Benefits and Work is urging readers to begin challenging the Timms review right now, rather than waiting until its final report is published.  We’re providing some suggestions about issues you can raise with your MP.

Many people feel that it is best not to speculate about what will be in the final Timms review and only respond when we see what it recommends.  But there is a danger of leaving things too late if this approach is taken, for at least three reasons

Backbench opinion is changing

Firstly, it is clear that the government have been working hard to move backbench opinion in favour of welfare reform, having learnt the hard lessons of their disastrous four-point PIP proposal.  Some of the MPs who were at the forefront of the rebellion last year are now talking much more positively about benefits change. 

As far back as June of this year, Meg Hillier – a leading rebel against the PIP four-point plan - said that Alan Milburn’s interim report on youth unemployment was a “game-changer” and that opinion in the Labour party on welfare reform is “worlds apart” from last year.

Louise Haigh, another leading welfare rebel, who the Guardian calls “an influential adviser to Burnham”, said  on the eve of the release of the Timms review interim report that welfare reform is essential to tackle the ballooning welfare budget.

Lack of real detail

Secondly, it seems increasingly possible that the final report will tell us very little more than we already know about two of the most important issues:  assessment pathways and disability-related costs. 

With so little time left after the current workshops conclude, it is now looking more likely that the Timms review will only set out the broad principles of a wholly new disability benefit.  The details of how it will actually work – where pathways will lead, how eligibility for PIP or its replacement will be decided and how disability-costs will be calculated - may be left to the DWP to decide later, perhaps with some token consultation.

There is no point in waiting for a detailed report that may never appear.

Failure to consult

Thirdly, there is no need to even address the possible recommendations of the Timms report.  The utter failure to genuinely consult with disabled claimants, let alone co-produce the report, is grounds for objections right now. 

Once the final report is out, attention will be on what is in it, rather than how it was created. The opportunity to question the whole legitimacy of the report may be lost once it is published.

Challenge now

So, we are encouraging claimants to begin contacting MPs now, in order to challenge the legitimacy of the whole Timms review process before it is complete.

Because we can be certain that the Timms review final report will insist that disabled people have been involved at every stage of the review.  This is one of the major ways they will aim to get backbench support.

This slide, shown to participants of the September to October workshops, demonstrates the kind of claims they will make.

It lists:

  • A Call for Evidence submitted by 38,713 people
  • A national survey with disabled people
  • DWP administrative data
  • Workshop in a box submissions
  • Sessions with experts and resources shared by SG [steering group] members

This is the kind of evidence that the DWP will be thrusting at MPs, but the reality is very different.

Above all, the DWP will claim that the report was co-produced with disabled people and Disabled People’s Organisations. Timms himself gave repeated undertakings to co-produce the review with disabled people, such as:

“The Timms Review will be co-produced with disabled people, the organisations that represent them and other experts to ensure that expertise from a wide range of perspectives is drawn upon. This means the Government will share ownership and responsibility for how the Review runs and what it recommends.”

(Stephen Timms, Parliamentary written answer. 20 October 2025)

“Hearing from disabled people across the UK is vitally important to inform the Review.   

“That is why we are co-producing this review with disabled people every step of the way — to make sure that PIP is truly fair and fit for the future.”   

(New engagement toolkit puts disabled people at the heart of the Timms Review 8 June 2026)

In reality, there is overwhelming evidence that this level of shared ownership and co-production never happened.  Below are some of the issues we think are worth raising with MPs.

Co-chairs were recruited by an unexplained process

The two co-chairs were appointed by the DWP using a process that was never open to scrutiny, with no published selection criteria or account of how they were selected or by whom.  That is secrecy, not co-production.

The steering group member selection criteria ruled out most PIP claimants

The Timms review steering group members were selected by Timms and the co-chairs using criteria that were always likely to rule out many ordinary PIP claimants who had much lived experience of the benefit, but not of policy or strategic engagement.  One of the essential criteria was that applicants needed:

“Experience being involved in strategic engagement on matters relating to disability, long-term health conditions or social security-related issues.”

This was always likely to rule out most applicants, as the DWP would have been aware.

The steering group members are not representative of most PIP claimants

Because of the criteria used to select steering group members, they are extremely unrepresentative of the majority of PIP claimants.  Around 80% of PIP claimants are not in employment, although many will have been employed in the past.   

Yet the review steering group is made up of high-achieving Paralympians, company directors, academics, policy specialists and entrepreneurs.  There is no reason why such people should not be on the steering group, but there is every reason for them not to make up the entire steering group.

Only two of the steering group members could be regarded as welfare benefits specialists, according to the biographies published by the DWP. 

One of these, Jean-André Prager, was a Downing Street special adviser covering the DWP in 2024, when Rishi Sunak’s Conservative government published their infamous Modernising Support for Independent Living Green Paper, which called for a disability-costs based PIP system with some cash payments being replaced by vouchers, equipment or services. 

He is also the lead author of a report published this October by a right-leaning think tank calling for savage cuts to reduce the number of children getting DLA for mental health, learning difficulties and neurodevelopmental conditions by up to 70%.

The other benefits specialist is Professor Ben Geiger who was seconded to the DWP in 2015-16 and who had already told Timms years before the review that the DWP should “have a look at the extra costs that people face and how those match up to the assessment”.  If the DWP already had in mind a disability-related costs-based replacement for PIP, these are two experts they would have been happy to have on the review.

