · 5 months ago
      @Marie And only Friday just been told because I work and have confidence making eye contact I am not entitled to it again see my consultant on Thursday just gone and my condition has worsened and I had to have a emergency blood tests 6 of them for testing Lupus all over again I am so stressed and feel so down and fatigued I am really fed up of everything and I know the system is entirely wrong as the likes of us with debilitating diseases or disabilities are demoralising and knocks all or any but if confidence out of us I am so upset 
  • Thank you for your comment. Comments are moderated before being published.
    · 6 months ago
    How can I find if I can get mine backdated please and thanks 
  • Thank you for your comment. Comments are moderated before being published.
    · 7 months ago
    how can I have backdated PIP awards? Could you help me, please?
  • Thank you for your comment. Comments are moderated before being published.
    · 7 months ago
    The thing is I think I do come under the payment bracket but I’m just worried to rock the boat due to my mental health and I don’t want to make it worse because you hear so many horrible stories 
  • Thank you for your comment. Comments are moderated before being published.
    · 7 months ago
    I think it’s really unfair that people who had a tribunal hearing don’t qualify. If the DWP had made the correct decision in the first place then some people wouldn’t have had to file an appeal. I still wasn’t awarded anything under the new rule. There is no legal support so how can anyone fight for what they are entitled to
  • Thank you for your comment. Comments are moderated before being published.
    · 7 months ago
    I have been getting pip for year am on the hight right was put on that last year but have just been told am at stage 3 of my emphasis and told I can't get anymore help 
  • Thank you for your comment. Comments are moderated before being published.
    · 7 months ago
    I started receiving PIP in 2023 February after being refused twice back in 2020/21. In 2019 I had accident rupturing my spleen beyond repair and losing a decent amount of blood from internal bleeding. After my OP, where they removed my spleen causing  my immune system to be completely shot. I started working again after 5months but realizing I was getting sick alot and ended up losing 3 jobs. Getting sacked because of illness of cold and flu, plus bad weather conditions are also quick to get me sick. And that's without even mentioning my mental health issues that I've suffered with my whole life but only found out I had a diagnosis from 2017 in 2021 after spending some time in a mental health hospital in Kettering, who had staff working there from agencies! Literally taking the piss out of some of the patients. But anyways, after finding out I had Borderline personality disorder and anxiety disorder, I already knew about my anger management issues. So after living from 2020 with no job I struggled quite abit when covid hit and apparently from what the doctors told me because of my no immune system I should not be working. But was rejected twice by Dwp in 2020/21, so I thought screw it I'll try again and in 2022 November I think, I'm terrible at paperwork keeping, I received letter that I was to be awarded PIP which I'm still receiving. It's crazy how I wasn't awarded it then but I got it on 3rd try! Yeah there probably are some people out there just trying to get PIP or are on PIP and don't have diagnosis or medical evidence on paper or are just lazy or trying to get one over the government, BUT there are people who need PIP! Some more than others, I can still walk around and do certain things for myself, so I don't get full mobility, which is fair I don't deserve full mobility payment, but daily-living I get the enhanced payment. I don't leave my flat because of mental health and physical health and bad weather. But that doesn't mean I sit around doing nothing, I'm a amateur writer just finished my 1st novel, I workout at home lifting wieghts and working the punchbags, I read a decent bit from fantasy, comics, Sci-fi, history and more. I and many other people who actually need PIP and the help it offers to help us want to live.
    • Thank you for your comment. Comments are moderated before being published.
      · 4 months ago
      @Dean After 14 spine op, Hip replacement, knie replacement, Shoulder op,Heart attack with 3 stent
      And a feet drop  I still don't get the high rate of PIP and I don't complain 
  • Thank you for your comment. Comments are moderated before being published.
    · 7 months ago
    Hi, 
    Do you have to call pip regarding this change in law or do they just contact you? Is there any forms to be filled in? 
    Thanks 🙏 
  • Thank you for your comment. Comments are moderated before being published.
    · 7 months ago
    I started claiming pip. I've also told them I don't like going out on my own as I'm stared something will happen to me, I've bad heart problems.  I've become scared of going anywhere with big crowds. Is there anything anyone can help me with. As for showering I can't do that on my own, I have to ha e someone with me 

    Thanks in advance 
  • Thank you for your comment. Comments are moderated before being published.
