ESA and GP letters

Oh lord where do I get that from? I nolonger see a urologist since the last one did so much damage to me years back. I've never been the same since. I eventually went private but It did no good. IC is very poorly understood condition to this day I'm afraid. I can include copies of info about the illness but I imagine they will ignore that.

I have letters from various depts mentioning the problem they have treating me as I cannot take any meds, would that help?

This kind of thing? From the NHS website

Unfortunately, there's currently no cure for interstitial cystitis and it can be difficult to treat, although a number of treatments can be tried.
No single treatment works for everyone, however, and there's disagreement about how effective some of them are.
You may need to try several treatments to find one that works for you.
Lifestyle changes will usually be recommended first. Medications and other therapies may be used if these don't help, and surgery may be necessary as a last resort.

Thanks for your advice Gordon.

Sadly due to my heart condition I may be now looking at having my bladder removed so I can take some much need meds. I've been holding off on that for as long as possible, but I think I'm at the beginning of the end now.