There has been no general consultation with disabled people

There has been no general consultation with disabled claimants about the September proposals for cost-based assessment system. 

There was a confusing Call for Evidence with just four questions, including some extremely complex ones, such as:

“Does the PIP assessment, including the assessment criteria, effectively capture the impact of long-term health conditions and disability in the modern world, and provide fair access to the right support at the right level across the benefits system?”

The DWP have made much of the fact that the Call for Evidence received over 38,000 responses.  But this was not a consultation and it did not set out options for change and ask respondents to say which they preferred.

The review also commissioned a survey of 2,000 working-age disabled people which allegedly asked for their views on welfare reform.  But the survey ended on 17 August 2026, before the review unveiled its costs-based PIP awards recommendation in September, and absolutely no details of the questions or results have so far been made public.

Disabled People’s Organisations (DPOs) were not involved in creating the Timms review recommendations.

DPOs were not given any opportunity to shape the recommendations of the Timms review, according to Disability Rights UK, they are only being asked to comment on them now they have been published:

Sophia Kleanthous, Campaigns and Policy Officer at Disability Rights UK said:

 “The Government has consistently failed to properly include Disabled People’s Organisation’s in decisions and processes that affect us, including a lack of notice of significant updates and decisions during the Timms Review process, and not co-producing any part of the Review with DPOs despite promises to do so. The next stage is for the draft Review recommendations to be considered by Disabled people, DPOs and charities at a number of round tables, to gain feedback on the draft Review recommendations”

DRUK have produced a briefing paper for disabled people who want to challenge the Timms review, which you can download from this page.

The Timms review workshops were not co-produced and the Timms review has admitted this.

The Timms review scheduled a series of workshops between 15 September and 7 October.

However, these were not co-produced with disabled people, as the DWP admitted in the slides sent out to attendees which explained:

“The steering group recognise that these workshops have not been co-produced but are important opportunities to hear directly from people who interact with PIP."

The Timms review workshops asked for responses to proposals that were meaningless because of lack of detail.

Disabled people have never had an opportunity to give their opinions about the final proposals because these have never been set out in sufficient detail to be able to assess them.

 On the massively important issue of PIP awards being calculated on the basis of disability-related costs in the future, the only information given at workshops was:

“The award will contribute fairly to the extra costs that arise from disability and long-term health conditions and reflect fluctuating and cumulative impacts.

“Cost categories used to discuss the person’s circumstances, and therefore determine their award, could include: equipment and aids; mobility and transport; clothing and bedding.”

It is nonsensical to claim that such scant information could form the basis of a genuine consultation, let alone co-production.

It’s also worth noting that when we put these few details to Benefits and Work readers, 80% of over 5,000 respondents did not support the idea of a disability-costs related award.

The DWP only wanted to fund Timms initiatives it selected

The DWP awarded £1 million to a private sector company, The Public Service Consultants (PSC), for assistance in the co-production of the Timms review. PSC facilitated the workshops at which attendees were asked to put counters on a stripey sheet of paper to show their degree of support for different proposals.  Funding was provided to ensure venue accessibility, pay transport and support costs and make payments to each individual attendee.

By contrast, when it came to the “Workshop in a box” initiative in which disability groups were given access to some slides and other material to run their own workshops, the DWP initially failed to provide any funding whatsoever.

After protests, the DWP agreed to fund some “Workshop in a box” events, but only “up to 50” organisations selected by the Timms review itself and “proactively contacted by the DWP”. 

In other words, these were not even necessarily the organisations that had initially wanted to run the workshops.  Instead, cash-strapped organisations not hand-picked by the Timms review were left to cover all the costs of organising and facilitating the events themselves - or not run them at all.

The Commons Work and Pensions Committee (WPC) has concerns about the degree of co-production by the review.

On 17 September 2026, the WPC wrote to the Timms review asking a series of questions.  The WPC said they were concerned that the review’s approach to co-production “does not ensure, for example, disabled members of the Review have shared power in decision-making”. 

In other words, MPs are worried that even Timms steering group members may not have real power to decide how the review is run or what recommendations it makes.

Tellingly, the letter also asks for information about “how many of the 63 UK DPOs were engaged in the review” and “when you will publish proposals on assessment criteria and descriptors”

Contact your MP

It is overwhelmingly clear that disabled people and their organisation did not “share ownership and responsibility for how the Review runs and what it recommends”.

It is also the case that no detailed proposals will have been consulted on – they probably won’t even have been published - prior to the final report being passed to the secretary of state.

You might want to raise some or all of the issues above with your MP.

Or you may just want to tell your MP that you don’t consider that there has been any real effort to consult with disabled people about the actually recommendations of the Timms review and you want your MP to be clear about this when the Timms review final report is published.

There’s more on how to contact your MP here

If you do contact your MP, please consider posting a copy of what you wrote below - removing any personal details - to give other readers ideas and encouragement. It may be worth trying to avoid using AI to write your email, as MPs are probably getting very adept at spotting AI generated content and may pay it less attention. Something short and from the heart may be more effective.

And if you do get a response, we'd love to see that too.

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  • Thank you for your comment. Comments are moderated before being published.
    · 21 days ago
    MY EARLIER EMAIL TEMPLATE WAS VERY LONG. THIS IS A SHORTER CONDENSED VERSION

    Dear [MP’s Name],

    I am writing to ask you to challenge the Government over the process being followed by the Timms Review of Personal Independence Payment (PIP), particularly its claim that the review has been genuinely “co-produced” with disabled people.