    · 7 months ago
    I have been on pip since 2018 when I started suffering from onset epilepsy it just came out of nowhere so I was told I could apply for pip so I did and all I can get is the mobilty side despite proof from my neurologist I get it for anxiety and p.t.s.d I can't it for my epilepsy and I don't understand why I'm on meds for this and I when i have a fit i can barely walk or hold a cup but thisakrs no difference to them yet u know people like heroin addicts and people that have smoked there lungs off and they get high rate for both and back payments of £12.000 yet I can't get anything but mobility and don't know why can somebody help or suggest anything??
    • Thank you for your comment. Comments are moderated before being published.
      · 5 months ago
      @Mike Cotterill No malice but to be fair. When people started smoking back in the day, they weren't as aware of the drastic effects of smoking. Also most people who take drugs. Usually take them to escape and numb themselves from childhood trauma. No one chooses to become addicted to smoking or drugs. 
  • Thank you for your comment. Comments are moderated before being published.
    · 8 months ago
    I have been successful in winning my appeal at the face to face appeal. After being stressed out about the hearing. I took my daughter,
    The judge simply said we don’t need to ask you any questions and awarded enhanced care component.
    When will I here about new entitlement notice and pay arrears
  • Thank you for your comment. Comments are moderated before being published.
    · 8 months ago
    Ok I hear people here. I just have to say that I waited 13months for a decision to be made about my review to date they have reduced my entitlement to the lower care rate. And to top that my mobility rate has stayed the same. Not only that but a mandatory recon was made and refused. I am going forward with a tribunal. My daily living is almost non existent I have serious back and leg issues aswell as a severe mental health problem (possibly made worse by the current situation) I hardly go out in public I can no longer afford care and To Be Honest I am getting nowhere fast with dwp. I have nowhere left to turn my life has been turned upside down.
  • Thank you for your comment. Comments are moderated before being published.
    · 8 months ago
    I was on the enhanced rate up until May 2019 when I had my face to face review but my PIP got reduced to standard rate but to this day that whole assessment I couldn't tell you what I was asked or answers as I had just buried my youngest daughter on the 25th April and 5yrs later I'm still on standard rate but my condition hasn't changed its still the same as it was in 2019 apart from my mental health condition has got worse but I've never had a review since and now in the process of getting moved over to ADP
    • Thank you for your comment. Comments are moderated before being published.
      · 8 months ago
      @Claire sorry I should not type this on this thread but I press reply in the item above about they advertise volunteering on the benefits tribunal panel . I don't know where to apply. also can we still apply?  the closing date given is Sunday 3rd Apr 2024 but it wasn't the 3rd on Sunday was it ? I saw another  poster say it too on the correct thread   . sorry. thankyou 
  • Thank you for your comment. Comments are moderated before being published.
    · 8 months ago
    What do I need to do to get an enhanced rate . I had an assessment that lasted over an hour and now it's silent.
  • Thank you for your comment. Comments are moderated before being published.
    · 8 months ago
    IV been getting p.i.p at the standard rate I filled in a form to say my health issues are worse now , and they stopped it how can they stop it when I was getting pip but now my health issues are worse IV asked them to look at it again IV gone without any money since February 
    • Thank you for your comment. Comments are moderated before being published.
      · 8 months ago
      @S Its disgusting the lack of judgement being used by so called decision makers doing this stop and start merry go around. Have they ever thought about the complicated process of using a more common sense approach.I believe the same game is used to determine someones ESA status. They could very easily say, ''you told us your condition has worsened, so until we decide, your PIP award etc will remain the same and if worse, will increase.'' They like to get off on penalizing people while they play the game of making their minds up. Its pathetic. Wonder what Labour will do about this major problem, been affecting many for far too long.
    • Thank you for your comment. Comments are moderated before being published.
      · 8 months ago
      @S its disgusting the mentality used or lack of as maybe the case with many similar.
  • Thank you for your comment. Comments are moderated before being published.
    · 8 months ago
    I started claiming pip in 2016 and was on lower rate until 2021 when I was put on enhanced rate. Does this mean that I am due a back pay in any way or do I leave it? Any help would be much appreciated.. 
  • Thank you for your comment. Comments are moderated before being published.
    · 8 months ago
    I was on pip from  2001 till 2019 do you thinkget back pay and  I also  got refused it in 2019 in at tribunal because I couldn't say how long is ten meters  I am getting  pip now 

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