    I am not opposed to reforming PIP. My concern is whether those most affected by reform have actually had meaningful power to influence the recommendations, as the Government promised.

    Stephen Timms previously stated:

    “The Timms Review will be co-produced with disabled people, the organisations that represent them and other experts…”

    He also said the Government would “share ownership and responsibility for how the Review runs and what it recommends.”

    The Government has subsequently described meaningful co-production as “sharing power, purpose and responsibility to shape decisions.”

    These are clear commitments. Parliament should now establish whether they have actually been fulfilled.

    The Government can point to 38,713 responses to its Call for Evidence, surveys, workshops and other engagement activities. However, participation does not automatically constitute co-production.

    The crucial question is:

    What actual decisions were disabled people given the power to influence?

    Being asked about your experiences of PIP is very different from having meaningful influence over the design of its replacement.

    There are also concerns about the representativeness of the steering group. Its selection criteria required applicants to have experience of “strategic engagement” concerning disability, long-term health conditions or social security. This excluded the majority of ordinary PIP claimants with extensive lived experience just because they have no policy or strategic background.

    This is particularly important given proposals concerning disability-related costs and the future structure of PIP.

    Before such fundamental changes can reasonably be consulted on, disabled people need enough detail to understand how the proposed system would work, including:

    Which costs will qualify and how will they be calculated?
    What evidence will claimants need to provide?
    How will fluctuating and cumulative costs be treated?
    How will people with different disabilities be treated fairly?
    What safeguards will prevent people losing support because their costs are difficult to evidence?

    These are not minor technical details. They could determine whether people receive or lose substantial financial support.

    The House of Commons Work and Pensions Committee has itself questioned whether the review's approach to co-production ensured that disabled members had “shared power in decision-making.”

    I am asking you to act now

    Once the final report is published, the Government will inevitably point to its consultation exercises as evidence that disabled people were involved throughout.

    The more important question is:

    Did disabled people actually share power over the recommendations themselves?

    I therefore ask you to press the Government for clear answers on:

    What specific decisions were made jointly with disabled people or Disabled People's Organisations?
    What evidence demonstrates genuine shared decision-making?
    How many DPOs helped develop the recommendations rather than simply commenting afterwards?
    How does the Government reconcile its claim of co-production with the review's acknowledgement that its workshops were not co-produced?
    When will detailed proposals on eligibility, assessment criteria and disability-related costs be published for proper consultation?

    If “co-production” is to mean anything, it must mean more than asking disabled people for their views and then presenting them with decisions that have effectively already been made.

    Please raise these concerns with the Secretary of State and the minister responsible for disability and social security, and let me know what action you are prepared to take.

    Yours sincerely,
    • Thank you for your comment. Comments are moderated before being published.
      · 20 days ago
      @Bern400 Thanks for putting this together.  I really struggle with expressing what I want to say in words.  I will send to my MP.
    • Thank you for your comment. Comments are moderated before being published.
      · 20 days ago
      @Bern400 This is so helpful, thank you.
  • Thank you for your comment. Comments are moderated before being published.
    · 21 days ago
    I put this together with AI a week ago.

    Hi everyone,

    I couldn’t find any pre-made letter templates online to challenge the Timms Review draft recommendations published on 9th September 2026, so I created one with the help of AI using key policy points from the recent Disability Rights UK briefing and structure from my May 2026 Call for Evidence submission.

    I’ve removed my own specific lived experience examples and personal information to keep it confidential and flexible and replaced them with [INSERT] or [DELETE] etc.
    I’m posting it here in case it’s helpful to others who want to send a formal complaint to Sir Stephen Timms and their local MP without having to draft something from scratch. Feel free to copy, adapt, and share it.

    EXAMPLE LETTER TEMPLATE: Complaint - Timms Review Draft Recommendations (Sept 2026)

    TO: Sir Stephen Timms MP (Minister for Social Security and Disability & Co-Chair, The Timms Review) Department for Work and Pensions (DWP)
    CC:
    [YOUR LOCAL MP NAME] MP (Member of Parliament for [YOUR CONSTITUENCY])
    Debbie Abrahams MP (Chair, Work and Pensions Select Committee)
    Clerk, Work and Pensions Select Committee
    Officers of the All-Party Parliamentary Group (APPG) for Disability

    SUBJECT: Formal Complaint & Feedback: Timms Review Draft Recommendations (Sept 2026) — Rejection of Non-Cash Awards, Cost Categories, and Deficit in Co-Production

    DATE: [ADD DATE)

    Dear Sir Stephen Timms and Steering Group Co-Chairs,

    I am writing to formally lodge a complaint and submit urgent feedback regarding the Timms Review Draft Recommendations published on 9th September 2026.

    I am an individual living with [INSERT - disability / disabilities, health conditions, and living arrangements if appropriate]. I submitted detailed written evidence to the Review's Call for Evidence in May 2026, to ensure the reality of living with long term, complex, multiple, invisible, fluctuating condition(s) [DELETE - as appropriate] was properly understood.

    Having reviewed the September draft recommendations, I align myself fully with the briefing issued by Disability Rights UK (DR UK) challenging these proposals. The current direction of travel undermines the core purpose of PIP and threatens the independence, health, and financial stability of disabled people.

    Opposition to the Draft Recommendations (DR UK Key Points Backed by My Lived Experience)

    1. Opposition to Non-Cash Support and Restricted "Cost Categories"
    • DR UK Position: PIP must remain a 100% cash-based benefit. Replacing cash awards with "services, vouchers, or non-cash support" and restricting claims to rigid "cost categories" (e.g., equipment, transport, clothing) strips disabled people of choice, control, and autonomy while creating extensive administrative burdens.
    • My Lived Experience: Everyone’s personal circumstances are completely different, and every individual has unique needs and associated costs. My disability-related costs are complex, non-standardised, and essential for managing my specific conditions. I rely on cash PIP to pay for [INSERT - Discuss additional costs related to your specific disability if comfortable]. Forcing non-cash alternatives or pre-approved categories would destroy the self-management strategies that keep me functioning [DELETE – If not applicable]. [INSERT - Discuss lack of NHS or social care support for your specific disability if appropriate].

    2. Failure to Account for Disabled Homeowners
    • DR UK Position: Pre-approved cost categories fail to cover the true, real-world overheads of independent living, risking deeper poverty and health deterioration for disabled people.
    • My Lived Experience: [INSERT - Discuss general living costs e.g. housing costs not covered by disability benefits and/or independent living overheads related to your specific situation].

    3. Rejection of Differential Pathways and "Hierarchies of Disability"
    • DR UK Position: Introducing different assessment pathways or cost categories based on impairment type risks creating an unfair "hierarchy of disability" based on government perception rather than actual need.
    • My Lived Experience: [INSERT - Discuss how the system or descriptors fail your specific disability / disabilities].

    4. Severe Psychological Impact and Risk to Health Recovery
    • DR UK Position: Replacing cash support with restrictive non-cash models causes worsening health, distress, and poverty outcomes for disabled people.
    • My Lived Experience: [INSERT - Discuss the mental/physical impact of continuous benefit uncertainty or reassessment stress on your specific disability].

    5. Breakdown of Genuine Co-Production and Exclusionary Workshops
    • DR UK Position: The Review has failed to demonstrate genuine co-production, relying on top-down processes rather than equal power-sharing with disabled people.
    • My Lived Experience: Prior to the draft recommendations, the Review promoted "Workshop in a Box" initiative sessions, yet I found no suitable or accessible sessions advertised in my region or online. Furthermore, when I applied for a place in the official "Shaping Recommendations" workshops, I was not allocated a place. Restricting co-production workshop slots excludes thousands of claimants. Gathering consultation data without granting disabled people shared decision-making power over final drafts is not genuine co-production.

    6. Absolute Separation of PIP from Work Capability
    • DR UK Position: PIP must not be used as a passport or gateway to the health component of Universal Credit or work capability assessments.
    • My Lived Experience: PIP exists to help meet the extra costs of disability and support independent living. Merging or linking PIP with work capability assessments or conditionality creates immense insecurity, particularly for individuals whose health has deteriorated through trying to sustain work [DELETE if not applicable].

    Systemic Context / Conclusion

    PIP cannot be viewed in isolation from the wider breakdown in healthcare and social support and cost of living and housing crisis. [INSERT – Discuss further if needed or summarise key themes].

    Actions Requested

    Before any final recommendations are presented to Parliament or Ministers, I urge the Steering Group and the DWP to take the following actions:
    1. Reaffirm PIP as an All-Cash Benefit: Explicitly drop all proposals involving vouchers, service substitutions, or restrictive cost categories, maintaining the 100% cash structure that protects individual autonomy.
    2. Abandon Differential Pathways: Ensure assessment processes treat all health conditions and impairments equitably based on lived impact rather than diagnostic groupings.
    3. Reopen Accessible Digital Feedback Channels: Provide open, asynchronous digital consultation mechanisms so individuals excluded from limited workshop slots can critique and challenge the 9th September draft recommendations.
    4. Extend the Review Schedule: Slow down the timeline to allow Disabled People’s Organisations (DPOs), the Work and Pensions Select Committee, and claimants adequate time to scrutinise proposals.
    5. Publish Co-Production Audits: Publish transparent metrics demonstrating how written submissions from the May 2026 Call for Evidence were evaluated and incorporated into the draft recommendations.

    I request a formal written response acknowledging this complaint and outlining how my May 2026 submission and these objections will be addressed before final recommendations are submitted to Government. I am happy to share my full Call for Evidence submission (May 2026) again, which is available on request.

    Yours sincerely,

    [YOUR NAME]
    [YOUR CONSTITUENCY / POSTCODE]
    Email: [YOUR EMAIL ADDRESS]

    EMAIL ADDRESSES TO SEND LETTER TO:
    TO:
    • timmss@parliament.uk
    • ministers@dwp.gov.uk
    CC:
    • workpencom@parliament.uk
    • appgdisability@parliament.uk
    • [INSERT APPG EMAIL FOR YOUR SPECIFIC DISABILITY / DISABILITIES IF APPLICABLE]
    • [INSERT YOUR LOCAL MP'S EMAIL ADDRESS]
  • Thank you for your comment. Comments are moderated before being published.
    · 21 days ago
    Dear [MP’s Name],

    I am writing to ask you to challenge the Government over the process being followed by the Timms Review of Personal Independence Payment (PIP), particularly its claim that the review has been genuinely “co-produced” with disabled people.

    I am not opposed to reforming PIP. I recognise that there are legitimate questions about how the benefit operates. My concern is whether the people most affected by reform have actually had meaningful power to influence the recommendations, as the Government promised.

    Stephen Timms previously stated that:

    “The Timms Review will be co-produced with disabled people, the organisations that represent them and other experts…”

    He also said the Government would “share ownership and responsibility for how the Review runs and what it recommends.”

    More recently, the Government has described meaningful co-production as “sharing power, purpose and responsibility to shape decisions.”

    These are clear commitments. I believe Parliament should now establish whether they have actually been fulfilled.

    Consultation is not the same as co-production

    The Government will point to the 38,713 responses to its Call for Evidence, surveys, workshops and other engagement activities.  
    What actual decisions were disabled people given the power to influence?  

    Concerns about representation
    The steering group selection criteria required applicants to have experience of “strategic engagement” concerning disability, long-term health conditions or social security.

    That risks excluding many ordinary PIP claimants who have extensive lived experience but no policy or strategic background.

    There is nothing wrong with involving experts and professionals. The concern is whether the steering group adequately represents the much wider population of people who rely on PIP, and whether those with lived experience had genuine decision-making power.

    The proposed changes require proper consultation, this is particularly important given proposals concerning disability-related costs and the future structure of PIP.  Before such fundamental changes can reasonably be consulted on, disabled people need enough detail to understand how the system would actually work.

    For example:
    Which costs will qualify?
    How will they be calculated?
    What evidence will claimants need?
    How will fluctuating and cumulative costs be treated?
    How will people with different disabilities be treated fairly?
    What safeguards will prevent people losing support because their costs are difficult to evidence?

    These are not minor technical details. They could determine whether people receive or lose substantial financial support.

    Parliamentary concerns
    The House of Commons Work and Pensions Committee has itself questioned whether the review's approach to co-production ensured that disabled members had “shared power in decision-making.” That deserves a clear answer from the Government.

    I am also concerned by representations from Disability Rights UK that Disabled People's Organisations were not given an opportunity to shape the recommendations before they were developed, but were instead being asked to respond to them afterwards.

    There is a fundamental difference between:

    “Tell us what you think about our proposals”
    and
    “Work with us as an equal partner to determine what those proposals should be.”

    The Government promised the latter.

    I am asking you to act now
    Once the final report is published, the Government will inevitably point to the thousands of responses, surveys and workshops as evidence that disabled people were involved throughout.

    That risks obscuring the more important question:
    Did disabled people actually share power over the recommendations themselves?

    I therefore ask you to put the following questions to the Government:
    What specific decisions within the Timms Review were made jointly with disabled people or Disabled People's Organisations?
    What evidence demonstrates that disabled people had genuine shared decision-making power over the recommendations?
    How many Disabled People's Organisations were involved in developing the recommendations, rather than simply commenting afterwards?
    How does the Government reconcile its claim of co-production with the review's acknowledgement that its workshops were not co-produced?
    When will detailed proposals covering eligibility, assessment criteria and disability-related costs be published for proper consultation?
    Will the Government publish how disabled people's contributions changed or influenced each major recommendation?

    If “co-production” is to mean anything, it must mean more than asking disabled people for their views and then presenting them with decisions that have effectively already been made.
    I am not asking you simply to oppose the Timms Review or oppose reform. I am asking you to ensure that any reform is based on transparent evidence, meaningful consultation and genuine participation by the people whose lives will be affected.

    Please do not wait until the final report is published before raising these questions. The opportunity to scrutinise whether the Government has honoured its promise of co-production is now.

    I would be grateful if you would raise these concerns directly with the Secretary of State and the minister responsible for disability and social security, and provide me with a substantive response explaining what action you are prepared to take.

    Yours sincerely,
    • Thank you for your comment. Comments are moderated before being published.
      · 21 days ago
      @Bern400 This is a very useful template e-mail. It's quite long, but not overly so, and gets all the main points in. I think I'll be using this as the basis for contacting my MP.
  • Thank you for your comment. Comments are moderated before being published.
    · 21 days ago
    My email

    Dear Alan Gemmell,

    Regarding this Timms review into Personal Independence Payments, I strongly oppose the method it was conducted and consulted upon, a co-chair has stated that this was not true cooperation with the disabled and their respective advocacy groups, CABx have also publicly condemned the report.

    My own thoughts on the matter is that it was a black box exercise, with a fixed outcome in mind from the start based on a narrow viewpoint from persons who are not disabled and the entire review pigeon-holed to come to the conclusion.

    While I am well aware that in Scotland we have our own Social Security system, I am concerned what happens down south inevitabely effects Scotland

    This continued notion that disability can simply be remedied by vouchers, discounts or otherwise non-cash value is absurd, and only shows the narrow viewpoints of non-disabled persons.

    Not every condition has a tool or applicance that can simply whisk away their difficulties, for many such a device is simply not feasible, and would be disadvantaged by such an approach.

    My own condition, Myasthenia Gravis, does not preclude me from any one activity, but rather limits the amount of activities I can carry out in a reasonable timescale, as such I will never again be able to work full-time, though I can work part-time, around my condition.

    If this Timms outcome were to come to Scotland, no amount of aids, tools, appliances or otherwise are going to allow me to work full-time and thus I would be at a disadvantage both from non-disabled persons and other disabled persons.

    I can only imagine how many others with rare and less widely known conditions are in the same situation, any condition which brings about fatigue, or in my case fatigue-like symptoms cannot simply be remedied with a voucher for a product, we need the social security to suppliment what little income we can earn to live full lives the same as those fortunate enough to not be stricken with disability.

    I implore you to reject this Timms review as it seems to simply be coming from a narrow view on the disabled community and this could have been addressed had the disabled populace had a chance to be fairly consulted on the matter.

    Yours sincerely,
  • Thank you for your comment. Comments are moderated before being published.
    · 21 days ago
    Sarah makes a good point. My reading of the previous report was that it will remain a cash payment with no change but with the possible addition of some kind of voucher if deemed useful to claimant. Don’t get me wrong the process has been a disgrace especially with Timms duplicitous behaviour. Starmer trying to force things through in the same style. Now Andy Burnham who seems just as complicit in looking the other way to the shenanigans. 


  • Thank you for your comment. Comments are moderated before being published.
    · 21 days ago
    I’ve got autism spectrum depression anxiety and adhd also seizures so looking like I’m on shakey  ground with them but last week I was diagnosed with syncope(blackouts where you go unconscious) so would I still lose out with that what vouchers would make me get better?
    • Thank you for your comment. Comments are moderated before being published.
      · 21 days ago
      @Margaret @Margaret It’s a proper diagnosis from the nhs consultant it came threw last week unexpected after I collapsed with blurred vision in middle of a busy road opposite a park was back in the ambulance and in accident and emergency in no time supervision in the shower thanks I will write that one down in my notebook because my mum cares for me and she is 75 herself I’m 51 
    • Thank you for your comment. Comments are moderated before being published.
      · 21 days ago
      @Mintro man God love you my husband has syncope as well, regarding your claim no-one knows yet, but with syncope it's not a simple matter of how often you take these episodes it's similar to seizures,as in you never know when you will take one and where, if you were crossing a busy road and you passed out without a warning that's dangerous obviously, so you need to explain if you don't always get a warning that you need supervision to keep you safe sometimes the warning is just blurred vision then collapse not enough time to make yourself safe.my hubby got points for needing supervision in the shower etc.  .
  • Thank you for your comment. Comments are moderated before being published.
    · 21 days ago
    Please forgive my ignorance but as it stands at the moment I don't have any clear proposals to raise with my MP. What i mean by that is again nothing is concrete and all speculation and fear mongering via the media. Please don't get me wrong I am not burying my head in the sand and I do expect a fight with this report but what am I fighting before I know what is real and what is going to be pushed forward. 

    At the moment from what i have seen is that PIP is staying the same but with optional vouchers for some individuals if so desired, that PIP is staying the same for those with diagnosed mental health conditions such as Bipolar, schizophrenia, psychosis, clinical depression with psychosis, BPD but those with no clinical diagnosis just won't meet the new criteria. The same goes for disabled and chronic illness , these are protected. Those with no formal diagnosis for whatever reason will not meet the criteria and there is also a crusade on neurodiverse conditions be they diagnosed or waiting for a diagnosis. It also seems that the report is targeting the under 25s not matter how severe their conditions and disabilities are, plus villainizing everyone who is eligible for PIP.  

    Is this a fair assessment or have i got it wrong? 

    Any help and suggestions would be greatly appreciated, also would the team at B&W be able to draft up a letter we could use? I believe this could help as from what i have seen and read on here most of us don't have a clue what is going on and speculation is rife and could be used against us to hide what is really going on. 
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      · 21 days ago
      @TW
      Timms has said in this disability news article for disability news that cash will be the main source of PIP. 
      No one will be forced to accept vouchers.  Existing claimants won’t be affected until their review. 

      I think it’s important to note that. 

      https://www.disabilitynewsservice.com/timms-refuses-four-times-to-rule-out-cuts-to-pip-but-makes-firm-promise-on-cash-payments/
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      · 21 days ago
      @Sarah. @Sarah No, PIP won't stay the same for any condition if the Timms review is accepted. They want to move to a "costs category" system for calculating your award. We have no details about how this would work but, for example, it might mean that if you experience incontinence you might qualify for a clothing and bedding category award, which would be set at £x per week. You might also have mobility problems which mean you need to use taxis, so you might qualify for a transport category award as well, which would be set at £x per week. And so on.

      But we really don't know the details or whether it will apply to current claimants yet.

      So what this article seems to be saying is that you need to contact your MP about the fact that Timms did not keep his word that he would “share ownership and responsibility for how the Review runs and what it recommends” with disabled people. Regardless of what the final recommendations are, they didn't carry out a fair consultation and that point needs making to MPs before the report is released. Because once it is released all people will be talking about is what it recommends, not how unfair the process of deciding the recommendations was.
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    · 21 days ago
    I'm thinking, from the nature of proposals so far revealed, that pip will be replaced for new disability benefit claimants and phased out for existing claimants, like d!a converted to pip, esa converted to uc.
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    · 21 days ago
    100% well said.

    I would also encourage people to ask their MP to support a review *independently* led by disabled people and our organisations. As the Timms Review has not been coproduced, MPs should in the meantime refuse to vote for cuts on principle.

    Solidarity from DPAC Cymru.
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      · 21 days ago
      @B @B Just what I was thinking. We need our own review. 

      We can co-produce it with representatives from the government, maybe even from other parties, then omit them from the panel and organise workshops in impossibly remote areas accessible only by tractor where only fluent Welsh will be used and all documents signed off without translation.

      Then we can have press releases and interviews and say  

      Peidiwch a phoeni, bydd popeth yn iawn, bastardiaid!

      Ewch DPAC Cymru!  
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    · 21 days ago
    Thank you benefits&work for pointing out the obvious - that we don’t have the luxury to wait till the timms review drops in November time if we have any chance in stopping or weakening any nasty policies announced
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    · 21 days ago
    The following are the steering group members of Timms Review:

    Dr Mark Brookes MBE, Advocacy Lead, Dimensions UK
    George Fielding, Disability rights advocate and Non-Executive Advisor
    Tara Flood, Head of Co-production, London Borough of Hammersmith and Fulham
    Mark Fosbrook, Disability Inclusion Manager, West Midlands Combined Authority
    Ben Geiger, Professor of Social Science and Health, King’s College London
    Katrina Gilman, National Officer for Disability Equality, UNISON
    Jean-André Prager, Senior Fellow, Policy Exchange and Director, Flint Global
    Dr Lucy Reynolds, Chair of Board of Trustees, Disability North, and Founder, We Are All Disabled CIC
    Dr Felix Shi, Lecturer in Management, Bangor University
    Dr Dharshana Sridhar, Head of Public Affairs, Spinal Injuries Association
    Phil Stevens, CEO, Disability Action Haringey, and Chair of the Board of Trustees, Disability Action in Islington
    Leila Talmadge, Founder and former Director, Autistic Knowledge Development CIC

    Although most of them are disabled or have disabilities, they're not ordinary disabled people struggling with daily living expenses counting pennies like most of us, as they all have high-paying jobs and do not necessarily need PIP or might not even practically know the role PIP is playing in covering essential day-to-day needs for the majority of claimants. I don't even think any of them claims PIP.

    Timms Review is a CON intended to justify PIP eligibility restrictions and welfare cuts.

    Thanks B&W.
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      · 18 days ago
      @Minxycat Would you mind if I borrowed some of the wording from your letter to your MP to include in an email to my MP? You have put it all so much better than I ever could in writing, and I highly dislike the idea of using AI to get my thoughts into words and those words into a coherent order. No worries at all if you don't like the idea, though.

      Many thanks in advance.
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      · 21 days ago
      @Sarah.
      A copy of my letter to my PM 

      Dear Pam,

      I am writing to you as a constituent because I am extremely concerned about the Timms Review of Personal Independence Payment (PIP), particularly the way in which the Government is presenting the review as having been genuinely co-produced with disabled people.

      I have read the latest report from Benefits and Work, published today, which raises very serious concerns about the process. I believe these concerns need to be heard by MPs before the final recommendations are accepted.

      The Government and Sir Stephen Timms have repeatedly described this review as being “co-produced” with disabled people. However, I am increasingly concerned that this description gives Parliament and the public an impression of genuine shared decision-making which has not actually taken place.

      There is a fundamental difference between asking a selected group of people for their views and genuinely giving disabled people from the wider population an equal voice in shaping the outcome.

      Disabled people are not one homogeneous group. PIP is claimed by people with physical disabilities, neurological conditions, mental health conditions, fluctuating conditions, progressive illnesses, sensory impairments and many other long-term conditions. Their circumstances and the additional costs they face can be completely different.

      I therefore find it deeply concerning if the Government is able to tell Parliament that disabled people have been fully involved simply because representatives of organisations, selected participants and a steering group have been involved.

      Where were the genuine voices of ordinary PIP claimants from the general population — people who are not representatives of organisations, campaigners, professionals or policy experts, but who actually depend upon PIP to live their daily lives?

      That distinction matters enormously.

      I am particularly concerned that the process risks becoming a way of obtaining the appearance of disabled people’s consent rather than genuinely sharing ownership of the decisions being made.

      To put it bluntly, I am worried that Sir Stephen Timms is trying to pull the wool over MPs’ eyes by presenting the review as something that has been genuinely co-produced with disabled people when there are serious questions about whether that standard has actually been met.

      I do not use that phrase lightly. I am asking you, as my MP, to look very carefully behind the language being used and examine the actual process.

      The Review’s own Terms of Reference state that it will be co-produced with disabled people and that a wide range of views and voices should be heard. They also state that the Review will consider how its recommendations might apply to reassessments of people who already receive PIP. (GOV.UK⁠)

      That makes it even more important that Parliament can be satisfied that the evidence and views being presented genuinely represent the wider PIP claimant population.

      I am also concerned about the direction of travel towards assessing PIP increasingly through the concept of disability-related costs. PIP exists because disabled people can face additional costs and barriers in everyday life, but those costs cannot always be neatly identified, quantified or demonstrated in the way that a policy model might assume.

      The lived reality of disability is far more complicated.

      For many people, costs fluctuate. Some costs are invisible. Some arise from having to replace or use more products, services, heating, clothing, transport or equipment. Some disabled people have to spend money precisely because their condition makes ordinary activities more difficult or impossible without additional support.

      A system which attempts to reduce these realities to a narrow assessment of identifiable costs risks failing the very people PIP was designed to support.

      I would therefore ask you to:

      Question the Government about exactly how the claim of “co-production” has been evidenced.
      Ask what proportion of the people directly involved in shaping the recommendations were ordinary PIP claimants from the general population, rather than representatives of organisations or people with professional or policy roles.
      Ask whether the Review has genuinely tested its proposed reforms with a sufficiently broad and representative range of disabled people.
      Challenge any suggestion that the Review has secured broad disabled people’s support simply because it has received tens of thousands of responses or engaged with selected groups.
      Ask the Government to publish full details of how disabled people’s views have influenced each major recommendation, including views which the Review disagreed with or rejected.
      Ensure that existing PIP claimants are not simply assumed to support changes because a review has been described as “co-produced”.
      I appreciate that the Government has said that the Review received more than 38,000 responses to its Call for Evidence. But the number of responses alone does not demonstrate that the process was genuinely representative, nor does it demonstrate that disabled people had shared ownership of the recommendations. (GOV.UK⁠)

      I am not asking you to oppose reform simply because it is reform. I am asking you to ensure that any reform of PIP is based on genuine evidence, transparency and the lived experiences of the people who depend upon it.

      Please do not allow the language of “co-production” to become a substitute for genuine democratic scrutiny.

      Disabled people deserve to know that when politicians say they have listened to them, they have actually listened — including to people whose views may be inconvenient or contrary to what the Government hoped to hear.

      I would be very grateful if you could raise these concerns with the Government and let me know what response you receive.

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      · 21 days ago
      @JBob1234 So realistically there isn't anyone from a normal background, education level below a degree, disabled without being a paralympian, CEO etc etc.  Realistically no one who has a disability, mental health condition, chronic illness or neurodivergent who is in poverty, or damn near it and relying on benefit's to survive. It stinks of classism, ableism and down right corrupt as they are no where near the average disabled or mentally ill person. 
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      · 21 days ago
      @Scorpion And to think they initially asked members of the general public to apply. Then went and appointed:

      Katrina Gilman. National Officer for Disability Equality, UNISON. A Labour affiliated union which is one of the largest donors to the Labour party.

      Phil Stevens CEO, Disability Action Haringey, and Chair of the Board of Trustees, Disability Action in Islington. Former co-chair of the LibDem disability group

      Jean-André Prage. Former special advisor on the DWP to Prime Minister Rishi Sunak. Senior Fellow of the right wing think tank Policy Exchange that influences political parties policies, especially the Conservatives.

      Dr Ben Geiger PhD. Former policy advisor to the DWP under the Tory government. A government advisor for over 11 years.

      Dr Dharshana Sridhar medical doctor. A government advisor for over 20 years.

      Dr Felix Shi PhD. Former board member of Disability Wales.

      Dr Lucy Reynolds PhD. Chair of Board of Trustees, Disability North.

      Dr Mark Fosbrook, honorary doctorate. Paralympic gold medal winner. Disability Inclusion Manager, West Midlands Combined Authority

      Tara Flood. Paralympic gold medal winner. Head of Co-production, London Borough of Hammersmith and Fulham.

      George Fielding BEM. Social care entrepreneur. Campaigns for wheelchair users.

      Leila Talmadge. Former Director, Autistic Knowledge Development CIC. Improving the lives and opportunities of autistic people.

      Dr Mark Brookes MBE, honorary doctorate. Campaigns for people with learning disabilities and autism to be treated equally.
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    · 21 days ago
    Anyone who thinks that Timms is kind and caring would be deceived big time. To me, he's morally corrupt. He has made sure that nothing is transparent in his review, He lacks honesty, leave alone honest reporting, as he even misleads MPs. He's as deeply opaque as hell. He parrots that the review is "co-produced with disabled people", when the DWP itself has openly admitted in workshop slides that their feedback sessions were not co-produced.

    While he often claims positive rhetoric about making Personal Independence Payment (PIP) "fair and fit for the future",  he allowed severe changes to be quietly slipped into the review's parameters behind closed doors.
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    · 21 days ago
    I am cynical in regard to the motives of Meg Hiller and Louise Haigh.

    The original rebellion was disproportionately made up of newly elected first time Labour MPs, and those on the left wing of the Labour party. It became obvious it had lots of back bench support and was going to be a major problem for the government.

    Then senior Labour MPs Meg Hiller and Louise Haigh join the rebellion and took charge. Their starting point was agreeing with the Labour government on the need for disability benefit reform and the aims of the proposed reforms. And they tried to get the rebel MPs to agree a compromise with the government. The compromise Meg Hiller and Louise Haigh agreed to was exempting new claimants. They backed implementing the 4 point PIP rule for new claimants and cutting UC LCWRA for new claimants. But they could not get enough rebels to follow their change of mind into supporting the bill. So the government ended up having to abandon the 4 point PIP rule. Since then they have been vocal supporters of the Milburn and Timms reviews.
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      · 21 days ago
      @JBob1234 I meant to write The compromise Meg Hiller and Louise Haigh agreed to was exempting pre-existing claimants.
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    · 21 days ago
    Thank you for this timely and detailed summary, albeit a concerning one. Sounds like a niche group of hand selected disabled persons has been consulted, rather than a random selection of say 100 PIP claimants which would have been representative.

    Also the survey, which from the sounds of it above gave no indication on what PIP reform and potential altered LCWRA access would look like, yet the survey will be used to say 'disabled people agree'.

    I'm very unclear how a costs system would work - those with highest needs get highest award? Vouchers and pre selected outlets offered only? Apply for high initial costs then lower maintenance? Do some disabilities occur less costs - but as spending relies on income, regardless of need, I don't see how costs can be verified?  Unless spending is analysed? 
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      · 20 days ago
      @Biro A 70% cut proposal connected to the ongoing Timms Review stems from a report co-authored by Jean-André Prager, a member of the review's steering group and former Conservative government adviser.Wonder why a Tory is on a panel connected to labour welfare review,its just evil 70 percent in a cpst of living crisis too